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  1. Resources to Help

    ... myelodysplastic syndrome (MDS ) and  paroxysmal nocturnal hemoglobinuria  (PNH). Canadian Association of PNH Patients ... ESPAÑOLA DE ANEMIA DE FANCONI Asociación de Hemoglobinuria Paroxística Nocturna Centro de Investigación ...

    Topic section last updated 09/28/2017 - 11:58am.

  2. Zonal cutaneous ulceration and necrosis of the lower abdomen due to cutaneous thrombosis associated with paroxysmal nocturnal hemoglobinuria

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/02/2016 - 10:35am.

  3. Brandi Lewis

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    "Like You" Patient Story last updated 09/11/2017 - 10:59am.

  4. Local TV covers AAMDSIF Peer Support Networker

    ... tests revealed that he had paroxysmal nocturnal hemoglobinuria (PNH).   PNH is an acquired rare disorder characterized ...

    Article last updated 11/28/2016 - 3:21pm.

  5. Evaluation of efficacy of alemtuzumab in 5 patients with aplastic anemia and/or myelodysplastic neoplasm

    ... responding patients, a concomitant paroxysmal nocturnal hemoglobinuria (PNH) clone was detected before therapy. One ...

    Research Article last updated 11/01/2016 - 1:56pm.

  6. AAMDSIF and PNH Foundation To Merge

    ... in helping patients with PNH ( paroxysmal nocturnal hemoglobinuria ), a rare bone marrow failure disease. The ...

    Article last updated 11/01/2016 - 10:05am.

  7. Aplastic Anemia & MDS International Foundation: Bone Marrow Failure Disease Scientific Symposium 2014

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 01/23/2015 - 3:36pm.

  8. AAMDSIF to make news at ASH Conference

    ... MDS. One such grant to study PNH ( paroxysmal nocturnal hemoglobinuria ) went to Dr. David Araten, assistant professor in the ...

    Article last updated 12/01/2016 - 7:49am.

  9. Request Educational Materials

    ... - Select - Aplastic Anemia Paroxysmal Nocturnal Hemoglobinuria (PNH) Myelodysplastic Syndromes (MDS) If you select ... Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Other If "other", please specify ...

    Webform last updated 09/27/2017 - 3:52pm.

  10. Heroic avatars for rare disease patients

    ... hemolytic uremic syndrome (aHUS), paroxysmal nocturnal hemoglobinuria (PNH), hypophosphatasia (HPP), and lysosomal acid lipase ...

    Article last updated 09/14/2016 - 12:53pm.