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  1. Pegylated Interferon Alfa-2a Salvage Therapy in High Risk Polycythemia Vera (PV) or Essential Thrombocythemia (ET)

    ... > 1.5 mg/ml No detectable PNH ( paroxysmal nocturnal hemoglobinuria ) clone where tested Concurrent hormonal ...

    Clinical Trial last updated 04/29/2016 - 9:59am.

  2. AK579 (COBALT)

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) Associated ...

    Clinical Trial last updated 09/14/2016 - 10:39am.

  3. ASH 2012 - Reviewing MDS Progress from Research and Clinical Perspectives

    We hear that there is increasing interest and research in the role that genes and genetic mutations have in affecting the course of MDS. Were there any studies of particular significance in this area? Yes, ...

    Interview last updated 02/01/2013 - 4:22pm.

  4. Coversin in Paroxysmal Nocturnal Haemoglobinuria (PNH) in Patients With Resistance to Eculizumab Due to Complement C5 Polymorphisms

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) Associated ...

    Clinical Trial last updated 08/26/2016 - 11:59am.

  5. Coversin

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Drug last updated 08/26/2016 - 9:31am.

  6. Together, our impact can be far greater

    ... Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Acute Myeloid Leukemia Other If "other", please ...

    Webform last updated 09/22/2016 - 2:26pm.

  7. A Phase I Study to Assess the Safety APL-2 as an Add-On to Standard of Care in Subjects With PNH

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) Phase:  ...

    Clinical Trial last updated 08/24/2016 - 11:15am.

  8. Recommended Reading

    Caregiving And Thou Shalt Honor: The Caregiver's Companion, edited by Beth Witrogen McLeod, 464 pp, Rodale Press, 2003.  A complete reference for family caregivers, edited by the founder of the N...

    Page last updated 05/07/2013 - 1:41pm.

  9. Coordinated Care: MDS Research and Treatment Centers and Community Hematologists Work Together for Complete Patient Care

    What does the term “coordinated care” mean, and what advantages may it offer for MDS patients? There is really no formal, widely accepted defi nition or model for this term. But for most, the term “coordinat...

    Interview last updated 07/23/2012 - 4:56pm.

  10. Transplantation Basics

    Is it correct to say that stem cell transplantation is a process in which stem cells are gathered from either bone marrow , umbilical cord blood, and peripheral blood of a suitable donor and are plac...

    Interview last updated 04/05/2013 - 2:33pm.