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  1. Learning about Clinical Trials Part 1: Do You Know How to Read a Study Record?

    A clinical trial (also called a research study) is one type of study that involves using human volunteers (also called participants). Participating in a clinical trial is an option for many patients with bone marrow failure ...

    Page last updated 05/14/2015 - 2:03pm.

  2. AA&MDSIF Survey Finds Differences Between MDS Patients and Health Care Professionals on Risks and Benefits of Treatment

    ... In 2013, AA&MDSIF coordinated with a group of MDS clinical research experts led by David Steensma, MD, of the Dana-Farber Cancer ...

    Page last updated 08/01/2014 - 11:02am.

  3. PNH - Treatment (OLD)

    ... Clinical Trials Clinical research studies, also called clinical trials, are at the heart of all ...

    Topic section last updated 03/10/2016 - 11:09pm.

  4. Biting into the Elephant

    ... treatments. In September 1983, my sister urged us to go to a research hospital. Off we went to the Hospital of the University of ... us to Duke University Medical Center, which was performing clinical trials with horse bone marrow (which led to the subsequent approval of ...

    Patient Chronicle last updated 06/27/2016 - 2:22pm.

  5. Steven C. Groft, Pharm.D.

    ... and little known diseases into the spotlight to help garner clinical attention and financial resources for research. All told, 25 to 30 million people in the United States have a rare ...

    Leadership Award last updated 07/11/2016 - 3:20pm.

  6. Scientific Symposia

    ... Convening International Experts at the Forefront of Research and Treatment of Bone Marrow Failure Disease ... The program brought together leaders in disease research and clinical practice to explore solutions to improving the care of these patient ...

    Page last updated 12/17/2015 - 3:15pm.

  7. Graft vs. Host Disease (GVHD)

    ... or mycophenolate mofetil or tacrolimus or methotrexate. Clinical trials, also called research studies may offer good treatment options for some people GVHD. These ...

    Topic section last updated 07/07/2016 - 3:17pm.

  8. Myelofibrosis (MF)

    ... of the spleen which may be needed in rare cases Clinical trials, also called research studies. These may offer good treatment options for some patients. ...

    Topic section last updated 07/07/2016 - 3:16pm.

  9. Chronic Myeloproliferative Neoplasms (MPN)

    ... or imatinib and others to treat hypereosinophilia Clinical trials, also called research studies, may offer good treatment options for some people ...

    Topic section last updated 07/07/2016 - 3:19pm.

  10. Chronic Lymphocytic Leukemia (CLL)

    ... include Ibrutinib, idelalisib, venetoclax and others. Clinical trials, also called research studies, may offer good treatment options for some CLL patients. These ...

    Topic section last updated 07/07/2016 - 3:18pm.