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  1. Aplastic Anemia & MDS International Foundation: Bone Marrow Failure Disease Scientific Symposium 2014

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 01/23/2015 - 3:36pm.

  2. Walk for PNH: New York, September 2017

    ... dedicated to helping people with paroxysmal nocturnal hemoglobinuria (PNH) ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. ...

    Friendraising Walk last updated 09/06/2017 - 11:26am.

  3. 2015 Chicago Patient and Family Conference

    Teaser Text:  Meet us in the “Windy City” for the 2015 regional patient and family conference. Event Date:  Sat, 10/24/2015 - 8:30am ...

    Conference Event last updated 10/22/2015 - 9:47am.

  4. 2015 Tampa Patient and Family Conferences

    Teaser Text:  Join us in the “City of Champions” for the 2015 regional patient and family conference. Event Date:  Sat, 11/14/2015 - 8:3...

    Conference Event last updated 11/20/2015 - 11:58am.

  5. Zonal cutaneous ulceration and necrosis of the lower abdomen due to cutaneous thrombosis associated with paroxysmal nocturnal hemoglobinuria

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/02/2016 - 10:35am.

  6. 2015 Boston Patient and Family Conference

    Teaser Text:  Bring a buddy to “Beantown” for the 2015 regional patient and family conference. Event Date:  Sat, 09/19/2015 - 8:30am ...

    Conference Event last updated 09/24/2015 - 10:11am.

  7. 2015 Cleveland Patient and Family Conference

    Teaser Text:  Meet us in “Believe-land” for the 2015 regional patient and family conference. Event Date:  Sat, 05/02/2015 - 8:30am to...

    Conference Event last updated 05/12/2015 - 2:44pm.

  8. Local TV covers AAMDSIF Peer Support Networker

    ... tests revealed that he had paroxysmal nocturnal hemoglobinuria (PNH).   PNH is an acquired rare disorder characterized ...

    Article last updated 11/28/2016 - 3:21pm.

  9. 2017 5K Run & Walk Washington, DC

    ... syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. ...

    Friendraising Walk last updated 11/13/2017 - 1:11pm.

  10. Evaluation of efficacy of alemtuzumab in 5 patients with aplastic anemia and/or myelodysplastic neoplasm

    ... responding patients, a concomitant paroxysmal nocturnal hemoglobinuria (PNH) clone was detected before therapy. One ...

    Research Article last updated 11/01/2016 - 1:56pm.