AAMDSIF and PNH Foundation To Merge | Aplastic Anemia & MDS International Foundation Return to top.

AAMDSIF and PNH Foundation To Merge

Original Publication Date: 
Tuesday, November 1, 2016
Article Source: 
AAMDSIF Article

FOR IMMEDIATE RELEASE

Nov. 1, 2016            Contact:  Barbara Holzer, 301-279-7202, holzer@aamds.org

PNH Research and Support Foundation to Merge With Aplastic Anemia and MDS International Foundation

BETHESDA, MD – The Aplastic Anemia and MDS International Foundation (AAMDSIF) is pleased to announce its merger with the PNH Research and Support Foundation (PNHF). The merger will take place on January 1, 2017.

Since 2013, AAMDSIF and PNHF have been strategic partners in helping patients with PNH (paroxysmal nocturnal hemoglobinuria), a rare bone marrow failure disease. The partnership  allowed AAMDSIF to perform all administrative duties for PNHF, enabling that organization to focus on patient services. With the merger, the expenses that were being spent on mission core support services will now be dedicated to patient services and research. PNHF committee members will be an integral part of the implementation of this merger and remain pivotal to the ongoing patient advocacy program.

The activities that have defined the PNH Foundation – such as online chat, the PNH walk in New York City, and the travel assistance fund – will continue. “These key functions are critical to supporting and connecting with our PNH patients,” says Kathleen Weis, CEO of AAMDSIF. “We plan to continue and expand those services as we move forward.”

The Aplastic Anemia and MDS International Foundation (AAMDSIF) has been arming patients and families with the information they need to fight bone marrow failure disease since 1983. The organization sponsors innovative and collaborative research through the MDS Clinical Research Consortium and with its own research grant program. Based in Bethesda, MD, the Foundation has received Charity Navigator’s coveted 4-star rating for 11 consecutive years.

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