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  1. Resources to Help

    ... for fundraising and patient awareness. Leukemia Research Foundation https://www.allbloodcancers.org/our-programs ... accessibility, updates on current research and updates on clinical trials. Learn more about patient conference for those dealign with ...

    Topic section last updated 09/28/2017 - 11:58am.

  2. Paroxysmal Nocturnal Hemoglobinuria (PNH)

    ... help people with PNH live longer. You may have seen older research saying that patients with PNH live an average of 15 to 20 years, but ... shot. Although case reports are not the same as randomized clinical trials, one case of hemolysis was severe enough to put the patient in ...

    Page last updated 09/30/2017 - 11:34am.

  3. MDS Clinical Research Consortium Meets at ASH 2016

    ... (ASH) meeting kicked in, AAMDSIF and members of the MDS Clinical Research Consortium (MDS CRC) took the opportunity to meet with partners ...

    Article last updated 12/14/2016 - 12:37pm.

  4. Shirley O’Brien’s Remarkable Response in a Clinical Trial

    ... a normal life for the next seven months. However, much of my research told me otherwise. MDS was just smoldering, and not gone. I had ... I had only a few months to live unless I found a clinical trial and soon. Neither of the two oncologists offered to help me ...

    Patient Chronicle last updated 07/19/2017 - 8:12am.

  5. A Mother and Daughter Awareness-Building Team Get to Work

    ... to be a hit. After reading more on the website about clinical trials and what other patients were doing to raise awareness, Emma ... the routine was planning her own t-shirt, and I began my research for establishing a non-profit of our own. Emma was released and later ...

    Patient Chronicle last updated 09/19/2017 - 8:55pm.

  6. Consideration B

    ... Clinical Research Educational Site Clinical research studies can offer good ...

    Page last updated 03/14/2016 - 10:23am.

  7. Consideration A

    ... Clinical Research Educational Site Clinical research studies can offer good ...

    Page last updated 03/14/2016 - 10:20am.

  8. More Information

    ... What are the different types of clinical trials? Treatment trials test new treatment options. ... to take part in all the phases. The early phases of a research study make sure the drug or treatment is safe. The later phases of ...

    Page last updated 01/20/2015 - 4:59pm.

  9. More Information

    ... What are the different types of clinical trials? Treatment trials test new treatment options. ... to take part in all the phases. The early phases of a research study make sure the drug or treatment is safe. The later phases of ...

    Page last updated 01/20/2015 - 4:47pm.

  10. MDS Clinical Research Consortium

    ... Center in Houston, H. Lee Moffitt Cancer Center and Research Institute in Tampa, and the Sidney Kimmel Comprehensive Cancer ... Medicine Leukemia Program, and its website profiles multiple clinical trials underway through the MDS CRC and offers patients an opportunity ...

    Page last updated 12/14/2016 - 11:19am.