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  1. Paroxysmal Nocturnal Hemoglobinuria (PNH)

    ... Paroxysmal nocturnal hemoglobinuria ( PNH ) is a rare blood disease that causes red blood cells to break apart. Doctors call this breaking apart " hemolysis ...

    Page last updated 09/30/2017 - 11:34am.

  2. Resources to Help

    ... all patients to receive bone marrow or umbilical cord blood transplant when needed. Patient Advocate Foundation/ Equal ... Nocturna Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER) Feder Foundation: Spanish ...

    Topic section last updated 10/20/2017 - 10:23am.

  3. Jane Massey’s Story

    ... oncologist every month due to my treatment and she ran blood work every time. My numbers had been a little off for some time prior but ... in my hemoglobin , hematocrit , and my red and white blood cell count. She ran several tests, and I had a ...

    Patient Chronicle last updated 04/11/2017 - 7:29am.

  4. South African Girl with PRCA Gets German Match

    ... rare bone marrow failure condition known as pure red cell aplasia (PRCA) . Her bone marrow has gone on strike and she’s not making red blood cells. What caused it remains a mystery, which has stumped doctors from ...

    Patient Chronicle last updated 03/06/2017 - 3:22pm.

  5. Special Precautions

    ... a good idea to: Check with your doctor Get a red blood cell count Get treatment for your anemia (blood transfusions or ...

    Topic section last updated 09/08/2017 - 12:34pm.

  6. Denise Beauchemin - My Life is Making a Difference

    ... it was serious and even thought it could be leukemia. Blood tests were done, and when my doctor saw the results he called and told me ... for transfusions. Over the course of the next few weeks my red cells and platelets began to respond. By the end of May, I had my last red ...

    Patient Chronicle last updated 04/12/2017 - 7:12am.

  7. Red Blood Cell Transfusion Dependency and Hyperferritinemia Are Associated with Impaired Survival in Patients Diagnosed with Myelodysplastic Syndromes: Results from the First Polish MDS-PALG Registry

    ... analysis of the relationship of SF concentration with red blood cell transfusion dependency, survival and transformation to acute ...

    Research Article last updated 10/06/2016 - 1:01pm.

  8. SAA patient finds unrelated donor match in 2 weeks

    ... Retired Richland sergeant battling rare blood disease, awaiting marrow transplant Article ... Amon Park Drive. The event will be handled by the American Red Cross and Be The Match. People who are healthy, between 18 and 44, and ...

    Article last updated 03/21/2017 - 11:19am.

  9. Identifying bone marrow failure in children

    ... disorders typically have some features in common: low blood counts due to poor blood cell production; congenital anomalies; and ... age 30 or a cousin/sibling had leukemia at age 7, that's a red flag. Neutropenia is common and not a reason for referral in and ...

    Article last updated 03/15/2017 - 10:08am.

  10. Resources to Help

    ... all patients to receive bone marrow or umbilical cord blood transplant when needed. Patient Advocate Foundation/ Equal ... Nocturna Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER) Feder Foundation: Spanish ...

    Topic section last updated 09/28/2017 - 11:58am.