Director of Patient Education | Aplastic Anemia and MDS International Foundation

Director of Patient Education

The Aplastic Anemia & MDS International Foundation is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. 

Summary: The Director of Patient Education is responsible for the development and oversight of patient learning events, materials, and content. The Director will oversee the Patient and Family conferences as well as digital, mobile and online events and programs – and assure that all are built upon a financially sound and sustainable business model. 


  1. Utilizes best practices in adult education and learning to manage the development of patient education events, resources and materials.
  2. Recruits expert presenters for all live and online patient focused learning events and manages educational content, includes live webcasts, interviews and webinars on the Online Learning Center.
  3. Delivers formal and informal learning solutions in a manner that is both engaging and effective. Creates a positive learning environment by incorporating a variety of learning methodologies which align solutions with learner needs.
  4. Directs the development of Online Learning Center content and format based on user feedback and organizational initiatives. Develops new information and programs based on input from the Senior Director of Patient Advocacy Programs; reviews and replaces existing content.
  5. Oversees 6-7 annual Patient and Family conferences including registration, outreach, expert presenters, venue logistics, and invoicing.
  6. Assists in the development of funding grant proposals to support all learning events and products.  Prepares outcomes reports and budget reconciliation for funders and others.
  7. Supports the development of RN/LCSW continuing education credit as appropriate for patient focused events with Director of Health Professional Education.
  8. In cooperation with the Senior Director of Patient Advocacy Programs oversees the annual plan for patient learning events/products and develops and manages budget for same.
  9. Provides back up for the Patient Educator as necessary.



  • Master’s Degree preferred in health, adult education, organizational communication or professional development. 
  • Minimum of five years progressive training and development experience with demonstrated accomplishments in the areas of training needs analysis, instructional design, delivery and evaluation – especially in the areas of patient or health. Bilingual Spanish proficiency is desired.
  • Experience managing conference/meeting logistics and working with event vendors.
  • Excellent content development, writing, and editing skills
  • Proficiency in Microsoft Office software, database management (Donor Pro) and social media tools
  • Ability to work with and represent the organization across a wide spectrum of patients, families, health professionals, business, and corporate representatives
  • Excellent planning, organizing, decision-making, and problem solving skills
  • Ability to travel for 2-3 day trips to manage conferences and meetings 6 to 8 times per year, including weekends

Salary is commensurate with experience and includes a comprehensive benefit package including fully paid health insurance and 403b plan. The position is fulltime, but with some flexible work day options.  

To apply, send cover letter and resume to Kathleen Weis, CEO,