Updates from the December 2018 convening of the America Society of Hematology on MDS.
IMPORTANT: UPDATED Guidance for Patients on COVID-19 including Vaccine Information»
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
| Wednesday, March 3, 2021 - 2:00pm | Understanding Bone Marrow Failure Syndromes |
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| Monday, March 8, 2021 - 3:00pm | ASH 2020: MDS and AML Updates for Patients |
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| Thursday, March 18, 2021 - 2:00pm | COVID-19 Update: Vaccinations for Bone Marrow Failure Patients |
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| Monday, March 22, 2021 - 12:00pm | New Transplant Advances for Patients |
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| Friday, April 23, 2021 - 2:00pm | Intimacy and Bone Marrow Failure |
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| Tuesday, April 27, 2021 - 2:00pm | Haploidentical Transplant for MDS |
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Updates from the December 2018 convening of the America Society of Hematology on MDS.
Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.
Dr Navada explains how healthcare professionals diagnosis and treat the overlapping conditions of aplastic anemia and MDS, outlining the decisionmaking process and key factors relevant to effective treatment.
This webinar explains how myeloid malignancies form in plain language for patients and families.
This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS.
Steven Devine, MD walks potential donors through all of the steps to becoming a bone marrow donor from screening to donation and everything in between. This webinar was a joint project between Be the Match and AAMDSIF.
Reducing the stress of diagnosis and treatment for rare bone marrow failure diseases is the topic of this webinar. K. Stolar explains in-depth in the full webinar, recorded 8-23-2018.
This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families.
Dr Mattison provides an overview of the two primary diagnosis tools for patients with MDS (myelodysplatic syndromes).
Dr Malone explains the key issues for transplant patients during the first 100 days, focusing on Acute GVHD (graft-versus-host-disease).
Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload.
A look to the future of treatment for patients with PNH (paroxysmal nocturnal hemoglobinuria).
Dr DeZern provides a thorough review of the three major classificiations of aplastic anemia including diagnosis, treatment and prognosis.
Dr Michael Pulsipher discusses the cognitive, social and physical side effects for children dealing with bone marrow failure diseases.
Dr Savona explains what options are available for patients with AML outside of transplant.
All bone marrow failure disease patients and their families need to understand how to read lab results. This webinar covers all of the basics and answers some of the most common questions.
This webinar discusses issues related to PNH.
Dr. Jacqueline Garcia describes diagnostic and therapeutic options for AML, or Acute Myeloid Leukemia.
Dr Keng explains myelofibrosis and how it overlaps with other bone marrow failure diseases.
Dr Catherine Broome provides a comprehensive overview of PNH for newly diagnosed patients and their families. This is a recorded webinar so you will not be able to ask questions. If you do have questions, please send an email to help@aamds.org or use the Chat option on the bottom right of your screen.
