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  1. Director of Patient Education

    ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases.  ...

    Page last updated 09/16/2015 - 10:42am.

  2. AA&MDSIF Grant Opportunities

    ... syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Over the last 24 years, AA&MDSIF has awarded ... myelodysplastic syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH), leading to the development of new therapeutic approaches ...

    Page last updated 07/16/2015 - 10:14am.

  3. The Transplantation Procedure

    What medical tests and exams happen before a stem cell transplant ? Your doctors will want to make sure you're healthy enough to have a stem cell transplant. They also will want to find out whether you h...

    Page last updated 05/14/2015 - 10:39am.

  4. Chief Development Officer

    ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. ...

    Page last updated 08/11/2015 - 11:26am.

  5. Clear Communication with Your Provider

    Today, limited appointment times, overwhelming and confusing volumes of information available on the Internet, coupled with the stress of having a rare disease diagnosis, might mean patients don't always get the an...

    Page last updated 04/30/2015 - 3:15pm.

  6. Why Research is Important: Understanding Research Articles Part I

    The medical care we enjoy today is built upon decades  of effort by physicians, researchers, and other medical professionals investigating the causes of, and potential treatments for disease. Insights provided by p...

    Page last updated 06/24/2015 - 1:51pm.

  7. Zhe Yang, PhD

    Structural insights into deregulated epigenetic mechanisms and DNA demethylation in MDS Original Research Center:  ...

    Grant Recipient last updated 12/06/2013 - 4:25pm.

  8. 2016 Scientific Symposium

    ... syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH) are now believed to be linked by similar ...

    Page last updated 09/14/2015 - 1:40pm.

  9. Nurse's Corner Spring 2015: Patient Advocacy – Is There a “Magic Formula?”

    Like many of us, I’ve been told that I’m a great advocate for my patients. But what does this really mean?  How does one articulate what nursing advocacy is?  Is there a “magic formula” for being an advocate? In...

    Page last updated 04/23/2015 - 10:52am.

  10. Chao-Yie Yang, MD, PhD

    ... (PGI-A) mutation found in Paroxysmal nocturnal hemoglobinuria (PNH) is a main cause for intravascular hemolysis . ...

    Grant Recipient last updated 08/09/2016 - 1:02pm.