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  1. Clear Communication with Your Provider

    Today, limited appointment times, overwhelming and confusing volumes of information available on the Internet, coupled with the stress of having a rare disease diagnosis, might mean patients don't always get the an...

    Page last updated 04/30/2015 - 3:15pm.

  2. Matthew J. Walter, MD

    The role of U2AF1 mutations in the pathogenesis of myelodysplastic syndromes Original Research Center:  ...

    Grant Recipient last updated 08/18/2014 - 10:07am.

  3. Nurse's Corner Spring 2015: Patient Advocacy – Is There a “Magic Formula?”

    Like many of us, I’ve been told that I’m a great advocate for my patients. But what does this really mean?  How does one articulate what nursing advocacy is?  Is there a “magic formula” for being an advocate? In...

    Page last updated 04/23/2015 - 10:52am.

  4. Caregivers Resources

    Caregiver Resources in the Ask Medicare Toolkit are designed to help caregivers address challenging issues and work effectively with Medicare to ensure their family members and friends receive the best poss...

    Page last updated 12/04/2014 - 10:13am.

  5. Genetic Polymorphism of the Complement Receptor-1 (CR1) Gene Correlates with the Clinical Response to Eculizumab of Patients with Paroxysmal Nocturnal Hemoglobinuria (PNH)

    Original Publication Date:  Tuesday, January 1, 2013 Note: This review is based upon a presentation at the 2012 American Society of Hematology ...

    Research Review last updated 05/02/2016 - 9:25am.

  6. Unrelated Donor Stem Cell Transplantation

    ... aplastic anemia paroxysmal nocturnal hemoglobinuria (PNH) ...

    Clinical Trial last updated 04/28/2016 - 2:16pm.

  7. Honor your loved one on Memorial Day

    ... * Aplastic Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Other If "other", please specify ...

    Webform last updated 05/11/2016 - 12:14pm.

  8. IPA Targeted Adoptive Immunotherapy vs Adult Haplo-identical Cell Infusion During Induction of High Risk Leukemia

    ... Bone Marrow Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Clinical Trial last updated 04/29/2016 - 11:05am.

  9. A Phase I Study to Assess the Safety APL-2 as an Add-On to Standard of Care in Subjects With PNH

    ... Bone Marrow Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Clinical Trial last updated 04/25/2016 - 3:03pm.

  10. Specialized Blood Cell Transplants for Cancers of the Blood and Bone Marrow

    ... myelodysplastic syndromes (MDS) paroxysmal nocturnal hemoglobinuria (PNH) ...

    Clinical Trial last updated 04/28/2016 - 2:08pm.