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  1. 2017 5K Run & Walk Washington, DC

    ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. ...

    Friendraising Walk last updated 11/13/2017 - 1:11pm.

  2. 2015 Baltimore Patient and Family Conference

    Teaser Text:  Join us in “Charm City” for the 2015 regional patient and family conference. Event Date:  Sat, 03/28/2015 - 8:30am to ...

    Conference Event last updated 03/24/2015 - 2:48pm.

  3. Heroic avatars for rare disease patients

    ... hemolytic uremic syndrome (aHUS), paroxysmal nocturnal hemoglobinuria (PNH), hypophosphatasia (HPP), and lysosomal acid lipase ...

    Article last updated 09/14/2016 - 12:53pm.

  4. AAMDSIF to make news at ASH Conference

    ... MDS. One such grant to study PNH ( paroxysmal nocturnal hemoglobinuria ) went to Dr. David Araten, assistant professor in the ...

    Article last updated 12/01/2016 - 7:49am.

  5. Self-injected PNH therapy on the horizon

    ... self-injected therapy Coversin for paroxysmal nocturnal hemoglobinuria (PNH), behind intravenous (I.V.) Soliris ( eculizumab ...

    Article last updated 07/07/2016 - 9:40am.

  6. Assessment of Human Antihuman Antibodies to Eculizumab After Long-Term Treatment in Patients With Paroxysmal Nocturnal Hemoglobinuria

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 04/29/2016 - 10:20am.

  7. Biomarkers for predicting clinical response to immunosuppressive therapy in aplastic anemia

    ... counts, cytokines, gene mutations, paroxysmal nocturnal hemoglobinuria (PNH), and telomere length (TL). While previous ...

    Research Article last updated 06/22/2016 - 10:19am.

  8. Clonal hematopoiesis in acquired aplastic anemia

    ... of late clonal disorders, including paroxysmal nocturnal hemoglobinuria (PNH) and myelodysplastic syndromes (MDS)/acute ...

    Research Article last updated 06/22/2016 - 10:18am.

  9. Eculizumab Protects Against TE and Prolongs Survival in Patients with Paroxysmal Nocturnal Hemoglobinuria: An International PNH Registry Study

    ... causes of death in patients with paroxysmal nocturnal hemoglobinuria (PNH). Clinical trials have shown that eculizumab ...

    Research Review last updated 05/02/2016 - 9:26am.

  10. Improved Fatigue and Quality-of-Life in Patients with Paroxysmal Nocturnal Hemoglobinuria During Treatment with Eculizumab: Data from the Global PNH Registry

    ... C. Bedrosian, P. Hillmen  Paroxysmal nocturnal hemoglobinuria (PNH) causes hemolysis , or destruction of some or ...

    Research Review last updated 05/02/2016 - 9:21am.