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  1. Recommended Reading

    Caregiving And Thou Shalt Honor: The Caregiver's Companion, edited by Beth Witrogen McLeod, 464 pp, Rodale Press, 2003.  A complete reference for family caregivers, edited by the founder of the N...

    Page last updated 05/07/2013 - 1:41pm.

  2. Coordinated Care: MDS Research and Treatment Centers and Community Hematologists Work Together for Complete Patient Care

    What does the term “coordinated care” mean, and what advantages may it offer for MDS patients? There is really no formal, widely accepted defi nition or model for this term. But for most, the term “coordinat...

    Interview last updated 07/23/2012 - 4:56pm.

  3. What You Can Do for PNH Awareness Week

    ... Educate yourself about paroxysmal nocturnal hemoglobinuria (PNH) on our Web site so you learn more about what you can ...

    Page last updated 09/20/2016 - 2:16pm.

  4. Transplantation Basics

    Is it correct to say that stem cell transplantation is a process in which stem cells are gathered from either bone marrow , umbilical cord blood, and peripheral blood of a suitable donor and are plac...

    Interview last updated 04/05/2013 - 2:33pm.

  5. Pegylated Interferon Alfa-2a Salvage Therapy in High Risk Polycythemia Vera (PV) or Essential Thrombocythemia (ET)

    ... > 1.5 mg/ml No detectable PNH ( paroxysmal nocturnal hemoglobinuria ) clone where tested Concurrent hormonal ...

    Clinical Trial last updated 04/29/2016 - 9:59am.

  6. Clinical Trials Report for April 2016

    ... Please search for a list of current paroxysmal nocturnal hemoglobinuria studies actively recruiting patients. The following are a ...   Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry This study is a collection of data to ...

    Page last updated 08/10/2016 - 11:00am.

  7. PNH Research and Support Foundation Donations

    Make a tax-deductible gift to support the work of the PNH Research & Support Foundation TODAY.  Your gift will support research, patient education, and support services. Remember a loved one, celebrate a...

    Webform last updated 09/23/2014 - 10:51am.

  8. AK579 (COBALT)

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) Associated ...

    Clinical Trial last updated 09/14/2016 - 10:39am.

  9. Coversin in Paroxysmal Nocturnal Haemoglobinuria (PNH) in Patients With Resistance to Eculizumab Due to Complement C5 Polymorphisms

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) Associated ...

    Clinical Trial last updated 08/26/2016 - 11:59am.

  10. Coversin

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Drug last updated 08/26/2016 - 9:31am.