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  1. A Mother and Daughter Awareness-Building Team Get to Work

    ... to be a hit. After reading more on the website about clinical trials and what other patients were doing to raise awareness, Emma ... the routine was planning her own t-shirt, and I began my research for establishing a non-profit of our own. Emma was released and later ...

    Patient Chronicle last updated 04/26/2018 - 10:01am.

  2. I Was Alone With MDS Until I Connected With Others on Social Media

    ... a tough winter with many upper respiratory infections. The research I did never suggested that my IGA immune deficiency would lead to ... effects than what I had with lenalidomide. They suggested clinical trials, but as it turned out there were no clinical trials I was ...

    Patient Chronicle last updated 04/26/2018 - 9:40am.

  3. Promising news for older AML patients

    ... study at the 2016 annual meeting of the American Society of Clinical Oncology, induced a combined rate of complete remission (CR) and CR ... was supported by Abbvie and Genentech. Dr. Pratz disclosed research funding from Abbvie and other companies ...

    Article last updated 07/19/2017 - 11:19am.

  4. Clinical Trial Basics

    ... Clinical trials offer hope for many people and an opportunity to help ... What is a clinical trial? A clinical trial is a research study that involves volunteers who participate in carefully conducted ...

    Page last updated 01/20/2015 - 4:58pm.

  5. Comparison of clinical outcomes and prognostic utility of risk stratification tools in patients with therapy-related vs de novo myelodysplastic syndromes: a report on behalf of the MDS Clinical Research Consortium.

    ... In conclusion, subsets of t-MDS patients with varying clinical outcomes can be identified using conventional risk stratification ...

    Research Article last updated 03/09/2017 - 1:27pm.

  6. New data presented at ASCO on secondary MDS/AML

    ... The data, presented at the 2017 American Society of Clinical Oncology (ASCO 2017) annual meeting in Chicago by Nicole Fulcher, et ... greater in subcohorts exposed to DNA-damaging agents. Future research should more accurately judge the association of MDS/AML with exposure ...

    Article last updated 06/05/2017 - 9:37am.

  7. Clinical Trial Basics

    ... Clinical trials offer hope for many people and an opportunity to help ... What is a clinical trial? A clinical trial is a research study that involves volunteers who participate in carefully conducted ...

    Page last updated 01/20/2015 - 4:46pm.

  8. PACCT+ Patient Committee Holds First Meeting

    ... On September 24, the AAMDSIF Patient Advisory Council on Clinical Trials (PACCT+) members met in Arlington, Virginia for an orientation ... and the state of current bone marrow failure (BMF) research. PACCT+ is a two-year demonstration project to develop and test a ...

    Article last updated 01/23/2017 - 2:12pm.

  9. Comparison of clinical outcomes and prognostic utility of risk stratification tools in patients with therapy-related vs. de novo myelodysplastic syndromes: A report on behalf of the MDS clinical research consortium

    ... In conclusion, subsets of t-MDS patients with varying clinical outcomes can be identified using conventional risk stratification ...

    Research Article last updated 02/03/2017 - 10:09am.

  10. Professionals

    ... and pathophysiology of bone marrow failure; and clinical investigators to discuss current areas of consensus and controversy, share recent research results, and identify the highest-priority directions for basic and ...

    Page last updated 02/22/2018 - 1:04pm.