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  1. Principle 1: Build a Strong Healthcare Team

    ... practitioners such as a social worker , psycho- oncologist or psychologist as well as researchers, lab technicians, and ... for coordinating your care. Some people ask their oncologist or hematologist to serve as their care coordinator. Others ...

    Page last updated 05/12/2015 - 9:00am.

  2. My MDS Diagnosis and Progression of Treatment

    ... thought a different approach should be tried.  My local oncologist and the doctor at Johns Hopkins decided to try ruxolitinib ... Within weeks my platelets had risen to the 800's. My local oncologist restarted the hydroxurea and by mid-June ruxolitinib was stopped.  ...

    Patient Chronicle last updated 12/15/2016 - 11:19am.

  3. Coordinated Care: MDS Research and Treatment Centers and Community Hematologists Work Together for Complete Patient Care

    ... home, by the patient’s local hematologist / oncologist . This treatment occurs under the guidance of MDS specialists at ... Remember, MDS is rare disease and a community hematologist/oncologist may only see a few new cases in a year at the most, where here at ...

    Interview last updated 07/23/2012 - 4:56pm.

  4. How can I find out the latest research in treating my disease?

    ... Periodically ask your hematologist or oncologist , as well as other members of your health care team, about the ... to your current medical management. Your hematologist or oncologist is often the best source for advances related to your care. ...

    FAQ last updated 03/15/2016 - 11:46pm.

  5. Biting into the Elephant

    ... know what it was. Referring us to a hematologist / oncologist , we were told I would be dead in six months and that we might ...

    Patient Chronicle last updated 06/27/2016 - 2:22pm.

  6. Barry Gore

    ... The hematologist/oncologist was called in, and Barry was stabilized after three days of ...

    "Like You" Patient Story last updated 10/04/2017 - 8:07pm.

  7. Transitioning from Pediatric to Adult Care: Taking Control of Your Care

    ... conversation with your child’s hematologist / oncologist . This will include some specific advice and suggestions for ...

    LMS Item last updated 06/10/2016 - 1:24pm.

  8. Treating MDS Toolkit Contents - Download Now

    ... MORE MDS Patient Survey Results The Oncologist article reprint Patient Counseling Guide Patient ...

    Page last updated 05/17/2016 - 11:43am.

  9. My Nurses Were an Inspiration

    ... visited the doctor, went for lab work, visited a  local oncologist , and then traveled to Indianapolis for a bone marrow biopsy ...

    Patient Chronicle last updated 05/10/2016 - 3:32pm.

  10. Pediatric Patients

    ... should do is to find a pediatric hematologist / oncologist who specializes in treating bone marrow failure diseases. The ...

    Topic section last updated 04/29/2016 - 2:50pm.