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  1. North American Pediatric Aplastic Anemia Consortium Symposium

    ...  As with all rare diseases, there is a relative lack of research to develop cures and guide the management of affected patients. The ... of Philadelphia) discussed outcomes data essential to clinical decision-making. The current overall survival for matched sibling ...

    Page last updated 10/31/2013 - 4:06pm.

  2. Special Issues for People with PNH

    ... against the three influenza viruses (trivalent) that research indicates will be most common during the upcoming season. Consult with ... shot. Although case reports are not the same as randomized clinical trials, one case of hemolysis was severe enough to put the patient in ...

    Page last updated 01/20/2015 - 4:59pm.

  3. Neal Young, M.D., MACP

    ... / Title:  Chief of the Intramural Research Hematology Branch, National Heart, Lung, and Blood Institute, National ... instability. His research includes direct patient care and clinical protocols for the treatment of bone marrrow failure; basic science ...

    Leadership Award last updated 07/19/2012 - 11:34am.

  4. Nurses' Corner January 2015: Talking about Hope with Patients

    ... If it is indeed a lifeline, where is it in our clinical care?  How and when are we addressing it?   Ask your patient ... answers may surprise you.   Anna Ferguson RN, BSN Research Nurse, Department of Hematologic Malignancies Founder and Director, ...

    Page last updated 01/27/2015 - 10:43am.

  5. Casey O’Connell, MD

    ... University of Southern California (USC). In addition to her clinical work with patients at the Norris Comprehensive Cancer Center, she conducts clinical and translational research in Myeloproliferative and Myelodysplastic Syndromes (MDS). She ...

    Page last updated 04/18/2012 - 1:47pm.

  6. Treating Higher-Risk Myelodysplastic Syndromes

    ... would be the hypomethlating agents mentioned earlier. Clinical trials are also an important component to patient care if there is ... decitabine, or lenalidomide (Revlimid®). Clinical research with new chemotherapy combinations are the key to improving therapy ...

    Interview last updated 05/18/2012 - 1:55pm.

  7. Agent Orange, United States Military Veterans, and Myelodysplastic Syndromes

    ... of Medicine at Harvard Medical School. His primary area of research focuses on myelodysplastic syndromes and related conditions.  Dr. ... danger and the severity of MDS are not debated in the clinical medical community, and to call MDS anything less than a group of ...

    Page last updated 12/19/2013 - 10:58am.

  8. Newly Diagnosed

    ... in your personal life and affairs, or about the medical and clinical treatment you receive, newly-diagnosed patients help themselves by ... and other resources. From activity and progress in the research related to bone marrow failure disease all the way through living well ...

    Page last updated 10/25/2012 - 11:32am.