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  1. Sign Up

    ... Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Other If "Other", Please Specify ...

    Webform last updated 09/05/2017 - 12:34pm.

  2. Eculizumab Protects Against TE and Prolongs Survival in Patients with Paroxysmal Nocturnal Hemoglobinuria: An International PNH Registry Study

    ... causes of death in patients with paroxysmal nocturnal hemoglobinuria (PNH). Clinical trials have shown that eculizumab ...

    Research Review last updated 05/02/2016 - 9:26am.

  3. Improved Fatigue and Quality-of-Life in Patients with Paroxysmal Nocturnal Hemoglobinuria During Treatment with Eculizumab: Data from the Global PNH Registry

    ... C. Bedrosian, P. Hillmen  Paroxysmal nocturnal hemoglobinuria (PNH) causes hemolysis , or destruction of some or ...

    Research Review last updated 05/02/2016 - 9:21am.

  4. Complement Blockade with a C1 Esterase Inhibitor in Paroxysmal Nocturnal Hemoglobinuria

    ... Brodsky, M.D. Patients with paroxysmal nocturnal hemoglobinuria (PNH) don’t have two important proteins, CD55 and CD59, ...

    Research Review last updated 05/02/2016 - 9:21am.

  5. AAMDSIF in San Diego 9/17

    ... with aplastic anemia, MDS or PNH ( paroxysmal nocturnal hemoglobinuria ). Sessions will be available in English and Spanish, ...

    Article last updated 09/07/2016 - 12:42pm.

  6. Insights into the Natural History of Paroxysmal Nocturnal Hemoglobinuria (PNH): Analysis of the Presenting Clinical, Haematological and Flow Cytometric Features of 705 Patients Leads to Improved Classification and Prediction of Clinical Course

    ... more males than females) with paroxysmal nocturnal hemoglobinuria (PNH) over the past 22 years. This goal of this study ...

    Research Review last updated 05/02/2016 - 9:20am.

  7. Sergei Vatolin, PhD

    ... cell compartment in aplastic anemia and paroxysmal nocturnal hemoglobinuria Original Research Center:  ... aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) are very limited. The idea of improvement the quality ...

    Grant Recipient last updated 06/08/2017 - 10:40am.

  8. Announcing AAMDSIF 2016 Research Awards

    ... in the bone marrow of patients with Paroxysmal Nocturnal Hemoglobinuria (PNH). In this condition, due to a gene mutation , ...

    Article last updated 06/09/2016 - 12:45pm.

  9. Alina Dulau Florea, MD

    ... bone marrow of patients with Paroxysmal Nocturnal Hemoglobinuria (PNH). In this condition, due to a gene mutation , ...

    Grant Recipient last updated 06/08/2017 - 10:39am.

  10. Long-term effect of the complement inhibitor eculizumab on kidney function in patients with paroxysmal nocturnal hemoglobinuria.

    ... Paroxysmal nocturnal hemoglobinuria (PNH) is a debilitating and life-threatening disease in ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 10/11/2011 - 5:58pm.