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Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Wednesday, March 3, 2021 - 2:00pm Understanding Bone Marrow Failure Syndromes
Monday, March 8, 2021 - 3:00pm ASH 2020: MDS and AML Updates for Patients
Thursday, March 18, 2021 - 2:00pm COVID-19 Update: Vaccinations for Bone Marrow Failure Patients
Monday, March 22, 2021 - 12:00pm New Transplant Advances for Patients
Friday, April 23, 2021 - 2:00pm Intimacy and Bone Marrow Failure
Tuesday, April 27, 2021 - 2:00pm Haploidentical Transplant for MDS

Watch Past Webinar Recordings

Presenter: Amer Zeidan, M.D.
Topic: Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Amer Zeidan from Yale Cancer Center discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2019 meeting in Orlando, Florida.

Research findings are explained along with the potential impact of this research on understanding and treating MDS and AML.

Presenter: Gail J. Roboz, M.D.
Topic: COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

This webinar with Gail Roboz, MD, addresses the concerns of high-risk MDS or secondary AML patients and their caregivers and reviews the precautions they should be taking to protect their health. Patients, families and caregiver questions are included at the end of the presentation. 

Presenter: H. Joachim Deeg, MD
Topic: Bone Marrow Transplant, COVID-19

In this webinar, Dr. Deeg addresses the pre and post transplant concerns of bone marrow failure patients and their caregivers and reviews the precautions they should be taking to protect their health, particularly during this pandemic.

Our apologies, but this webinar had some technological challenges during the presentation and the sound quality is not ideal. We will also provide a transcript of the session which should provide clarity on the responses from Dr. Deeg to the questions submitted during the Q & A portion of the webinar. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic: Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic: Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Carlos M. De Castro, III, M.D.
Topic: Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

Presenter: Mikkael Sekeres, MD, MS, Isabel Schuermeyer, MD
Topic: COVID-19

Recorded 3/13/20, this webinar features two experts, Dr. Mikkael Sekeres and Dr. Isabel Schuermeyer, who discussed how patients can deal with the outbreak of COVID-19 both physically and emotionally. After their presentation, they answered questions from the live audience.

Presenter: Cate Lockhart, PharmD, PhD
Topic: Managing Your Treatment

In this webinar, Cate Lockhart - Executive Director at Biologics and Biosimilars Collective Intelligence Consortium, helps patients and families understand the difference between biologic and biosimilar medications. She discusses the approval process for FDA approval and how biosimiliar medications will impact the future of treating patients.

Presenter: Michael Pulsipher, MD
Topic: Pediatric Bone Marrow Failure Diseases, Bone Marrow Transplant

In this webinar, Dr. Michael Pulsipher from Children's Hospital Los Angeles will discuss pediatric bone marrow transplant and how to optimize the best outcomes for pediatric patients after transplant. Complications can arise after transplant and Dr. Pulsipher will discuss who to protect your child's health.

Presenter: Michael Pulsipher, MD
Topic: Bone Marrow Transplant, Pediatric Bone Marrow Failure Diseases

Dr. Michael Pulsipher, MD, describes the determination for bone marrow transplant treatment in children in order to promote positive outcomes.

Presenter:
Topic: Bone Marrow Transplant

Costa Herbert, RN from Fred Hutchinson Cancer Research Center discusses the transplant process so patients and caregivers can travel the transplant journey with knowledge and confidence. 

This webinar is presented in partnership with Be the Match. 

Presenter: Catherine Lai, MD, MPH
Topic: Myelodysplastic Syndromes (MDS)

Dr Catherine Lai, Medstar Georgetown University Hospital Lombardi Comprehensive Cancer Center, discusses the challenges associated with treating MDS in older adults and what treatment options are available. 

Presenter:
Topic: Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Daniel Weisdorf from the University of Minnesota Clinical and Translational Science Institute will discuss what is a bone marrow transplant and the risks and benefits of a transplant for CLL patients.

Presenter: Gail J. Roboz, M.D.
Topic: Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Gail Roboz from Weill Cornell, discusses the advances in MDS and AML research that was reported at the annual conferences of two major hematology/oncology organizations this summer – the American Society of Clinical Oncology (ASCO) and the European Hematology Association (EHA).

Presenter: Phil Scheinberg, MD
Topic: Aplastic Anemia

During this webinar, Dr. Phillip Scheinberg from Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo in Brazil discusses the history of Aplastic Anemia - past, current and future thinking of the disease and treatment options.

Presenter: Michael Burke, MD
Topic: Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Michael Burke, MD
Topic: Pediatric Bone Marrow Failure Diseases

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Pamela Becker, MD, PhD
Topic: Myelodysplastic Syndromes (MDS)

During this webinar, Dr. Pamela Becker from Seattle Cancer Care Alliance and University of Washington School of Medicine discusses the history of MDS - past, current and future thinking of the disease and treatment options.

Presenter: Marlise Luskin, MD, MSCE
Topic: Myelodysplastic Syndromes (MDS)

Dr. Marlise Luskin from Dana Farber Cancer Institute defines high-risk MDS versus low-risk MDS, impact for patients and what treatment options are available.

Presenter: Shyamala Navada, MD
Topic: Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Shyamala Navada from Tisch Cancer Institute discussesthe history of PNH - past, current and future thinking of the disease and treatment options. 

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