Webinars | Aplastic Anemia & MDS International Foundation

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Watch Recorded Patient Webinars

Presenter: Aditi Shastri, M.B.B.S.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

Dr. Aditi Shastri, M.B.B.S. is a Hematologist/Oncologist at Montefiore Medical Center and is an Assistant Professor at the Albert Einstein College of Medicine. Dr. Shastri earned her medical degree from Lokmanya Tilak Municipal Medical College and is an experienced clinical researcher in the areas of acute myeloid leukemia, myelodysplastic syndromes, cancer stem cells, transcription factors, STAT3, RNA biology and therapeutic interference and health disparities. Her colleague, Rose Snyder, M.D. will be joining the presentation. Dr. Snyder is with the Jacobi Cancer Center at the Albert Einstein College of Medicine. Sweet Syndrome is associated with MDS in about 20% of cases. This webinar discusses the connection between Sweet Syndrome and MDS, treatment and prognosis.

Presenter: Alice S. Mims, MD
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Mims provides an overview of the latest treatment options in pipeline for High-Risk MDS and AML patients including several promising clinical trials that may be suitable for patients. 

Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Stefanie Thomas, MD, Taylor Buss, MSW
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr. Stefanie Thomas and Taylor Buss, Pediatric Oncology Social Worker (Cleveland Clinic), lead a panel discussion with two young adult patients with bone marrow failure disease, discussing their treatment journeys, the challenges and successes they've faced.  

Presenter: Taylor Buss, MSW, Seth Rotz, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Living Well with Bone Marrow Failure, Managing Your Treatment

Dr. Seth Rotz and Taylor Buss (Cleveland Clinic) lead a panel discussion with two patients, Paige and Justin who were diagnosed with bone marrow failure disease while they were teenagers or young adults, underwent treatment and are now survivors. Dr. Rotz gives an overview of what characteristics he sees in his most successful patients and then Taylor Buss asks questions of our survivors - from dating to life as a young professional.

Presenter: Rabi Hanna, MD
Topic(s): Aplastic Anemia

Rabi Hanna, MD (Cleveland Clinic) helps aplastic anemia patients and families understand the treatment options including new thinking on transplants from alternative donors for patients with acquired aplastic anemia. Dr. Hanna will also gives an update on the most promising developments currently in clinical trial

Presenter: Seth Corey, MD, MPH
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Seth Corey, MD, MPH (Cleveland Clinic), led an informative session for patients of all ages about the causes of bone marrow failure diseases like aplastic anemia, PNH, MDS and AML. Dr. Corey explains the difference between acquired and genetic disease, how that difference can affect treatment options and prognosis.

Presenter: Jaroslaw Maciejewski, MD, PhD, Bhumika Patel, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Jaroslaw Maciejewski, MD, PhD and Bumikha Patel, MD (Cleveland Clinic), give an important update for PNH patients and families on new treatment options as well as promising drugs currently in clinical trial

Presenter: Staci Arnold, MD, MBA, MPH, BS
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Staci Arnold, MD, MBA, MPH (Emory University) shares her extensive research on what quality of life outcomes are most important to bone marrow failure disease patients and families and how to make your life better during diagnosis, treatment and survivorship.

Presenter: Hetty Carraway, M.D.
Topic(s): Myelodysplastic Syndromes (MDS)

Hetty Carraway, MD (Cleveland Clinic) leads an informative session for MDS patients who want to know more about how genetic mutations can affect treatment options and how doctors evaluate the risk of MDS progression based on international criteria.

Presenter: Amer Zeidan, M.D., Amit K. Verma, M.B.B.S.
Topic(s): Myelodysplastic Syndromes (MDS)

Amit K. Verma, MBBS, is a Professor in the Departments of Medicine (Oncology) and Development & Molecular Biology at Albert Einstein School of Medicine. Dr. Verma is the Director of the Division of Hemato-Oncology, Montefiore Department of Oncology. His primary area of research is in MDS.

Amer Zeidan, MBBS, MHS is an Associate Professor of Medicine (Hematology) at the Yale School of Medicine. Dr. Zeidan specializes in the management of MDS and acute myeloid leukemia (AML) and is an international expert in the clinical management and research of myeloid malignancies.

Dr. Verma and Dr. Zeidan give an update on the two newest treatments for MDS patients, INQOVI and REBLOYZL. They also give a brief update on what is in the immediate pipeline for MDS patients and what can be expected into 2021.

 

Presenter: Elizabeth Griffiths, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Elizabeth Griffiths, MD is an Associate Professor at the State University of New York (SUNY) at Buffalo and a faculty member of the Roswell Park Comprehensive Cancer Center-SUNY Buffalo graduate training programs in the departments of Pharmacology and Therapeutics, Translational Medicine and Immunology.  Prior to joining Roswell Park in 2010, Dr. Griffiths completed a five year medical oncology and hematology fellowship at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins Hospital in Baltimore, MD.  Dr. Griffiths is board certified in hematology, oncology and internal medicine.

In this webinar, Dr. Griffiths gives a brief overview of what PNH is and how it affects patients, an update on the current treatment options for PNH patients and then answers more than a dozen questions from patients and family members.

Presenter: Eytan Stein, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Myelodysplastic Syndromes (MDS)

Eytan M. Stein, MD is a Oncologic Hematologist at Sloan Kettering emorial Cancer Center who specializes in caring for people with acute and chronic leukemias, myelodysplastic syndromes, and myeloproliferative neoplasms. He earned his medical degree from Northwestern University and is board certified in Internal Medicine, Medical Oncology, and Hematology. Dr. Stein is an active clinical researcher developing new and innovative approaches to treating acute myeloid leukemia (AML) and serves as the principal investigator on a wide variety of clinical trials. 

In this webinar, Dr. Eytan M. Stein discusses the important issues specific to young adults with MDS, from long-term prognosis and fertility concerns to next generation sequencing and clinical trial opportunities.
Presenter: Ryotaro Nakamura, MD
Topic(s): Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Ryotaro Nakamura, MD is Professor, Department of Hematology & Hematopoietic Cell Transplantation; Director, Center for Stem Cell Transplantation at City of Hope. 

Dr. Nakamura discusses the how the best practices for treating aplastic anemia and MDS have changed to include transplant as a realistic option for many patients over 40.  With new conditioning regimes and improved matching, many patients can have a successful transplant well into their 70s.  Dr. Nakamura also gives an overview of how aplastic anemia and MDS affect the bone marrow, a critical part of the decisionmaking process for determining if a transplant is an option.  
 

Presenter: Bhumika Patel, MD
Topic(s): Aplastic Anemia, Living Well with Bone Marrow Failure

Bhumika Patel, MD, is a board certified hematologist/oncologist who was appointed to the Cleveland Clinic Taussig Cancer Center in 2019, following two successful fellowships.  Dr. Patel is an active researcher, contributing to more than 40 studies over the last three years with a focus on bone marrow failure diseases.

In this webinar, Dr. Patel discusses the specific concerns of women living with aplastic anemia, from the newly diagnosed to longer-term survivors and includes a robust Q & A sessions with input from women living with aplastic anemia. 

Presenter: Vijaya Bhatt, MD
Topic(s): Bone Marrow Transplant

Dr. Bhatt and Dr. Zimmer discuss important information about how and when to treat infectious disease in patients who have had a transplant. This webinar is appropriate for patients who are contemplating a transplant and those who have already had one. 

Vijaya R. Bhatt, MD, MBBS, is Assistant Professor, Internal Medicine in the Division of Oncology & Hematology and the University of Nebraska Medical Center. Dr. Bhatt sees patients at the Fred & Pamela Buffett Cancer Center where he specializes in hematopoietic stem cell transplant, post-transplant complications, graft-versus-host disease, leukemias, myeloid disorders and benign hematologic disorders. 

Dr. Bhatt is board certified in Hematology and Medical Oncology as well as being a well-regarded researcher.  He has published numerous journal articles, papers and analyses on topics including the treatment of infectious disease in transplant patients. 

Andrea Zimmer, MD, joins the webinar to provide her perspective in infection diseases. Dr. Zimmer is Assistant Professor, Department of Internal Medicine, Co-Director, Graduate Medical Education Curriculum, Microbiology & Infectious Diseases Block at the University of Nebraska School of Medicine.  Dr. Zimmer treats patients at the Fred & Pamela Buffett Cancer Center, providing guidance and support to patients and health care professionals in managing the risks of infectious disease.

Presenter: Tiffany Tanaka, MD
Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Tiffany N. Tanaka, MD, is a board-certified hematologist specializing in the diagnosis and treatment of blood cancers and blood disorders, with an emphasis on myeloid malignancies.  Dr. Tanaka provides an overview of the diagnostic and treatment considerations for patients who have aplastic anemia and hypoplastic MDS.  This overlapping set of bone marrow failure diseases raises critical questions for patients and health care professionals. 

Presenter: Holly Comer, BSN, ANP-BC
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Holly Comer, BSN, ANP-BC, has been an oncology nurse for 30 years and has been a nurse practitioner for the last 14 years.  Ms. Comer is with Siteman Cancer Center at Barnes-Jewish Hospital & Washington University School of Medicine where she has been part of the Bone Marrow Transplant team for the last 26 years. She also served as a nurse during the Gulf War. Ms. Comer is actively involved in clinical research, most recently serving as the principal investigator for "Bone Loss in Allogeneic Transplant Patients", the results of which will be covered during her webinar. 

Holly Comer, MSN, ANP-BC provides a thorough overview of the concerns of long term transplant survivors related to bone health and disease. Ms. Comer also provides an update on a recent study she led entitled "Bone Loss in Allogenic Transplant Patients".

Presenter:
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Kathleen Moore, MD is Director, Oklahoma TSET Phase I Program; Associate Professor, Section of Gynecologic Oncology and is an associate professor in the section of gynecologic oncology and serves as the director of the Oklahoma TSET Phase I Clinical Trials Program, the state’s only phase I clinical trials program. She is the Jim and Christy Everest Endowed Chair in Cancer Research as well as the director of the gynecologic oncology fellowship program. She also serves as the Associate Director of Clinical Research and Medical Director of the Clinical Trials Office for the Stephenson Cancer Center. 

Dr. Moore discusses the unique concerns of female patients who develop Secondary MDS/AML after chemotherapy treatment.  This session includes current treatment options as well as a review of what is currently in clinical trial, including Dr. Moore's own work in drug development. 

Presenter: Carlos E. Vigil, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Carlos E. Vigil, MD is a Hematologist at the University of Iowa Hospitals and Clinics and Clinical Assistant Professor of Internal Medicine - Hematology, Oncology and Blood and Marrow Transplantation at the University of Iowa Carver College of Medicine. Dr. Vigil received his MD from the Universidad Peruana Cayetano Heredia and is engaged in academic research as well as working directly with patients in clinic.

Dr. Vigil discusses autoimmune disorders and MDS (myelodysplastic syndromes) including an assessment of the overlap between autoimmune disorders and bone marrow failure disease, the impact this can have on treatment options and on patient prognosis.

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Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Rabi Hanna, MD
Topic(s): Aplastic Anemia

Rabi Hanna, MD (Cleveland Clinic) helps aplastic anemia patients and families understand the treatment options including new thinking on transplants from alternative donors for patients with acquired aplastic anemia. Dr. Hanna will also gives an update on the most promising developments currently in clinical trial

Presenter: Seth Corey, MD, MPH
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Seth Corey, MD, MPH (Cleveland Clinic), led an informative session for patients of all ages about the causes of bone marrow failure diseases like aplastic anemia, PNH, MDS and AML. Dr. Corey explains the difference between acquired and genetic disease, how that difference can affect treatment options and prognosis.

Presenter: Bhumika Patel, MD
Topic(s): Aplastic Anemia, Living Well with Bone Marrow Failure

Bhumika Patel, MD, is a board certified hematologist/oncologist who was appointed to the Cleveland Clinic Taussig Cancer Center in 2019, following two successful fellowships.  Dr. Patel is an active researcher, contributing to more than 40 studies over the last three years with a focus on bone marrow failure diseases.

In this webinar, Dr. Patel discusses the specific concerns of women living with aplastic anemia, from the newly diagnosed to longer-term survivors and includes a robust Q & A sessions with input from women living with aplastic anemia. 

Presenter: Ryotaro Nakamura, MD
Topic(s): Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Ryotaro Nakamura, MD is Professor, Department of Hematology & Hematopoietic Cell Transplantation; Director, Center for Stem Cell Transplantation at City of Hope. 

Dr. Nakamura discusses the how the best practices for treating aplastic anemia and MDS have changed to include transplant as a realistic option for many patients over 40.  With new conditioning regimes and improved matching, many patients can have a successful transplant well into their 70s.  Dr. Nakamura also gives an overview of how aplastic anemia and MDS affect the bone marrow, a critical part of the decisionmaking process for determining if a transplant is an option.  
 

Presenter: Tiffany Tanaka, MD
Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Tiffany N. Tanaka, MD, is a board-certified hematologist specializing in the diagnosis and treatment of blood cancers and blood disorders, with an emphasis on myeloid malignancies.  Dr. Tanaka provides an overview of the diagnostic and treatment considerations for patients who have aplastic anemia and hypoplastic MDS.  This overlapping set of bone marrow failure diseases raises critical questions for patients and health care professionals. 

Presenter: Holly Comer, BSN, ANP-BC
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Holly Comer, BSN, ANP-BC, has been an oncology nurse for 30 years and has been a nurse practitioner for the last 14 years.  Ms. Comer is with Siteman Cancer Center at Barnes-Jewish Hospital & Washington University School of Medicine where she has been part of the Bone Marrow Transplant team for the last 26 years. She also served as a nurse during the Gulf War. Ms. Comer is actively involved in clinical research, most recently serving as the principal investigator for "Bone Loss in Allogeneic Transplant Patients", the results of which will be covered during her webinar. 

Holly Comer, MSN, ANP-BC provides a thorough overview of the concerns of long term transplant survivors related to bone health and disease. Ms. Comer also provides an update on a recent study she led entitled "Bone Loss in Allogenic Transplant Patients".

Presenter:
Topic(s): Aplastic Anemia

Swapna Thota, MD joined Roswell Park in 2017 where she specializes in caring for patients with acute leukemias, MDS and other blood cancers. She holds a dual appointment as Assistant Professor of Oncology at Roswell Park Comprehensive Cancer Center and Jacobs School of Medicine and Biomedical Sciences, State University of New York at Buffalo.  Dr. Thota's research focuses on hematologic malignancies, especially on novel drug development to improve outcomes in patients with blood cancers. 

Dr. Thota discusses the complexities of determining the best course of treatment for patients with moderate aplastic anemia

Presenter: Bhavisha Patel, MD
Topic(s): Aplastic Anemia

Dr Patel of the National Institutes of Health Bhavisha Patel, MD, is a Staff Clinician at the National Institutes of Health, working under Neal Young, MD on the Hematopoiesis and Bone Marrow Failure team.

Presenter: Timothy Olson, MD, PhD
Topic(s): Aplastic Anemia

Due to internet connectivity issues, the audio for this webinar will be rerecorded as soon as the speaker is available. In the interim, please accept our apologies for the quality of the sound. We are attached a PDF of the presentation for your review although we note that the video quality was acceptable. 

Timothy S. Olson, MD, PhD, is an Attending Physician with Children's Hospital of Philadelphia where he serves as the Medical Director of the Blood and Bone Marrow Transplant Program and as Director of Research for the Comprehensive Bone Marrow Failure Center.  Dr. Olson is also an Assistant Professor of Pediatrics at the Perelman School of Medicine at The University of Pennsylvania.  Dr. Olson focuses on pediatric hematopoietic stem cell transplantation (HSCT), with a specific emphasis on HSCT for patients with inherited and acquired bone marrow failure.

Presenter: Ilene Weitz, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Ilene Weitz, MD, is an assistant professor of clinical medicine at the Keck School of Medicine at the University of Southern California (USC). Her practice sites include, LAC+USC Medical Center, Keck Hospital of USC and USC Norris Cancer Hospital. Dr. Weitz is board certified in Internal Medicine and Hematology.  This webinar focuses on the latest in research presented at the 2019 American Society of Hematology (ASH) Annual Meeting held at the end of 2019. Dr. Weitz has selected a number of abstracts (research summaries) and provides a high level assessment of new and ongoing research into treating aplastic anemia and/or PNH. Participants were able to submit questions during the presentation and Dr. Weitz' responses are at the end of the webinar recording. 

Presenter: Shyamala Navada, MD
Topic(s): Aplastic Anemia

Shyamala Navada, MD, MSCR, Mount Sinai Hospital, New York, provides an overview of the diagnosis and treatment of aplastic anemia and an update on new treatment options that are in the clinical trial and study phase. Dr. Navada also answers patient-submitted questions.

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Carlos M. De Castro, III, M.D.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

Presenter: Phil Scheinberg, MD
Topic(s): Aplastic Anemia

During this webinar, Dr. Phillip Scheinberg from Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo in Brazil discusses the history of Aplastic Anemia - past, current and future thinking of the disease and treatment options.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Kasiani Myers, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

Presenter: Jaroslaw Maciejewski, MD, PhD, Bhumika Patel, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

During this program, Dr. Bhumika Patel and Dr. Jaroslaw Maciejewski from Taussig Cancer Institute discuss research reported over the past year on the biology and treatment of aplastic anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2018 meeting in San Diego, CA. Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH.

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Presenter: Aditi Shastri, M.B.B.S.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

Dr. Aditi Shastri, M.B.B.S. is a Hematologist/Oncologist at Montefiore Medical Center and is an Assistant Professor at the Albert Einstein College of Medicine. Dr. Shastri earned her medical degree from Lokmanya Tilak Municipal Medical College and is an experienced clinical researcher in the areas of acute myeloid leukemia, myelodysplastic syndromes, cancer stem cells, transcription factors, STAT3, RNA biology and therapeutic interference and health disparities. Her colleague, Rose Snyder, M.D. will be joining the presentation. Dr. Snyder is with the Jacobi Cancer Center at the Albert Einstein College of Medicine. Sweet Syndrome is associated with MDS in about 20% of cases. This webinar discusses the connection between Sweet Syndrome and MDS, treatment and prognosis.

Presenter: Alice S. Mims, MD
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Mims provides an overview of the latest treatment options in pipeline for High-Risk MDS and AML patients including several promising clinical trials that may be suitable for patients. 

Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Hetty Carraway, M.D.
Topic(s): Myelodysplastic Syndromes (MDS)

Hetty Carraway, MD (Cleveland Clinic) leads an informative session for MDS patients who want to know more about how genetic mutations can affect treatment options and how doctors evaluate the risk of MDS progression based on international criteria.

Presenter: Seth Corey, MD, MPH
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Seth Corey, MD, MPH (Cleveland Clinic), led an informative session for patients of all ages about the causes of bone marrow failure diseases like aplastic anemia, PNH, MDS and AML. Dr. Corey explains the difference between acquired and genetic disease, how that difference can affect treatment options and prognosis.

Presenter: Amer Zeidan, M.D., Amit K. Verma, M.B.B.S.
Topic(s): Myelodysplastic Syndromes (MDS)

Amit K. Verma, MBBS, is a Professor in the Departments of Medicine (Oncology) and Development & Molecular Biology at Albert Einstein School of Medicine. Dr. Verma is the Director of the Division of Hemato-Oncology, Montefiore Department of Oncology. His primary area of research is in MDS.

Amer Zeidan, MBBS, MHS is an Associate Professor of Medicine (Hematology) at the Yale School of Medicine. Dr. Zeidan specializes in the management of MDS and acute myeloid leukemia (AML) and is an international expert in the clinical management and research of myeloid malignancies.

Dr. Verma and Dr. Zeidan give an update on the two newest treatments for MDS patients, INQOVI and REBLOYZL. They also give a brief update on what is in the immediate pipeline for MDS patients and what can be expected into 2021.

 

Presenter: Eytan Stein, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Myelodysplastic Syndromes (MDS)

Eytan M. Stein, MD is a Oncologic Hematologist at Sloan Kettering emorial Cancer Center who specializes in caring for people with acute and chronic leukemias, myelodysplastic syndromes, and myeloproliferative neoplasms. He earned his medical degree from Northwestern University and is board certified in Internal Medicine, Medical Oncology, and Hematology. Dr. Stein is an active clinical researcher developing new and innovative approaches to treating acute myeloid leukemia (AML) and serves as the principal investigator on a wide variety of clinical trials. 

In this webinar, Dr. Eytan M. Stein discusses the important issues specific to young adults with MDS, from long-term prognosis and fertility concerns to next generation sequencing and clinical trial opportunities.
Presenter: Ryotaro Nakamura, MD
Topic(s): Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Ryotaro Nakamura, MD is Professor, Department of Hematology & Hematopoietic Cell Transplantation; Director, Center for Stem Cell Transplantation at City of Hope. 

Dr. Nakamura discusses the how the best practices for treating aplastic anemia and MDS have changed to include transplant as a realistic option for many patients over 40.  With new conditioning regimes and improved matching, many patients can have a successful transplant well into their 70s.  Dr. Nakamura also gives an overview of how aplastic anemia and MDS affect the bone marrow, a critical part of the decisionmaking process for determining if a transplant is an option.  
 

Presenter: Tiffany Tanaka, MD
Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Tiffany N. Tanaka, MD, is a board-certified hematologist specializing in the diagnosis and treatment of blood cancers and blood disorders, with an emphasis on myeloid malignancies.  Dr. Tanaka provides an overview of the diagnostic and treatment considerations for patients who have aplastic anemia and hypoplastic MDS.  This overlapping set of bone marrow failure diseases raises critical questions for patients and health care professionals. 

Presenter: Holly Comer, BSN, ANP-BC
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Holly Comer, BSN, ANP-BC, has been an oncology nurse for 30 years and has been a nurse practitioner for the last 14 years.  Ms. Comer is with Siteman Cancer Center at Barnes-Jewish Hospital & Washington University School of Medicine where she has been part of the Bone Marrow Transplant team for the last 26 years. She also served as a nurse during the Gulf War. Ms. Comer is actively involved in clinical research, most recently serving as the principal investigator for "Bone Loss in Allogeneic Transplant Patients", the results of which will be covered during her webinar. 

Holly Comer, MSN, ANP-BC provides a thorough overview of the concerns of long term transplant survivors related to bone health and disease. Ms. Comer also provides an update on a recent study she led entitled "Bone Loss in Allogenic Transplant Patients".

Presenter:
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Kathleen Moore, MD is Director, Oklahoma TSET Phase I Program; Associate Professor, Section of Gynecologic Oncology and is an associate professor in the section of gynecologic oncology and serves as the director of the Oklahoma TSET Phase I Clinical Trials Program, the state’s only phase I clinical trials program. She is the Jim and Christy Everest Endowed Chair in Cancer Research as well as the director of the gynecologic oncology fellowship program. She also serves as the Associate Director of Clinical Research and Medical Director of the Clinical Trials Office for the Stephenson Cancer Center. 

Dr. Moore discusses the unique concerns of female patients who develop Secondary MDS/AML after chemotherapy treatment.  This session includes current treatment options as well as a review of what is currently in clinical trial, including Dr. Moore's own work in drug development. 

Presenter: Carlos E. Vigil, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Carlos E. Vigil, MD is a Hematologist at the University of Iowa Hospitals and Clinics and Clinical Assistant Professor of Internal Medicine - Hematology, Oncology and Blood and Marrow Transplantation at the University of Iowa Carver College of Medicine. Dr. Vigil received his MD from the Universidad Peruana Cayetano Heredia and is engaged in academic research as well as working directly with patients in clinic.

Dr. Vigil discusses autoimmune disorders and MDS (myelodysplastic syndromes) including an assessment of the overlap between autoimmune disorders and bone marrow failure disease, the impact this can have on treatment options and on patient prognosis.

Presenter: Shannon McCurdy, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Dr. McCurdy discusses treating MDS (myelodysplastic syndromes) with combination therapies including the latest treatment options available and promising clinical trials and research.

Presenter: Sarah Bannon, MS, CGC
Topic(s): Myelodysplastic Syndromes (MDS)

Sarah Bannon is a Senior Genetic Counselor in the Department of Clinical Cancer Genetics at the UT MD Anderson Cancer Center. Her clinical responsibilities include providing risk assessment and genetic counseling services to individuals at risk for an inherited predisposition to hematologic malignancies (leukemia). She is the Genetic Counselor for the Hereditary Hematologic Malignancies Clinic (HHMC).

In this webinar, Ms. Bannon discusses hereditary or genetic predisposition to having MDS.

Presenter: Michael Keng, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Michael Keng, M.D. is an Assistant Professor and holds a clinical faculty appointment in Medicine in the Division of Hematology/Oncology at UVA Cancer Center. He practices at the Emily Couric Clinical Cancer Center in Charlottesville and serves as an inpatient hematologist at UVA Hospital. His clinical areas of interest are: myelodysplastic syndromes, myeloproliferative disorders, acute myeloid leukemia, chronic myeloid leukemia, acute lymphoid leukemia, and aplastic anemia. Dr. Keng provides a overview of the current treatment strategies for high risk MDS (myelodysplastic syndromes) patients and answers patient questions at the end of the presentation. Please note that this presentation is runs longer than most AAMDSIF webinars (1 hour, 27 minutes).

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

This webinar is an excerpt from a longer webinar entitled "Understanding the Overlap between MDS and MPNs" and has been edited accordingly. Dr. Mesa gives an overview of the specific concerns that patients with the overlapping conditions of MDS and MPNs have related to the coronavirus (COVID-19) pandemic. 

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Mesa discusses the overlap between MDS (myelodysplastic sydromes) and MPNs (myeloproliferative neoplasms), including diagnosis and treatment options including the latest in clinical trials. He also provides an update on the impact of COVID-19 on patients with MDS/MPNs overlap syndrome.

Presenter: Rami Komrokji, MD
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Rami Komrokji, MD, of Moffitt Cancer Center in Tampa, Florida, addresses the concerns of low-risk MDS patients and their caregivers and reviews the precautions they should be taking to protect their health during the COVID-19 pandemic. The webinar recording features patient-submitted questions.

Presenter: Rami Komrokji, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Rami Komrokji, MD, Moffitt Cancer Center, Florida, provides a comprehensive overview of lower risk MDS from diagnosis to treatment. Dr. Komrokji focuses on how hematologists and oncologists use different tools to assess the risk for patients when diagnosed with MDS including an overview of IPSS-R. He also explains how this assessment tool is only useful prior to treatment and that after interventions, other assessment tools are used by healthcare professionals to provide guidance and support to patients, families and caregivers. Dr. Komrokhi further discusses the treatment landscape including the newly announced luspatercept and several prospective treatments in the pipeline/clinical trial phase. 

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Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Seth Corey, MD, MPH
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Seth Corey, MD, MPH (Cleveland Clinic), led an informative session for patients of all ages about the causes of bone marrow failure diseases like aplastic anemia, PNH, MDS and AML. Dr. Corey explains the difference between acquired and genetic disease, how that difference can affect treatment options and prognosis.

Presenter: Jaroslaw Maciejewski, MD, PhD, Bhumika Patel, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Jaroslaw Maciejewski, MD, PhD and Bumikha Patel, MD (Cleveland Clinic), give an important update for PNH patients and families on new treatment options as well as promising drugs currently in clinical trial

Presenter: Elizabeth Griffiths, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Elizabeth Griffiths, MD is an Associate Professor at the State University of New York (SUNY) at Buffalo and a faculty member of the Roswell Park Comprehensive Cancer Center-SUNY Buffalo graduate training programs in the departments of Pharmacology and Therapeutics, Translational Medicine and Immunology.  Prior to joining Roswell Park in 2010, Dr. Griffiths completed a five year medical oncology and hematology fellowship at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins Hospital in Baltimore, MD.  Dr. Griffiths is board certified in hematology, oncology and internal medicine.

In this webinar, Dr. Griffiths gives a brief overview of what PNH is and how it affects patients, an update on the current treatment options for PNH patients and then answers more than a dozen questions from patients and family members.

Presenter: Holly Comer, BSN, ANP-BC
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Holly Comer, BSN, ANP-BC, has been an oncology nurse for 30 years and has been a nurse practitioner for the last 14 years.  Ms. Comer is with Siteman Cancer Center at Barnes-Jewish Hospital & Washington University School of Medicine where she has been part of the Bone Marrow Transplant team for the last 26 years. She also served as a nurse during the Gulf War. Ms. Comer is actively involved in clinical research, most recently serving as the principal investigator for "Bone Loss in Allogeneic Transplant Patients", the results of which will be covered during her webinar. 

Holly Comer, MSN, ANP-BC provides a thorough overview of the concerns of long term transplant survivors related to bone health and disease. Ms. Comer also provides an update on a recent study she led entitled "Bone Loss in Allogenic Transplant Patients".

Presenter: Ilene Weitz, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Ilene Weitz, MD, is an assistant professor of clinical medicine at the Keck School of Medicine at the University of Southern California (USC). Her practice sites include, LAC+USC Medical Center, Keck Hospital of USC and USC Norris Cancer Hospital. Dr. Weitz is board certified in Internal Medicine and Hematology.  This webinar focuses on the latest in research presented at the 2019 American Society of Hematology (ASH) Annual Meeting held at the end of 2019. Dr. Weitz has selected a number of abstracts (research summaries) and provides a high level assessment of new and ongoing research into treating aplastic anemia and/or PNH. Participants were able to submit questions during the presentation and Dr. Weitz' responses are at the end of the webinar recording. 

Presenter: Jamile M. Shammo, MD, FASCP, FACP
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Jamile Shammo, MD, FASCP, FACP, Rush University, Chicago, provides an update on the latest in diagnosing and treating PNH including a discussion about Soliris and Ultomiris as well as several new treatments that are in clinical trials and are showing promise for patients with this rare disease. Dr. Shammo also answered a number of patient-submitted questions. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Carlos M. De Castro, III, M.D.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

Presenter: Shyamala Navada, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Shyamala Navada from Tisch Cancer Institute discussesthe history of PNH - past, current and future thinking of the disease and treatment options. 

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Thomas G. DeLoughery, MD, MACP, FAWM
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this webinar, Dr. Thomas DeLoughery from Oregon Health Sciences University (OHSU) explains what is intravascular and extravascular hemolysis, symptoms, treatment and impact for patients.

Presenter: Jamile M. Shammo, MD, FASCP, FACP
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Jamile Shammo from Rush University Medical Center, discusses PNH and special concerns for women. Topics discussed in the webinar are: puberty, birth control, pregnancy, menopause and hysterectomy.

Presenter: Kasiani Myers, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

Presenter: Jaroslaw Maciejewski, MD, PhD, Bhumika Patel, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

During this program, Dr. Bhumika Patel and Dr. Jaroslaw Maciejewski from Taussig Cancer Institute discuss research reported over the past year on the biology and treatment of aplastic anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2018 meeting in San Diego, CA. Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH.

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter: Elizabeth Griffiths, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

A look to the future of treatment for patients with PNH (paroxysmal nocturnal hemoglobinuria). 

Presenter:
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

This webinar discusses issues related to PNH. 

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Presenter: Olatoyosi Odenike, MD
Topic(s): COVID-19

Olatoyosi Sobulo Odenike, MD, is Professor of Medicine in the Section of Hematology/Oncology and Director of the Leukemia Program at the University of Chicago as well as Co-Chair of the AAMDSIF Medical Advisory Board. Dr. Odenike is an expert in the care of adults with leukemia, chronic myeloproliferative diseases, and myelodysplastic syndromes. An active researcher, Dr. Odenike is involved in the development of novel therapeutic agents for the treatment of acute and chronic leukemias and chronic myeloproliferative diseases. The ultimate goal of her research is to improve treatment options for patients with these diseases. Dr. Odenike is the principal investigator on a number of clinical trials investigating molecularly targeted agents in this patient population. These clinical trials also integrate laboratory studies to evaluate the effect that these agents have on cancer cells.

Presenter: Mikkael Sekeres, MD, MS
Topic(s): COVID-19

Mikkael Sekeres, MD, MS discusses issues related to the impact of COVID-19 on the care of bone marrow failure patients including the importance of patients remaining at home even as more areas reduce restrictions, adapting to telemedicine, and resuming treatments that may have been delayed.

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Mesa discusses the overlap between MDS (myelodysplastic sydromes) and MPNs (myeloproliferative neoplasms), including diagnosis and treatment options including the latest in clinical trials. He also provides an update on the impact of COVID-19 on patients with MDS/MPNs overlap syndrome.

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

This webinar is an excerpt from a longer webinar entitled "Understanding the Overlap between MDS and MPNs" and has been edited accordingly. Dr. Mesa gives an overview of the specific concerns that patients with the overlapping conditions of MDS and MPNs have related to the coronavirus (COVID-19) pandemic. 

Presenter: Rami Komrokji, MD
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Rami Komrokji, MD, of Moffitt Cancer Center in Tampa, Florida, addresses the concerns of low-risk MDS patients and their caregivers and reviews the precautions they should be taking to protect their health during the COVID-19 pandemic. The webinar recording features patient-submitted questions.

Presenter: Veronica Dioverti, MD
Topic(s): COVID-19

Veronica Dioverti Prono, MD, Johns Hopkins School of Medicine , Baltimore, provides an update on the COVID-19 (novel coronavirus) pandemic as it relates to patients, families and caregivers dealing with bone marrow failure disease. Dr. Prono gives practical advise on how to avoid exposure to the virus and answers questions from a live audience. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: H. Joachim Deeg, MD
Topic(s): Bone Marrow Transplant, COVID-19

In this webinar, Dr. Deeg addresses the pre and post transplant concerns of bone marrow failure patients and their caregivers and reviews the precautions they should be taking to protect their health, particularly during this pandemic.

Our apologies, but this webinar had some technological challenges during the presentation and the sound quality is not ideal. We will also provide a transcript of the session which should provide clarity on the responses from Dr. Deeg to the questions submitted during the Q & A portion of the webinar. 

Presenter: Gail J. Roboz, M.D.
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

This webinar with Gail Roboz, MD, addresses the concerns of high-risk MDS or secondary AML patients and their caregivers and reviews the precautions they should be taking to protect their health. Patients, families and caregiver questions are included at the end of the presentation. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Carlos M. De Castro, III, M.D.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

Presenter: Mikkael Sekeres, MD, MS, Isabel Schuermeyer, MD
Topic(s): COVID-19

Recorded 3/13/20, this webinar features two experts, Dr. Mikkael Sekeres and Dr. Isabel Schuermeyer, who discussed how patients can deal with the outbreak of COVID-19 both physically and emotionally. After their presentation, they answered questions from the live audience.

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Presenter: Alice S. Mims, MD
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Mims provides an overview of the latest treatment options in pipeline for High-Risk MDS and AML patients including several promising clinical trials that may be suitable for patients. 

Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Seth Corey, MD, MPH
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Seth Corey, MD, MPH (Cleveland Clinic), led an informative session for patients of all ages about the causes of bone marrow failure diseases like aplastic anemia, PNH, MDS and AML. Dr. Corey explains the difference between acquired and genetic disease, how that difference can affect treatment options and prognosis.

Presenter: Holly Comer, BSN, ANP-BC
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Holly Comer, BSN, ANP-BC, has been an oncology nurse for 30 years and has been a nurse practitioner for the last 14 years.  Ms. Comer is with Siteman Cancer Center at Barnes-Jewish Hospital & Washington University School of Medicine where she has been part of the Bone Marrow Transplant team for the last 26 years. She also served as a nurse during the Gulf War. Ms. Comer is actively involved in clinical research, most recently serving as the principal investigator for "Bone Loss in Allogeneic Transplant Patients", the results of which will be covered during her webinar. 

Holly Comer, MSN, ANP-BC provides a thorough overview of the concerns of long term transplant survivors related to bone health and disease. Ms. Comer also provides an update on a recent study she led entitled "Bone Loss in Allogenic Transplant Patients".

Presenter:
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Kathleen Moore, MD is Director, Oklahoma TSET Phase I Program; Associate Professor, Section of Gynecologic Oncology and is an associate professor in the section of gynecologic oncology and serves as the director of the Oklahoma TSET Phase I Clinical Trials Program, the state’s only phase I clinical trials program. She is the Jim and Christy Everest Endowed Chair in Cancer Research as well as the director of the gynecologic oncology fellowship program. She also serves as the Associate Director of Clinical Research and Medical Director of the Clinical Trials Office for the Stephenson Cancer Center. 

Dr. Moore discusses the unique concerns of female patients who develop Secondary MDS/AML after chemotherapy treatment.  This session includes current treatment options as well as a review of what is currently in clinical trial, including Dr. Moore's own work in drug development. 

Presenter: Daniel Pollyea, MD, MS
Topic(s): Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

Daniel Pollyea, MD, MS, University of Colorado Health, gives a comprehensive overview of what happens when a higher risk MDS patient transitions to AML including the diagnositic criteria, treatment options and outcomes assessments. Dr. Pollyea also reviews some of the most promising treatment options that are in clinical trial and/or new to the treatment space. He also discusses the increasing success rates for older patients who go to transplant as a curative treatment for High Risk MDS and AML. Dr. Pollyea answers a number of patient-submitted questions as well. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amer Zeidan, M.D.
Topic(s): Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Amer Zeidan from Yale Cancer Center discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2019 meeting in Orlando, Florida.

Research findings are explained along with the potential impact of this research on understanding and treating MDS and AML.

Presenter: Gail J. Roboz, M.D.
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

This webinar with Gail Roboz, MD, addresses the concerns of high-risk MDS or secondary AML patients and their caregivers and reviews the precautions they should be taking to protect their health. Patients, families and caregiver questions are included at the end of the presentation. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Gail J. Roboz, M.D.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Gail Roboz from Weill Cornell, discusses the advances in MDS and AML research that was reported at the annual conferences of two major hematology/oncology organizations this summer – the American Society of Clinical Oncology (ASCO) and the European Hematology Association (EHA).

Presenter: Michael Burke, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Elie Traer, MD, PhD
Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Elie Traer from OHSU Knight Cancer Institute in Portland, OR will discuss what is refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Traer their questions.

Presenter: Timothy Pardee, MD, PhD
Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Timothy Pardee from Wake Forest Baptist Health will discuss the challenges associated with treating AML in older adults and what treatment options are available.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Courtney DiNardo, MD
Topic(s): Acute Myeloid Leukemia (AML)

In the webinar, Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX explains the different mutations found in AML. She discusses how mutations impact prognosis and affect treatment decisions.

Presenter: Daniel Pollyea, MD, MS
Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Daniel Pollyea from the University of Colorado, discusses the recent advances in treating AML.

Presenter: Thomas LeBlanc, MD, MA
Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Thomas LeBlanc from Duke University Hospital discusses AML - how the diagnosis and treatment decisions impact patients. He provides a basic overview of AML and current treatments.

Presenter: Joshua Sasine, MD, PhD
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.  

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

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Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Taylor Buss, MSW, Seth Rotz, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Living Well with Bone Marrow Failure, Managing Your Treatment

Dr. Seth Rotz and Taylor Buss (Cleveland Clinic) lead a panel discussion with two patients, Paige and Justin who were diagnosed with bone marrow failure disease while they were teenagers or young adults, underwent treatment and are now survivors. Dr. Rotz gives an overview of what characteristics he sees in his most successful patients and then Taylor Buss asks questions of our survivors - from dating to life as a young professional.

Presenter: Seth Corey, MD, MPH
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Seth Corey, MD, MPH (Cleveland Clinic), led an informative session for patients of all ages about the causes of bone marrow failure diseases like aplastic anemia, PNH, MDS and AML. Dr. Corey explains the difference between acquired and genetic disease, how that difference can affect treatment options and prognosis.

Presenter: Eytan Stein, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Myelodysplastic Syndromes (MDS)

Eytan M. Stein, MD is a Oncologic Hematologist at Sloan Kettering emorial Cancer Center who specializes in caring for people with acute and chronic leukemias, myelodysplastic syndromes, and myeloproliferative neoplasms. He earned his medical degree from Northwestern University and is board certified in Internal Medicine, Medical Oncology, and Hematology. Dr. Stein is an active clinical researcher developing new and innovative approaches to treating acute myeloid leukemia (AML) and serves as the principal investigator on a wide variety of clinical trials. 

In this webinar, Dr. Eytan M. Stein discusses the important issues specific to young adults with MDS, from long-term prognosis and fertility concerns to next generation sequencing and clinical trial opportunities.
Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Michael Pulsipher, MD
Topic(s): Bone Marrow Transplant, Pediatric Bone Marrow Failure Diseases

Dr. Michael Pulsipher, MD, describes the determination for bone marrow transplant treatment in children in order to promote positive outcomes.

Presenter: Michael Pulsipher, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Bone Marrow Transplant

In this webinar, Dr. Michael Pulsipher from Children's Hospital Los Angeles will discuss pediatric bone marrow transplant and how to optimize the best outcomes for pediatric patients after transplant. Complications can arise after transplant and Dr. Pulsipher will discuss who to protect your child's health.

Presenter: Michael Burke, MD
Topic(s): Pediatric Bone Marrow Failure Diseases

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Michael Burke, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Kasiani Myers, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter:
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families. 

Presenter: Michael Pulsipher, MD
Topic(s): Pediatric Bone Marrow Failure Diseases

Dr Michael Pulsipher discusses the cognitive, social and physical side effects for children dealing with bone marrow failure diseases. 

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Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Ryotaro Nakamura, MD
Topic(s): Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Ryotaro Nakamura, MD is Professor, Department of Hematology & Hematopoietic Cell Transplantation; Director, Center for Stem Cell Transplantation at City of Hope. 

Dr. Nakamura discusses the how the best practices for treating aplastic anemia and MDS have changed to include transplant as a realistic option for many patients over 40.  With new conditioning regimes and improved matching, many patients can have a successful transplant well into their 70s.  Dr. Nakamura also gives an overview of how aplastic anemia and MDS affect the bone marrow, a critical part of the decisionmaking process for determining if a transplant is an option.  
 

Presenter: Vijaya Bhatt, MD
Topic(s): Bone Marrow Transplant

Dr. Bhatt and Dr. Zimmer discuss important information about how and when to treat infectious disease in patients who have had a transplant. This webinar is appropriate for patients who are contemplating a transplant and those who have already had one. 

Vijaya R. Bhatt, MD, MBBS, is Assistant Professor, Internal Medicine in the Division of Oncology & Hematology and the University of Nebraska Medical Center. Dr. Bhatt sees patients at the Fred & Pamela Buffett Cancer Center where he specializes in hematopoietic stem cell transplant, post-transplant complications, graft-versus-host disease, leukemias, myeloid disorders and benign hematologic disorders. 

Dr. Bhatt is board certified in Hematology and Medical Oncology as well as being a well-regarded researcher.  He has published numerous journal articles, papers and analyses on topics including the treatment of infectious disease in transplant patients. 

Andrea Zimmer, MD, joins the webinar to provide her perspective in infection diseases. Dr. Zimmer is Assistant Professor, Department of Internal Medicine, Co-Director, Graduate Medical Education Curriculum, Microbiology & Infectious Diseases Block at the University of Nebraska School of Medicine.  Dr. Zimmer treats patients at the Fred & Pamela Buffett Cancer Center, providing guidance and support to patients and health care professionals in managing the risks of infectious disease.

Presenter: Holly Comer, BSN, ANP-BC
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Holly Comer, BSN, ANP-BC, has been an oncology nurse for 30 years and has been a nurse practitioner for the last 14 years.  Ms. Comer is with Siteman Cancer Center at Barnes-Jewish Hospital & Washington University School of Medicine where she has been part of the Bone Marrow Transplant team for the last 26 years. She also served as a nurse during the Gulf War. Ms. Comer is actively involved in clinical research, most recently serving as the principal investigator for "Bone Loss in Allogeneic Transplant Patients", the results of which will be covered during her webinar. 

Holly Comer, MSN, ANP-BC provides a thorough overview of the concerns of long term transplant survivors related to bone health and disease. Ms. Comer also provides an update on a recent study she led entitled "Bone Loss in Allogenic Transplant Patients".

Presenter: Hemant Murthy, MD
Topic(s): Bone Marrow Transplant

Hemant Murthy, MD, Mayo Clinic Jacksonville, Florida, provides a comprehensive overview of the risks and benefits of bone marrow transplant for patients with bone marrow failure disease including aplastic anemia, PNH, MDS and AML. This sessions includes a review of the generalized criteria for eligibility, the potential complications of transplant and long-term outcomes based on ongoing studies. Dr. Murthy also offers hopeful news for older patients who may have thought they were not eligible for transplant but with new treatment protocols may be able to at least consider this option. Dr. Murthy answered a number of patient-submitted questions at the end of the presentation. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: H. Joachim Deeg, MD
Topic(s): Bone Marrow Transplant, COVID-19

In this webinar, Dr. Deeg addresses the pre and post transplant concerns of bone marrow failure patients and their caregivers and reviews the precautions they should be taking to protect their health, particularly during this pandemic.

Our apologies, but this webinar had some technological challenges during the presentation and the sound quality is not ideal. We will also provide a transcript of the session which should provide clarity on the responses from Dr. Deeg to the questions submitted during the Q & A portion of the webinar. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Michael Pulsipher, MD
Topic(s): Bone Marrow Transplant, Pediatric Bone Marrow Failure Diseases

Dr. Michael Pulsipher, MD, describes the determination for bone marrow transplant treatment in children in order to promote positive outcomes.

Presenter: Michael Pulsipher, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Bone Marrow Transplant

In this webinar, Dr. Michael Pulsipher from Children's Hospital Los Angeles will discuss pediatric bone marrow transplant and how to optimize the best outcomes for pediatric patients after transplant. Complications can arise after transplant and Dr. Pulsipher will discuss who to protect your child's health.

Presenter:
Topic(s): Bone Marrow Transplant

Costa Herbert, RN from Fred Hutchinson Cancer Research Center discusses the transplant process so patients and caregivers can travel the transplant journey with knowledge and confidence. 

This webinar is presented in partnership with Be the Match. 

Presenter: Saurabh Chhabra, MD, MS
Topic(s): Bone Marrow Transplant

In this webinar, Dr. Saurabh Chhabra from The Cancer Center at Froedtert Hospital in Wisconsin will discuss the latest advances in preventing and treating graft-versus-host disease(GVHD). He will also provide a brief overview of GVHD.

Presenter: Melhem Solh, MD
Topic(s): Bone Marrow Transplant, Managing Your Treatment

Melhem Solh, M.D., is board certified in the subspecialties of medical oncology and hematology. Dr. Solh is a Northside Hospital Blood and Marrow Transplant and Leukemia Program physician. In 2019, Dr. Solh was recognized as among Atlanta’s Top Doctors in his specialty by Castle Connolly.

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Presenter: Melhem Solh, MD
Topic(s): Bone Marrow Transplant

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Matt Kalaycio, MD
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Matt Kalaycio explains what is a bone marrow transplant and the risk and benefits of a transplant for MDS patients. Patients will be able to use the information learned in this webinar to have a discussion with their treating physician if a transplant is right for them.

Presenter: Joshua Sasine, MD, PhD
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.  

Presenter:
Topic(s): Bone Marrow Transplant

Steven Devine, MD walks potential donors through all of the steps to becoming a bone marrow donor from screening to donation and everything in between. This webinar was a joint project between Be the Match and AAMDSIF. 

Presenter:
Topic(s): Bone Marrow Transplant

Dr Malone explains the key issues for transplant patients during the first 100 days, focusing on Acute GVHD (graft-versus-host-disease). 

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Presenter: Stefanie Thomas, MD, Taylor Buss, MSW
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr. Stefanie Thomas and Taylor Buss, Pediatric Oncology Social Worker (Cleveland Clinic), lead a panel discussion with two young adult patients with bone marrow failure disease, discussing their treatment journeys, the challenges and successes they've faced.  

Presenter: Staci Arnold, MD, MBA, MPH, BS
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Staci Arnold, MD, MBA, MPH (Emory University) shares her extensive research on what quality of life outcomes are most important to bone marrow failure disease patients and families and how to make your life better during diagnosis, treatment and survivorship.

Presenter: Taylor Buss, MSW, Seth Rotz, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Living Well with Bone Marrow Failure, Managing Your Treatment

Dr. Seth Rotz and Taylor Buss (Cleveland Clinic) lead a panel discussion with two patients, Paige and Justin who were diagnosed with bone marrow failure disease while they were teenagers or young adults, underwent treatment and are now survivors. Dr. Rotz gives an overview of what characteristics he sees in his most successful patients and then Taylor Buss asks questions of our survivors - from dating to life as a young professional.

Presenter: Bhumika Patel, MD
Topic(s): Aplastic Anemia, Living Well with Bone Marrow Failure

Bhumika Patel, MD, is a board certified hematologist/oncologist who was appointed to the Cleveland Clinic Taussig Cancer Center in 2019, following two successful fellowships.  Dr. Patel is an active researcher, contributing to more than 40 studies over the last three years with a focus on bone marrow failure diseases.

In this webinar, Dr. Patel discusses the specific concerns of women living with aplastic anemia, from the newly diagnosed to longer-term survivors and includes a robust Q & A sessions with input from women living with aplastic anemia. 

Presenter: Holly Comer, BSN, ANP-BC
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Holly Comer, BSN, ANP-BC, has been an oncology nurse for 30 years and has been a nurse practitioner for the last 14 years.  Ms. Comer is with Siteman Cancer Center at Barnes-Jewish Hospital & Washington University School of Medicine where she has been part of the Bone Marrow Transplant team for the last 26 years. She also served as a nurse during the Gulf War. Ms. Comer is actively involved in clinical research, most recently serving as the principal investigator for "Bone Loss in Allogeneic Transplant Patients", the results of which will be covered during her webinar. 

Holly Comer, MSN, ANP-BC provides a thorough overview of the concerns of long term transplant survivors related to bone health and disease. Ms. Comer also provides an update on a recent study she led entitled "Bone Loss in Allogenic Transplant Patients".

Presenter: Mary K. Hughes, MS, RN, CNS, CT
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Mary Hughes, MS, RN, CNS, CT shares coping strategies that patients can use to lessen the fear of disease recurrence as they adjust to life after diagnosis and treatment.

Presenter: Krisstina Gowin, DO
Topic(s): Living Well with Bone Marrow Failure

Dr. Gowin discusses the critical aspects of living well with the overlapping diagnosis of MDS and MPNs. Her presentation includes a scientific assessment of interventions including nutrition, supplements, exercise and meditation.

Presenter: Twyla Jackson, RDN, LD, CNSC
Topic(s): Living Well with Bone Marrow Failure

Twyla Jackson, RDN, LDN, CNSC, Northside Cancer Center, Atlanta, provides an overview of the dietary and nutritional concerns facing patients, families and caregivers dealing with bone marrow failure disease. Ms. Jackson provides evidence-based, scientifically accurate guidance including specific concerns related to potential interactions between certain treatment medications and specific foods. She also provides important information on the use of supplements and a healthy, active lifestyle. Ms. Jackson works closely with hematologists and oncologists in her role at Northside Cancer Center in Atlanta and this presentation includes specific questions from patients at the end. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Joanna M. Myers Casale, RD, CSO
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Proper nutrition and regular exercise are important for maintaining overall health, keeping a strong immune system, and even optimizing blood production. During this program, registered oncology dietitian, Joanna Myers-Casale from MD Anderson Cancer Center at Cooper discusses the most current recommendations for a healthy diet, provide practical dietary suggestions for bone marrow failure patients to consider before, during and after treatment, dietary suggestions to help you deal with fatigue, taste changes, nausea, loss of appetite, treatment side effects and more.

Presenter: James Foran, MD
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload

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Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Stefanie Thomas, MD, Taylor Buss, MSW
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr. Stefanie Thomas and Taylor Buss, Pediatric Oncology Social Worker (Cleveland Clinic), lead a panel discussion with two young adult patients with bone marrow failure disease, discussing their treatment journeys, the challenges and successes they've faced.  

Presenter: Staci Arnold, MD, MBA, MPH, BS
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Staci Arnold, MD, MBA, MPH (Emory University) shares her extensive research on what quality of life outcomes are most important to bone marrow failure disease patients and families and how to make your life better during diagnosis, treatment and survivorship.

Presenter: Taylor Buss, MSW, Seth Rotz, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Living Well with Bone Marrow Failure, Managing Your Treatment

Dr. Seth Rotz and Taylor Buss (Cleveland Clinic) lead a panel discussion with two patients, Paige and Justin who were diagnosed with bone marrow failure disease while they were teenagers or young adults, underwent treatment and are now survivors. Dr. Rotz gives an overview of what characteristics he sees in his most successful patients and then Taylor Buss asks questions of our survivors - from dating to life as a young professional.

Presenter: Mary K. Hughes, MS, RN, CNS, CT
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Mary Hughes, MS, RN, CNS, CT shares coping strategies that patients can use to lessen the fear of disease recurrence as they adjust to life after diagnosis and treatment.

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Cate Lockhart, PharmD, PhD
Topic(s): Managing Your Treatment

In this webinar, Cate Lockhart - Executive Director at Biologics and Biosimilars Collective Intelligence Consortium, helps patients and families understand the difference between biologic and biosimilar medications. She discusses the approval process for FDA approval and how biosimiliar medications will impact the future of treating patients.

Presenter: Melhem Solh, MD
Topic(s): Bone Marrow Transplant, Managing Your Treatment

Melhem Solh, M.D., is board certified in the subspecialties of medical oncology and hematology. Dr. Solh is a Northside Hospital Blood and Marrow Transplant and Leukemia Program physician. In 2019, Dr. Solh was recognized as among Atlanta’s Top Doctors in his specialty by Castle Connolly.

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Presenter:
Topic(s): Managing Your Treatment

In this webinar, Susan Berg from the Center for Shared Decision Making at Dartmouth - Hitchcock explain what is shared decision making and how patients/caregivers can work with their medical team to make decisions regarding their healthcare.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Joanna M. Myers Casale, RD, CSO
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Proper nutrition and regular exercise are important for maintaining overall health, keeping a strong immune system, and even optimizing blood production. During this program, registered oncology dietitian, Joanna Myers-Casale from MD Anderson Cancer Center at Cooper discusses the most current recommendations for a healthy diet, provide practical dietary suggestions for bone marrow failure patients to consider before, during and after treatment, dietary suggestions to help you deal with fatigue, taste changes, nausea, loss of appetite, treatment side effects and more.

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter:
Topic(s): Managing Your Treatment

Reducing the stress of diagnosis and treatment for rare bone marrow failure diseases is the topic of this webinar. K. Stolar explains in-depth in the full webinar, recorded 8-23-2018.

Presenter: James Foran, MD
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload

Presenter: Ramiro Garzon, MD
Topic(s): Managing Your Treatment

All bone marrow failure disease patients and their families need to understand how to read lab results. This webinar covers all of the basics and answers some of the most common questions. 

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Presenter: Aditi Shastri, M.B.B.S.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

Dr. Aditi Shastri, M.B.B.S. is a Hematologist/Oncologist at Montefiore Medical Center and is an Assistant Professor at the Albert Einstein College of Medicine. Dr. Shastri earned her medical degree from Lokmanya Tilak Municipal Medical College and is an experienced clinical researcher in the areas of acute myeloid leukemia, myelodysplastic syndromes, cancer stem cells, transcription factors, STAT3, RNA biology and therapeutic interference and health disparities. Her colleague, Rose Snyder, M.D. will be joining the presentation. Dr. Snyder is with the Jacobi Cancer Center at the Albert Einstein College of Medicine. Sweet Syndrome is associated with MDS in about 20% of cases. This webinar discusses the connection between Sweet Syndrome and MDS, treatment and prognosis.

Presenter: David Jacobsohn, MD, ScM
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

A stem cell transplant for pediatric patients is the only curative option for many bone marrow failure diseases. Dr. David Jacobsohn of Children's Hospital gives a thorough presentation for patients and their families to understand the long term effects of this lifesaving treatment including secondary cancers and fertility issues. This is a "must watch" session for anyone who has undergone a transplant as a pediatric patient or for those who are considering this treatment option.  

Presenter: Holly Comer, BSN, ANP-BC
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Holly Comer, BSN, ANP-BC, has been an oncology nurse for 30 years and has been a nurse practitioner for the last 14 years.  Ms. Comer is with Siteman Cancer Center at Barnes-Jewish Hospital & Washington University School of Medicine where she has been part of the Bone Marrow Transplant team for the last 26 years. She also served as a nurse during the Gulf War. Ms. Comer is actively involved in clinical research, most recently serving as the principal investigator for "Bone Loss in Allogeneic Transplant Patients", the results of which will be covered during her webinar. 

Holly Comer, MSN, ANP-BC provides a thorough overview of the concerns of long term transplant survivors related to bone health and disease. Ms. Comer also provides an update on a recent study she led entitled "Bone Loss in Allogenic Transplant Patients".

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter:
Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Daniel Weisdorf from the University of Minnesota Clinical and Translational Science Institute will discuss what is a bone marrow transplant and the risks and benefits of a transplant for CLL patients.

Presenter:
Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Jonathon Cohen from Winship Cancer Institute of Emory University will discuss relapsed CLL- what causes patients to relapse and how to treat relapsed disease. Participants will have the opportunity to ask Dr. Cohen questions.

Presenter:
Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Matthew Davids will discuss the advances in treating CLL. He will also provide a brief overview of the CLL diagnosis.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter:
Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Robert Means Jr. from ETSU Quillen College of Medicine discusses disease and treatment symptoms associated with PRCA and how symptoms are managed. He provides an overview of PRCA. Participants will have the opportunity to ask Dr. Means questions about PRCA.

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter: Stephen Oh, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS. 

Presenter: Michael Keng, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies

Dr Keng explains myelofibrosis and how it overlaps with other bone marrow failure diseases.