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  1. Recent advances in the treatment of lower-risk non-del(5q) myelodysplastic syndromes (MDS)

    ... as well as integrating molecular and genetic data into clinical practice. We provide an overview of current treatment approaches for ... non-del(5q) MDS and explore promising directions for future research. Bone Marrow Diseases:  ...

    Research Article last updated 12/09/2016 - 2:50pm.

  2. Announcing AAMDSIF 2016 Research Awards

    ... We are pleased to be able the recipients of the 2016 research awards in bone marrow failure . This year we had dozens of ... in the blood of patients with MDS and this predicts a poor clinical outcome. We demonstrate that changes in the stroma increase ...

    Article last updated 06/09/2016 - 12:45pm.

  3. Genetic features of myelodysplastic syndrome and aplastic anemia in pediatric and young adult patients

    ... 1, 2016 The clinical and histopathological distinctions between inherited versus acquired ... syndrome transplanted at the Fred Hutchinson Cancer Research Center. Mutations in inherited bone marrow failure/myelodysplastic ...

    Research Article last updated 11/28/2016 - 9:29am.

  4. Clinical Trial Basics

    Clinical trials offer hope for many people and an opportunity to help ... What is a clinical trial? A clinical trial is a research study that involves volunteers who participate in carefully conducted ...

    Page last updated 01/20/2015 - 4:46pm.

  5. A Mother and Daughter Awareness-Building Team Get to Work

    ... to be a hit. After reading more on the website about clinical trials and what other patients were doing to raise awareness, Emma ... the routine was planning her own t-shirt, and I began my research for establishing a non-profit of our own. Emma was released and later ...

    Patient Chronicle last updated 09/19/2017 - 8:55pm.

  6. Top expert calls future MDS/AML care “promising”

    ... lives and outcomes of our patients. [I focused on] where the research is going, what are the most important clinical trials that we have for our patients, and some other interventions ...

    Article last updated 11/02/2016 - 11:28am.

  7. AAMDSIF in San Diego 9/17

    ... 1983. The organization sponsors innovative and collaborative research through the MDS Clinical Research Consortium and with its own research grant program. Based ...

    Article last updated 09/07/2016 - 12:42pm.

  8. AAMDSIF Expands its International Presence

    ... specializing in MDS. The event focused primarily on MDS clinical updates, patient registries, transplantation and related bone ... consist of updates by international experts on the latest research and clinical management of bone marrow failure diseases, including ...

    Article last updated 10/28/2016 - 12:45pm.

  9. Special Precautions

    ... protect against the three influenza viruses (trivalent) that research indicates will be most common during the upcoming season. Talk with ... shot. Although case reports are not the same as randomized clinical trials, one case of hemolysis was severe enough to put the patient in ...

    Topic section last updated 09/08/2017 - 12:34pm.

  10. Walk for PNH: New York, September 2017

    ... and health professionals and provides financial support to clinical researchers searching for better treatments and cures.   For 11 ... awareness and funds for education, information resources and research. And if you can't join us in person, please consider signing up ...

    Friendraising Walk last updated 09/06/2017 - 11:26am.