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  1. 2015 Boston Patient and Family Conference

    ...

    Conference Event last updated 09/24/2015 - 10:11am.

  2. Heroic avatars for rare disease patients

    ... hemolytic uremic syndrome (aHUS), paroxysmal nocturnal hemoglobinuria (PNH), hypophosphatasia (HPP), and lysosomal acid lipase ...

    Article last updated 09/14/2016 - 12:53pm.

  3. 2015 Cleveland Patient and Family Conference

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    Conference Event last updated 05/12/2015 - 2:44pm.

  4. Resources to Help

    ... myelodysplastic syndrome (MDS ) and  paroxysmal nocturnal hemoglobinuria  (PNH). Canadian Association of PNH Patients ... ESPAÑOLA DE ANEMIA DE FANCONI Asociación de Hemoglobinuria Paroxística Nocturna Centro de Investigación ...

    Topic section last updated 09/28/2017 - 11:58am.

  5. Brandi Lewis

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    "Like You" Patient Story last updated 09/11/2017 - 10:59am.

  6. 2015 Baltimore Patient and Family Conference

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    Conference Event last updated 03/24/2015 - 2:48pm.

  7. Self-injected PNH therapy on the horizon

    ... self-injected therapy Coversin for paroxysmal nocturnal hemoglobinuria (PNH), behind intravenous (I.V.) Soliris ( eculizumab ...

    Article last updated 07/07/2016 - 9:40am.

  8. Biomarkers for predicting clinical response to immunosuppressive therapy in aplastic anemia

    ... counts, cytokines, gene mutations, paroxysmal nocturnal hemoglobinuria (PNH), and telomere length (TL). While previous ...

    Research Article last updated 06/22/2016 - 10:19am.

  9. Clonal hematopoiesis in acquired aplastic anemia

    ... of late clonal disorders, including paroxysmal nocturnal hemoglobinuria (PNH) and myelodysplastic syndromes (MDS)/acute ...

    Research Article last updated 06/22/2016 - 10:18am.

  10. Assessment of Human Antihuman Antibodies to Eculizumab After Long-Term Treatment in Patients With Paroxysmal Nocturnal Hemoglobinuria

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 04/29/2016 - 10:20am.