Newsstand | Page 21 | Aplastic Anemia & MDS International Foundation


Here's where you'll find a regularly updated, broad range of articles written by the AAMDSIF team, allied health organizations and news organizations. By staying well-informed, patients and families are practicing a form of self-support that will help them be more effective self-advocates when engaging with health care providers.

What’s keeping you from our patient conferences?

Originally Published: 11/15/2016
If you have never joined us at one of our Living with Aplastic Anemia, MDS, or PNH Patient and Family Conferences, we need your help! These regional conferences have always provided an opportunity for patients, loved ones and caregivers to hear from the top experts on bone marrow failure diseases and learn about the current thinking and advances in treatment of aplastic anemia, MDS and PNH.   Please take a few minutes to complete our short survey below, designed to help us understand what might be keeping you from coming. We will use this information to improve our slate of 2017 conferences...

New Study Seeks Vietnam-Era Vets Exposed to Agent Orange

Originally Published: 11/08/2016
FOR IMMEDIATE RELEASE Nov. 8, 2016            Contact:  Barbara Holzer, 301-279-7202, Vietnam-Era Vets Sought for Study to Determine Links Between Agent Orange and Rare Bone Marrow Cancer BETHESDA, MD – The Aplastic Anemia and MDS International Foundation (AAMDSIF) is proud to support a unique study by Dr. David Steensma, MD, on Agent Orange exposure and its potential link to myelodysplastic syndromes (MDS) in Vietnam-era veterans. MDS is a rare bone marrow failure disease that severely impacts the body’s ability to produce blood. The study is being conducted at the Dana-...

Top expert calls future MDS/AML care “promising”

Originally Published: 11/02/2016
When envisioning the future treatment paradigms for myelodysplastic syndromes (MDS) and acute myeloid leukemia (AML), researchers predict that hypomethylating agents, immunotherapies, and multikinase and BCL-2 inhibitors are just a few examples of what the field can expect in the coming years. Guillermo Garcia-Manero, MD, lectured on current and likely future treatment strategies in MDS and AML during the 2016 OncLive State of the Science Summit on Treatment of Hematologic Malignancies. “I’m excited to be here and there is a lot of progress that is happening in both MDS and AML,” explains...

AAMDSIF and PNH Foundation To Merge

Originally Published: 11/01/2016
FOR IMMEDIATE RELEASE Nov. 1, 2016            Contact:  Barbara Holzer, 301-279-7202, PNH Research and Support Foundation to Merge With Aplastic Anemia and MDS International Foundation BETHESDA, MD – The Aplastic Anemia and MDS International Foundation (AAMDSIF) is pleased to announce its merger with the PNH Research and Support Foundation (PNHF). The merger will take place on January 1, 2017. Since 2013, AAMDSIF and PNHF have been strategic partners in helping patients with PNH (paroxysmal nocturnal hemoglobinuria), a rare bone marrow failure disease. The partnership ...

MDS Update - November 2016

Originally Published: 11/01/2016
MDS Update - November 2016

AAMDSIF Expands its International Presence

Originally Published: 10/28/2016
For the first time in the Foundation’s history, AAMDSIF participated in medical conferences in Latin America. On Oct. 20 and 21, CEO Kathleen Weis attended the Fifth Annual Symposium on MDS presented in Lima, Peru, held by Grupo Latinoamericano De Sindromes Mielodisplásicos (GLAM), the continent’s largest association of hematologists/oncologists specializing in MDS. The event focused primarily on MDS clinical updates, patient registries, transplantation and related bone marrow failure diseases. As one of the conference’s sponsoring organizations, AAMDSIF hosted a table with educational...

AAMDSIF 2016 Grant Recipients, Part One

Originally Published: 10/27/2016
Meet Researchers Supported by AAMDSIF AAMDSIF’s named research funds make it possible for young investigators to delve into the biology of bone marrow failure disease and contribute their findings to the body of scientific work that, one day, will add up to a cure.  This is the first of a 3-part series on our 2016 grant recipients, and today we’re introducing you to two of them who are both investigating aplastic anemia. Kate MacNamara, studying at Albany Medical College in New York, proposed a study on the relationship between excessive inflammation and the destruction of stem cells that...

Nurses’ Live Surprise for Robin Roberts

Originally Published: 10/26/2016
Get ready for some tears. Robin Roberts has openly discussed her battle with cancer and bone marrow disease in the past, and even confessed that there was a point when she felt "completely alone," but she can't deny the wonderful assistance she got from some special nurses. During a special nurses' hour episode of Harry with Harry Connick Jr. (airing tomorrow), Roberts was surprised with a special appearance by two nurses who helped treat her during the Good Morning America co-anchor's 30-day stint in the hospital. But not before Roberts emotionally recalled her time in treatment. "...

Experts expound on iron overload in MDS

Originally Published: 10/19/2016
Transcript: Heather Leitch, MD, PhD: One of the things that’s difficult for patients to understand about iron is there really aren’t any acute adverse effects of iron overloads. So, it’s not something they can feel that’s adversely affecting them until we know things are really out of control. The long-term effects, however, are inevitable. And so, these include not only iron overload in the organs such as the liver and the heart, which can lead to organ failure, it also can be detrimental to the endocrine organs and the bone marrow, leading to worsening of bone marrow failure. But other...

Team Julia’s Wings at the Kent Pumpkin Run!

Originally Published: 10/14/2016
Come Join Team Julia’s Wings at the Kent Pumpkin Run!