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  1. Doctor Helps Determine Her Own Aplastic Anemia and PNH Diagnosis

    ... signs. I Googled the symptoms for paroxysmal nocturnal hemoglobinuria and emailed my hematologist who sent me for further ...

    Patient Chronicle last updated 04/26/2018 - 10:36am.

  2. Aplastic Anemia & MDS International Foundation: Bone Marrow Failure Disease Scientific Symposium 2014

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 01/23/2015 - 3:36pm.

  3. Selectivity of C3-opsonin targeted complement inhibitors: A distinct advantage in the protection of erythrocytes from paroxysmal nocturnal hemoglobinuria patients

    ... Paroxysmal nocturnal hemoglobinuria (PNH) is characterized by complement-mediated cell lysis due ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 04/29/2016 - 12:58pm.

  4. Sign Up

    ... Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Acute Myeloid Leukemia Other If "Other", Please ...

    Webform last updated 05/29/2018 - 2:17pm.

  5. Barry Gore

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    "Like You" Patient Story last updated 04/26/2018 - 3:09pm.

  6. Professionals

    Resources Health care providers are the primary source of information for their patients, but they too need access to factual and...

    Page last updated 05/03/2018 - 2:28pm.

  7. Request Educational Materials

    ... Aplastic Anemia (Français) Paroxysmal Nocturnal Hemoglobinuria (PNH) Paroxysmal Nocturnal Hemoglobinuria (PNH) (Español) Paroxysmal Nocturnal Hemoglobinuria ...

    Webform last updated 05/03/2018 - 2:41pm.

  8. 2015 Chicago Patient and Family Conference

    Teaser Text:  Meet us in the “Windy City” for the 2015 regional patient and family conference. Event Date:  Sat, 10/24/2015 - 8:30am ...

    Conference Event last updated 10/22/2015 - 9:47am.

  9. Daria Babushok, MD, PhD

    ... that lead to the development of Paroxysmal Nocturnal Hemoglobinuria and those that cause the loss of immune recognition. The ... blood disorders”)—such as Paroxysmal Nocturnal Hemoglobinuria or myelodysplastic syndrome. My research is aimed at ...

    Grant Recipient last updated 01/12/2018 - 9:44am.

  10. 2015 Boston Patient and Family Conference

    Teaser Text:  Bring a buddy to “Beantown” for the 2015 regional patient and family conference. Event Date:  Sat, 09/19/2015 - 8:30am ...

    Conference Event last updated 09/24/2015 - 10:11am.