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  1. Denise Beauchemin - My Life is Making a Difference

    ... it was serious and even thought it could be leukemia. Blood tests were done, and when my doctor saw the results he called and told me ... for transfusions. Over the course of the next few weeks my red cells and platelets began to respond. By the end of May, I had my last red ...

    Patient Chronicle last updated 04/12/2017 - 7:12am.

  2. South African Girl with PRCA Gets German Match

    ... rare bone marrow failure condition known as pure red cell aplasia (PRCA) . Her bone marrow has gone on strike and she’s not making red blood cells. What caused it remains a mystery, which has stumped doctors from ...

    Patient Chronicle last updated 03/06/2017 - 3:22pm.

  3. Prophylactic RhCE and Kell antigen matching: impact on alloimmunization in transfusion-dependent patients with myelodysplastic syndromes

    ... (MDS) become transfusion-dependent and are at risk for red blood cell (RBC) alloimmunization. This study compared alloimmunization ...

    Research Article last updated 02/03/2017 - 11:00am.

  4. Alternative Donor Transplantation with High-Dose Post-Transplantation Cyclophosphamide for Refractory Severe Aplastic Anemia

    ... Journal Title:  Biol Blood Marrow Transplant Primary ... for 3 consecutive days was 19 (range, 16 to 27) days, to red cell engraftment was 25 (range, 2 to 58) days, and to last ...

    Research Article last updated 01/24/2017 - 10:04am.

  5. Efficacy and Safety of Lenalidomide for Treatment of Low-/Intermediate-1-Risk Myelodysplastic Syndromes with or without 5q Deletion: A Systematic Review and Meta-Analysis

    ... Lenalidomide could effectively induce red blood cell (RBC) transfusion independence (TI) in patients with ...

    Research Article last updated 11/28/2016 - 9:36am.

  6. Design and rationale of the QUAZAR Lower-Risk MDS (AZA-MDS-003) trial: a randomized phase 3 study of CC-486 (oral azacitidine) plus best supportive care vs placebo plus best supportive care in patients with IPSS lower-risk myelodysplastic syndromes and po

    ... and/or thrombocytopenia who may have required red blood cell or platelet transfusions. The overall response rate was ...

    Research Article last updated 06/23/2016 - 10:17am.

  7. Transfusion Thresholds, Quality of Life, and Current Approaches in Myelodysplastic Syndromes

    ... Hemoglobin thresholds and triggers for blood transfusions have changed over the years moving from a higher to a lower ... clinical trials are looking for a more liberal approach of red cell transfusion and the effect on quality of life as opposed to the ...

    Research Article last updated 06/23/2016 - 9:55am.

  8. Patient Inspires Workplace Giving

    ... experienced what I now know as petechiae – little red dots all over my body caused by bleeding into the skin due to low ... other patients, we first knew something wasn’t right when blood work from a routine physical showed significantly low blood cell counts. ...

    Patient Chronicle last updated 06/28/2016 - 8:12am.

  9. NHLBI profiles a member of the Foundation’s patient community.

    ... One Woman’s Determination Helped Her Defeat a Devastating Blood Disease Article Source:  ... the spongy tissue inside the bones — from making enough red blood cells, which carry oxygen to the different parts of the body; white ...

    Article last updated 06/13/2016 - 1:51pm.

  10. Development and validation of a model to predict platelet response to romiplostim in patients with lower-risk myelodysplastic syndromes

    ... Low endogenous erythropoietin levels and limited red blood cell transfusion history can predict response to ...

    Research Article last updated 08/04/2014 - 8:33am.