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  1. Prognostic value of self-reported fatigue on overall survival in patients with myelodysplastic syndromes: a multicentre, prospective, observational, cohort study

    ... BACKGROUND: The clinical presentation of myelodysplastic syndromes is highly variable ... IPSS and fatigue score from the European Organisation for Research and Treatment of Cancer quality-of-life questionnaire-core 30, ...

    Research Article last updated 11/10/2015 - 10:47am.

  2. Optimizing management of myelodysplastic syndromes post-allogeneic transplantation

    ... preemptive therapy is an important goal of current clinical research . Further strategies aiming at an improved prevention of ...

    Research Article last updated 12/05/2011 - 10:23am.

  3. Allogeneic hematopoietic cell transplantation in patients with myelodysplastic syndromes

    ... to prevent relapse, is an important goal of current clinical research . There is an urgent need for prospective randomized trials to ...

    Research Article last updated 11/05/2012 - 9:30am.

  4. Clinical Trials

    Clinical Research Educational Site Clinical research studies can offer good treatment options for some people ...

    Page last updated 03/14/2016 - 10:14am.

  5. A Mother and Daughter Awareness-Building Team Get to Work

    ... to be a hit. After reading more on the website about clinical trials and what other patients were doing to raise awareness, Emma ... the routine was planning her own t-shirt, and I began my research for establishing a non-profit of our own. Emma was released and later ...

    Patient Chronicle last updated 09/19/2017 - 8:55pm.

  6. Molecular Testing in Myelodysplastic Syndromes for the Practicing Oncologist: Will the Progress Fulfill the Promise?

    ... The current prognostic tools sum the impact of clinical, pathologic, and laboratory parameters. Newer technologies with ... mutational data into daily clinical practice and how future research could help improve the prognostication precision and specific therapy ...

    Research Article last updated 09/28/2015 - 9:48am.

  7. Myelodysplastic Syndromes and Acute Myeloid Leukemia in the Elderly

    ... can influence life expectancy and treatment tolerance. Clinical trials accounting for the heterogeneity of tumor biology and ... with MDS and AML and highlights future directions for research. Bone Marrow ...

    Research Article last updated 12/09/2015 - 1:30pm.

  8. Accuracy of physician assessment of treatment preferences and health status in elderly patients with higher-risk myelodysplastic syndromes.

    ... Survey tools included the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (EORTC ... attitude toward a lower degree of patient involvement in clinical decisions. Agreement on health status was found in 27.5% of cases. ...

    Research Article last updated 09/15/2015 - 10:09am.

  9. Shirley O’Brien’s Remarkable Response in a Clinical Trial

    ... a normal life for the next seven months. However, much of my research told me otherwise. MDS was just smoldering, and not gone. I had ... I had only a few months to live unless I found a clinical trial and soon. Neither of the two oncologists offered to help me ...

    Patient Chronicle last updated 07/19/2017 - 8:12am.

  10. Paroxysmal Nocturnal Hemoglobinuria: A Complement-Mediated Hemolytic Anemia

    ... largely mediated by the alternative pathway of complement. Clinical manifestations result from the lack of specific cell surface ... Complement inhibition strategies are an area of active research. Bone Marrow ...

    Research Article last updated 06/23/2015 - 9:32am.