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  1. AAMDSIF Home

    ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. ...

    Page last updated 03/23/2016 - 4:48pm.

  2. Randomized Trial of Pegylated Interferon Alfa-2a Versus Hydroxyurea in Polycythemia Vera (PV) and Essential Thrombocythemia (ET)

    ...         No known PNH ( paroxysmal nocturnal hemoglobinuria ) clone         No concurrent hormonal oral ... be included). No detectable PNH ( paroxysmal nocturnal hemoglobinuria ) clone where tested   ...

    Clinical Trial last updated 05/02/2016 - 2:31pm.

  3. What does "watch and wait" or "watchful waiting" mean?

    ... syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH) ...

    FAQ last updated 03/15/2016 - 11:39pm.

  4. What is PNH?

    ... PNH ( paroxysmal nocturnal hemoglobinuria ) is a very rare blood disease that causes red blood cells ...

    FAQ last updated 03/15/2016 - 11:23pm.

  5. Transplantation


    Page last updated 01/20/2015 - 4:45pm.

  6. AA&MDSIF Julia Malsin Research Fund

    Mike and Heather Malsin established the Julia Malsin Research Fund in memory of their daughter Julia who passed away from aplastic anemia in 2012.  Julia had been battling a sinus infection, but when ...

    Page last updated 10/16/2014 - 9:49am.

  7. Amy E. DeZern, MD, MHS

    ... - both inherited and acquired, paroxysmal nocturnal hemoglobinuria (PNH), and acute leukemias.  She sees clinic patients ...

    Bio last updated 03/11/2016 - 1:41pm.

  8. Mridul Mukherji, DPhil

    Rescue of TET2 Mutations from MDS Patients Original Research Center:  University of Missouri -...

    Grant Recipient last updated 10/01/2012 - 10:46am.

  9. Dr. Heather Vega: Doctor Helps Determine Her Own Aplastic Anemia and PNH Diagnosis

    ... signs. I Googled the symptoms for paroxysmal nocturnal hemoglobinuria and emailed my hematologist who sent me for further ...

    Patient Chronicle last updated 06/27/2016 - 2:29pm.

  10. The Challenging World of Cytopenias: Distinguishing Myelodysplastic Syndromes From Other Disorders of Marrow Failure.

    ... , large granular leukemia, paroxysmal nocturnal hemoglobinuria , inherited bone marrow failure syndromes, myeloproliferative ...

    Research Review last updated 05/02/2016 - 9:18am.