AAMDSIF Expands its International Presence | Aplastic Anemia & MDS International Foundation Return to top.

AAMDSIF Expands its International Presence

Original Publication Date: 
Friday, October 28, 2016
Article Source: 
AAMDSIF Article

For the first time in the Foundation’s history, AAMDSIF participated in medical conferences in Latin America.

On Oct. 20 and 21, CEO Kathleen Weis attended the Fifth Annual Symposium on MDS presented in Lima, Peru, held by Grupo Latinoamericano De Sindromes Mielodisplásicos (GLAM), the continent’s largest association of hematologists/oncologists specializing in MDS. The event focused primarily on MDS clinical updates, patient registries, transplantation and related bone marrow failure diseases.

As one of the conference’s sponsoring organizations, AAMDSIF hosted a table with educational materials in Spanish, manned by Director of Patient Programs and Services, Angie Onofre, who put her own Peruvian roots to work as she engaged with the 200+ conference attendees.

“Our literature literally flew off the table,” said Onofre. “We thought we were well stocked, but by the end of the first break on the first day of sessions, we were reduced to handing out photocopies of our materials. I suppose that was a good problem to have!”

The Association of Peruvian Hematologists held its annual congress on Oct. 22. “I’ve looked forward to establishing a presence in the southern part of our hemisphere ever since I joined the Foundation,” said Weis. “It’s about time we planted another flag where patient populations are underserved.” In addition to Peru, conference participants hailed from Argentina, Brazil, Chile, Columbia, Ecuador, Mexico, Uruguay and Venezuela.

The Foundation is now set to plant its next flag in Mexico, when AAMDSIF hold its first International Regional Bone Marrow Failure Disease Symposium on April 26, 2017 in the town of Leon Guanajuato. It will take place ahead of that nation’s annual hematology congress by the Agrupacion Mexicana Para el Estudio de la Hematologia (AMEH). Working in partnership with AMEH and the American Society of Hematology (ASH), our program will consist of updates by international experts on the latest research and clinical management of bone marrow failure diseases, including aplastic anemia, MDS, PNH, AML and MPN.

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