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  1. Members of the Media

    ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. ...

    Page last updated 12/03/2014 - 1:25pm.

  2. AK579 (COBALT)

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) Associated Drug(s):  ...

    Clinical Trial last updated 09/14/2016 - 10:39am.

  3. Parents of Pediatric Patients

    ...

    Page last updated 12/16/2014 - 11:09am.

  4. Wide Array of Programs and Services

    ... syndromes (MDS) or paroxysmal nocturnal hemoglobinuria (PNH) can also be scary and confusing at any age! ...

    Page last updated 04/01/2013 - 3:53pm.

  5. Daria Babushok, MD, PhD

    ... that lead to the development of Paroxysmal Nocturnal Hemoglobinuria and those that cause the loss of immune recognition. The ...

    Grant Recipient last updated 06/09/2015 - 8:35am.

  6. Four Essentials in Setting the Stage for Patient Understanding of MDS, Aplastic Anemia, or PNH

    ... (MDS), aplastic anemia, and paroxysmal nocturnal hemoglobinuria (PNH) are challenging to diagnose and treat. However ...

    Page last updated 07/25/2014 - 10:18am.

  7. Hideki Makishima, MD, PhD

    ... Report:  Paroxysmal nocturnal hemoglobinuria (PNH) is a blood disease with chronic clinical course. PNH ...

    Grant Recipient last updated 07/07/2014 - 11:46am.

  8. Together, our impact can be far greater

    ... Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Other If "other", please specify Email ...

    Webform last updated 09/22/2016 - 2:26pm.

  9. Clinical Trials Report for April 2016

    ... Please search for a list of current paroxysmal nocturnal hemoglobinuria studies actively recruiting patients. The following are a ... NCT02264639   Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry This study is a collection of data to ...

    Page last updated 08/10/2016 - 11:00am.

  10. Patricia and Vincent Geczik Legacy Gift to Fund PNH Research

    ... treatments and perhaps a cure for paroxysmal nocturnal hemoglobinuria (PNH), Dana’s disease. “We were a normal, everyday, ...

    Page last updated 02/19/2014 - 3:47pm.