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  1. Long term treatment with eculizumab in paroxysmal nocturnal hemoglobinuria: sustained efficacy and improved survival.

    ... Paroxysmal nocturnal hemoglobinuria (PNH) is an acquired clonal hematopoietic disorder with ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 10/11/2011 - 5:58pm.

  2. Guidelines for the diagnosis and monitoring of paroxysmal nocturnal hemoglobinuria and related disorders by flow cytometry.

    ... BACKGROUND: Paroxysmal nocturnal hemoglobinuria (PNH) is a rare hematopoietic stem cell disorder ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 10/11/2011 - 5:58pm.

  3. Walk for PNH: New York, September 2017

    ... dedicated to helping people with paroxysmal nocturnal hemoglobinuria (PNH) Questions (Details):  ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. ...

    Friendraising Walk last updated 09/06/2017 - 11:26am.

  4. Successful treatment of aplastic anemia-paroxysmal nocturnal hemoglobinuria associated with eosinophilic fasciitis with matched unrelated donor allogeneic peripheral blood stem cell transplantation

    ...

    Research Article last updated 09/13/2016 - 12:49pm.

  5. Successful Treatment of Ascites using a Denver<sup>®</sup> Peritoneovenous Shunt in a Patient with Paroxysmal Nocturnal Hemoglobinuria and Budd-Chiari syndrome

    ... with aplastic anemia and paroxysmal nocturnal hemoglobinuria at 43 years of age and treatment with cyclosporin A was ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/02/2016 - 2:50pm.

  6. Positive Impact of Eculizumab Therapy on Surgery for Budd-Chiari Syndrome in a Patient with Paroxysmal Nocturnal Hemoglobinuria and a Long-Term History of Thrombosis

    ... Paroxysmal nocturnal hemoglobinuria (PNH) is associated with severe end-organ damage and a high ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/02/2016 - 2:49pm.

  7. Development of a disease-specific quality of life questionnaire for patients with aplastic anemia and/or paroxysmal nocturnal hemoglobinuria (QLQ-AA/PNH)-report on phases I and II

    ... aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) are interrelated ultra-rare diseases. Quality of life ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/28/2016 - 11:40am.

  8. Professionals

    ... of patients with aplastic anemia, paroxysmal nocturnal hemoglobinuria (PNH), myelodysplastic syndromes (MDS), and acute ...

    Page last updated 10/12/2017 - 10:13am.

  9. Professionals

    ... neoplasms (MPN), and  paroxysmal nocturnal hemoglobinuria  (PNH). The presenters will focus on the latest advances in ... of patients with aplastic anemia, paroxysmal nocturnal hemoglobinuria (PNH), myelodysplastic syndromes (MDS), and acute myeloid ...

    Page last updated 10/12/2017 - 10:15am.

  10. 2017 5K Run & Walk Washington, DC

    ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. ...

    Friendraising Walk last updated 10/12/2017 - 3:32pm.