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  1. My Encounter with Aplastic Anemia

    ... once again. They sent me to the NIH for a clinical trial of eltrombopag , which after a number of trips back and forth ...

    Patient Chronicle last updated 04/26/2018 - 10:16am.

  2. My Life is Making a Difference

    ... and had gotten the information we needed to qualify for a trial. That night in the ER we knew I had to get into the program as soon as ... to be evaluated for admission to an eltrombopag clinical trial . There, after another bone marrow biopsy I was diagnosed ...

    Patient Chronicle last updated 04/26/2018 - 10:20am.

  3. Updates from John and Isabella!

    ... in this immediate post-transplant period. The clinical trial you’re now part of since arriving here in a caregiver role - how ...

    Patient Chronicle last updated 04/26/2018 - 12:08pm.

  4. Hypomethylating agents in combination with immune checkpoint inhibitors in acute myeloid leukemia and myelodysplastic syndromes

    ... inhibitors, as single-agent therapy, have shown modest clinical efficacy in the treatment of acute myeloid leukemia (AML) and ... combining HMAs with immune checkpoint blockade. Clinical trial data have shown encouraging response rates and durable responses ...

    Research Article last updated 04/11/2018 - 9:47am.

  5. Clinical trial reveals genetic fault that reduces the effectiveness of leukemia treatment

    ... they respond to treatment. The findings come from a clinical trial led by the University of Birmingham that examined whether survival ...

    Research Article last updated 09/29/2017 - 10:32am.

  6. Welcome to our blog!

    ... March 22nd and 23rd! Today, we’d like to chat about clinical trials. As you may know, the annual conference of the American Society ... a study is always described in terms of the “phase” of a trial that it represents. For patients and caregivers, here’s a shorthand way ...

    Blog post last updated 12/14/2017 - 2:35pm.

  7. In Treatment at NIH

    ... for a stem cell transplant as part of a new clinical trial testing the use of cord-blood stem cells with half-matched ...

    Patient Chronicle last updated 06/06/2018 - 10:03am.

  8. Low Dose Danazol for the Treatment of Telomere Related Diseases

    For more details on this clinical trial, including contact information, please see this trial’s listing on ... the efficacy, appropriateness or suitability of any clinical trial listed on this website. Pharmaceutical company sponsored ...

    Clinical Trial last updated 05/31/2018 - 2:53pm.

  9. Foundation Update - November 2016

    ... On September 24, the AAMDSIF Patient Advisory Council on Clinical Trials (PACCT+) members gathered in Arlington, Virginia for an ... members and learn from two experts about clinical trial design and the state of current MDS research. PACCT+ is a two-year ...

    Article last updated 10/09/2017 - 2:48pm.

  10. Foundation Update - July 2017

    ... June 17, the AAMDSIF Patient Advisory Council on Clinical Trials (PACCT+) members met in Arlington, Virginia for the second ... committee members and learning from two experts about clinical trial design and the state of current MDS research. Learn more ...

    Article last updated 10/09/2017 - 2:42pm.