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  1. FAQs

    ... and cyclosporine are the medicines typically used. Eculizumab (Soliris®) is the only drug approved by the U.S. Food and Drug ... about treatments for MDS. For PNH patients the drug eculizumab (Soliris®) is the only FDA approved treatment currently ...

    Topic section last updated 03/02/2016 - 11:42am.

  2. Special Issues for People with PNH

    ... be different. However, PNH patients who are receiving eculizumab may be less likely to have hemolysis after receiving a flu shot. ...

    Page last updated 01/20/2015 - 4:59pm.

  3. Therapies

    ... Eculizumab Eculizumab (Soliris ®) is the only drug approved by the U.S. Food and Drug ...

    Page last updated 03/18/2016 - 11:26am.

  4. Transplantation

     

    Page last updated 01/20/2015 - 4:45pm.

  5. Financial Resources

    ... Assists patients who have been prescribed Soliris ( eculizumab ) by connecting them to alternate funding sources and by getting ...

    Page last updated 08/26/2015 - 10:47am.

  6. Overlap Syndromes: When PNH Appears with Aplastic Anemia

    ... with only PNH. Patients having classic PNH may need eculizumab (Soliris®) or anticoagulants to prevent blood clots. Aplastic ... PNH-aplastic anemia overlap maybe not respond as well to eculizumab if they have a low reticulocyte count. They may need ... an effect on the kidney function-- unless they are also on eculizumab. Another consequence of the overlap syndrome is the effect of the ...

    Interview last updated 04/15/2015 - 9:39am.

  7. Overlap Syndromes: When PNH Appears with Aplastic Anemia or MDS

    ... with only PNH. Patients having classic PNH may need eculizumab (Soliris®) or anticoagulants to prevent blood clots. Aplastic ... PNH/aplastic anemia overlap maybe not respond as well to eculizumab if they have a low reticulocyte count. They may need ... an effect on the kidney function-- unless they are also on eculizumab. Another consequence of the overlap syndrome is the effect of the ...

    Interview last updated 05/14/2015 - 1:53pm.

  8. 2014 Scholarships Awarded to Special Group of Young People

    ... healthy.” Kim began treatment with the drug eculizumab (soliris), but her blood counts while stabilized, remained low. ...

    Page last updated 10/22/2015 - 8:28am.

  9. 2015 Scholarships Awarded to Special Group of Young People

    ... had a disease that could be treated with a medication, eculizumab (Soliris®). She says, “I now knew I that I was strong.” For ...

    Page last updated 08/14/2015 - 3:36pm.

  10. Immunosuppression and Stem Cell Transplantation – How Are These Treatments Chosen?

    ... PNH is less responsive to immunosuppression. Here we use eculizumab (Soliris®) to reduce the risk of thrombosis (blood clots) and ...

    Interview last updated 07/15/2015 - 10:19am.