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  1. Improved Fatigue and Quality-of-Life in Patients with Paroxysmal Nocturnal Hemoglobinuria During Treatment with Eculizumab: Data from the Global PNH Registry

    ... C. Bedrosian, P. Hillmen  Paroxysmal nocturnal hemoglobinuria (PNH) causes hemolysis , or destruction of some or ...

    Research Review last updated 05/02/2016 - 9:21am.

  2. Complement Blockade with a C1 Esterase Inhibitor in Paroxysmal Nocturnal Hemoglobinuria

    ... Brodsky, M.D. Patients with paroxysmal nocturnal hemoglobinuria (PNH) don’t have two important proteins, CD55 and CD59, ...

    Research Review last updated 05/02/2016 - 9:21am.

  3. Brandi Lewis

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    "Like You" Patient Story last updated 09/11/2017 - 10:59am.

  4. Insights into the Natural History of Paroxysmal Nocturnal Hemoglobinuria (PNH): Analysis of the Presenting Clinical, Haematological and Flow Cytometric Features of 705 Patients Leads to Improved Classification and Prediction of Clinical Course

    ... more males than females) with paroxysmal nocturnal hemoglobinuria (PNH) over the past 22 years. This goal of this study ...

    Research Review last updated 05/02/2016 - 9:20am.

  5. AAMDSIF in San Diego 9/17

    ... with aplastic anemia, MDS or PNH ( paroxysmal nocturnal hemoglobinuria ). Sessions will be available in English and Spanish, ...

    Article last updated 09/07/2016 - 12:42pm.

  6. Long-term effect of the complement inhibitor eculizumab on kidney function in patients with paroxysmal nocturnal hemoglobinuria.

    ... Paroxysmal nocturnal hemoglobinuria (PNH) is a debilitating and life-threatening disease in ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 10/11/2011 - 5:58pm.

  7. Stem and progenitor cells in myelodysplastic syndromes show aberrant stage specific expansion and harbor genetic and epigenetic alterations.

    ...

    Research Article last updated 08/30/2012 - 4:05pm.

  8. Announcing AAMDSIF 2016 Research Awards

    ... in the bone marrow of patients with Paroxysmal Nocturnal Hemoglobinuria (PNH). In this condition, due to a gene mutation , ...

    Article last updated 06/09/2016 - 12:45pm.

  9. Request Educational Materials

    ... - Select - Aplastic Anemia Paroxysmal Nocturnal Hemoglobinuria (PNH) Myelodysplastic Syndromes (MDS) If you select ... Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Other If "other", please specify ...

    Webform last updated 09/27/2017 - 3:52pm.

  10. The small population of PIG-A mutant cells in myelodysplastic syndromes do not arise from multipotent hematopoietic stem cells

    ... Background. Patients with paroxysmal nocturnal hemoglobinuria harbor clonal glycosylphosphatidylinositol-anchor deficient ... with aplastic anemia often evolve into paroxysmal nocturnal hemoglobinuria; however, myelodysplastic syndromes seldom evolve into ...

    Research Article last updated 06/15/2012 - 1:48pm.