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  1. Four Essentials in Setting the Stage for Patient Understanding of MDS, Aplastic Anemia, or PNH

    ... (MDS), aplastic anemia, and paroxysmal nocturnal hemoglobinuria (PNH) are challenging to diagnose and treat. However ...

    Page last updated 07/25/2014 - 10:18am.

  2. Hideki Makishima, MD, PhD

    ... Report:  Paroxysmal nocturnal hemoglobinuria (PNH) is a blood disease with chronic clinical course. PNH ...

    Grant Recipient last updated 07/07/2014 - 11:46am.

  3. Patricia and Vincent Geczik Legacy Gift to Fund PNH Research

    ... treatments and perhaps a cure for paroxysmal nocturnal hemoglobinuria (PNH), Dana’s disease. “We were a normal, everyday, ...

    Page last updated 02/19/2014 - 3:47pm.

  4. About Bone Marrow Failure

    ... syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH) are bone marrow failure diseases. In this section, ...

    Page last updated 07/01/2013 - 4:51pm.

  5. PNH Research and Support Foundation

    ... find a cure and new treatments for Paroxysmal Nocturnal Hemoglobinuria (PNH) and to helping PNH patients in need with funding for ...

    Page last updated 07/21/2011 - 3:34pm.

  6. Neal Young, MD, MACP

    ... anemia, myelodysplastic syndrome, paroxysmal nocturnal hemoglobinuria , and have introduced many new approaches to the treatment of ...

    Bio last updated 03/11/2016 - 1:41pm.

  7. Cristian Bellodi, PhD

    Emerging role of p53 translation control in hematopoietic stem cell quiescence and differentiation Original Researc...

    Grant Recipient last updated 12/10/2012 - 10:40am.

  8. Caring for the Caregiver

    Whether you provide physical, social, emotional, or household support, caregiving for rare and chronic bone marrow failure diseases is not an easy task. It can be stressful for caregivers, patients, and other famil...

    Page last updated 10/13/2014 - 5:06pm.

  9. Making the Most of Office Visits with Your Specialist

    ... (MDS), aplastic anemia , and paroxysmal nocturnal hemoglobinuria (PNH). Sometimes, it truly can be hard to tell where one ...

    Interview last updated 10/14/2015 - 9:05am.

  10. “Mom, it’s too late. I’m dying.”

    ... the doctor called and said he had paroxysmal nocturnal hemoglobinuria (PNH) We had never heard of this. Our friend, Kevin, stepped ...

    Patient Chronicle last updated 04/26/2016 - 11:43am.