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  1. Nurse's Corner Spring 2015: Patient Advocacy – Is There a “Magic Formula?”

    Like many of us, I’ve been told that I’m a great advocate for my patients. But what does this really mean?  How does one articulate what nursing advocacy is?  Is there a “magic formula” for being an advocate? In...

    Page last updated 04/23/2015 - 10:52am.

  2. Patient Education Materials

    ... can help patients understand aplastic anemia , paroxysmal nocturnal hemoglobinuria and myelodysplastic syndromes .  A ...

    Page last updated 01/28/2015 - 10:07am.

  3. Zhe Yang, PhD

    Structural insights into deregulated epigenetic mechanisms and DNA demethylation in MDS Original Research Center:  ...

    Grant Recipient last updated 12/06/2013 - 4:25pm.

  4. Pegylated Interferon Alfa-2a Salvage Therapy in High Risk Polycythemia Vera (PV) or Essential Thrombocythemia (ET)

    ... bilirubin > 1.5 mg/ml No detectable PNH ( paroxysmal nocturnal hemoglobinuria ) clone where tested Concurrent hormonal ...

    Clinical Trial last updated 04/29/2016 - 9:59am.

  5. Lisa Minter, MD

    Cell-penetrating antibodies as a novel treatment for aplastic anemia Original Research Center:  ...

    Grant Recipient last updated 08/18/2014 - 10:07am.

  6. What You Can Do for Awareness Week

    ... Myelodysplastic Syndromes (MDS)   Paroxysmal Nocturnal Hemoglobinuria (PNH)   Tell at least one new person each ...

    Page last updated 12/17/2014 - 9:40am.

  7. Newly Diagnosed

    The effect of a new diagnosis A new diagnosis of bone marrow failure disease raises many questions and concerns for patients and their loved ones. You may feel confused and overwhelmed by all the...

    Page last updated 10/25/2012 - 11:32am.

  8. From Natasha

    ... * Aplastic Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Acute Myeloid Leukemia Other If ...

    Webform last updated 06/27/2016 - 2:13pm.

  9. Rosario Notaro, MD

    ... Aplastic anemia and Paroxysmal Nocturnal Hemoglobinuria (PNH) are two serious blood disorders that ...

    Grant Recipient last updated 10/14/2015 - 9:28am.

  10. Caring for the Caregiver

    Whether you provide physical, social, emotional, or household support, caregiving for rare and chronic bone marrow failure diseases is not an easy task. It can be stressful for caregivers, patients, and other famil...

    Page last updated 10/13/2014 - 5:06pm.