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  1. Special Issues for People with PNH

    ... things, it's a good idea to: Get a red blood cell count Get treatment for your anemia (blood transfusions or ... weigh the risks and benefits of getting a flu shot. Don’t forget to ask whether your family members and others in close contact with ...

    Page last updated 01/20/2015 - 4:59pm.

  2. Lower-Risk MDS: Diagnosis and Treatment Options

    ... primary problem. Is it anemia , or a low white blood cell count, or is it a low platelet count?   Anemia is the most frequent ... usually given with cyclosporine , which is a T cell suppressor. Some MDS patients respond to this treatment. The major ...

    Interview last updated 05/18/2012 - 1:28pm.

  3. Interviews with the Experts Comorbidities: When Other Medical Conditions Affect MDS Treatment

    ... cases this particular comorbid condition can even help: red cell growth factors like darbepoetin (Aranesp®) or epoetin (Procrit®) can ... So in many cases, patients with serious comorbidities aren’t eligible to participate in clinical trials. But that restrictive clinical ...

    Interview last updated 11/17/2014 - 9:31am.

  4. MDS and MDS/MPN: Past, Present, and Future 2014 American Society of Hematology (ASH) Satellite Symposium Summary for Patients and Families

    ... advanced techniques to study genes and chromosomes don’t give enough information to find out what type of MDS or MDS/MPN a patient ... silenced genes). But some patients with MDS don’t respond to HMAs, and most patients who do respond eventually have a ... Can We Cure Them? The Role of Hematopoietic Stem Cell Transplantation in MDS/MPN.   Treatments for MDS/MPN are ...

    Page last updated 03/13/2015 - 5:00pm.

  5. Eltrombopag: Recent Discoveries on Potential New Applications for Aplastic Anemia

    ... in some patients, but also improve white and red blood cell counts. This was a surprising finding, as the drug was really ... trials for aplastic anemia? Originally we weren't that hopeful that eltrombopag would be useful in aplastic anemia, because the ...

    Interview last updated 02/14/2014 - 2:01pm.

  6. MDS: Causes

    ... the blood and bone marrow . Often times, doctors don't know the exact cause of MDS. These cases are called de novo MDS. We ... and radiation therapy, and also in those who undergo stem cell transplants for conditions like lymphoma. Treatment for t-MDS is the ...

    Page last updated 02/25/2015 - 11:31am.

  7. North American Pediatric Aplastic Anemia Consortium Symposium

    ... to show mild dysplasia and patchy areas of red blood cell , or erythroid, precursors. However, in the absence of an MDS defining ... graft rejection, which is problematic for patients who don’t respond to IST. As donor matching and supportive care within hematopoietic ...

    Page last updated 10/31/2013 - 4:06pm.

  8. Conferences, Webinars and Webcasts

    ... -Judy  I now know this disease shouldn’t stop me from living life as best I can. – Evelyn   Webinars & ...   Caregivers   Clinical Trials   Stem Cell Transplantation   Living Well   Nutrition   ...

    Page last updated 09/30/2014 - 11:50am.

  9. 2012 Scientific Symposium

    ... bone marrow failure diseases or studying the immunology and cell biology of these diseases. Comments from 2012 Symposium ... unbiased, noncommercial. Great venue. Good timing (doesn't conflict with other meetings)." "I love that you support junior ...

    Page last updated 01/12/2015 - 12:20pm.

  10. Interviews with the Experts MDS Genomics: Providing ‘Street View’ Directions of Disease

    ... for any study of chromosomes , genes, and DNA in a cell. “Genetics” is a more specific term that pertains to the study of just ... There are situations where patients and doctors aren’t completely sure if the patient has MDS or not. The patient may have low blood ...

    Interview last updated 09/23/2014 - 9:30am.