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  1. Ron Duncan, Texas Walk Committee

    ... I last gave blood in December 2004.  When I went again in March 2005, I was informed that ... a transfusion. Eventually I was diagnosed with pure red cell aplasia, PRCA, a very rare condition where I don't make red blood ...

    Patient Chronicle last updated 01/06/2017 - 10:52am.

  2. My MDS Diagnosis and Progression of Treatment

    ... care with the assistance of the local oncologist.  I had 2 blood transfusions, in June and October. Currently, I am experiencing ... dosage. Unfortunately, this drug also lowers my red blood cell counts and my hemoglobin along with the platelets. I ...

    Patient Chronicle last updated 12/15/2016 - 11:19am.

  3. Efficacy and Safety of Lenalidomide for Treatment of Low-/Intermediate-1-Risk Myelodysplastic Syndromes with or without 5q Deletion: A Systematic Review and Meta-Analysis

    ... Lenalidomide could effectively induce red blood cell (RBC) transfusion independence (TI) in patients with ...

    Research Article last updated 11/28/2016 - 9:36am.

  4. Red Blood Cell Transfusion Dependency and Hyperferritinemia Are Associated with Impaired Survival in Patients Diagnosed with Myelodysplastic Syndromes: Results from the First Polish MDS-PALG Registry

    ... analysis of the relationship of SF concentration with red blood cell transfusion dependency, survival and transformation to acute ...

    Research Article last updated 10/06/2016 - 1:01pm.

  5. Heather Putney’s Trials (and Travels) with Aplastic Anemia

    ... to the gynecologist and a painless bruise led to a complete blood count draw, which showed markedly low platelets and hematocrit . ... Within two months, I was transfusion dependent for both red blood cells and platelets. In June, I was admitted for an allogenic bone ...

    Patient Chronicle last updated 08/15/2016 - 8:42am.

  6. Patient Inspires Workplace Giving

    ... experienced what I now know as petechiae – little red dots all over my body caused by bleeding into the skin due to low ... other patients, we first knew something wasn’t right when blood work from a routine physical showed significantly low blood cell counts. ...

    Patient Chronicle last updated 06/28/2016 - 8:12am.

  7. Design and rationale of the QUAZAR Lower-Risk MDS (AZA-MDS-003) trial: a randomized phase 3 study of CC-486 (oral azacitidine) plus best supportive care vs placebo plus best supportive care in patients with IPSS lower-risk myelodysplastic syndromes and po

    ... and/or thrombocytopenia who may have required red blood cell or platelet transfusions. The overall response rate was ...

    Research Article last updated 06/23/2016 - 10:17am.

  8. Transfusion Thresholds, Quality of Life, and Current Approaches in Myelodysplastic Syndromes

    ... Hemoglobin thresholds and triggers for blood transfusions have changed over the years moving from a higher to a lower ... clinical trials are looking for a more liberal approach of red cell transfusion and the effect on quality of life as opposed to the ...

    Research Article last updated 06/23/2016 - 9:55am.

  9. NHLBI profiles a member of the Foundation’s patient community.

    ... One Woman’s Determination Helped Her Defeat a Devastating Blood Disease Article Source:  ... the spongy tissue inside the bones — from making enough red blood cells, which carry oxygen to the different parts of the body; white ...

    Article last updated 06/13/2016 - 1:51pm.

  10. Iron Chelation

    ... Basics Red blood cells contain iron. Each time you get a red blood cell transfusion ...

    Topic section last updated 06/23/2016 - 3:56pm.