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  1. Clinical Trial Basics

    ... the comfort and quality of life for patients with a chronic illness through supportive care . What are some risks of being in a ...

    Page last updated 01/20/2015 - 4:46pm.

  2. Are Clinical Trials an Option for You?

    ... of life through supportive care for people with a chronic illness Some patients may think a clinical trial is only ...

    Page last updated 04/20/2015 - 8:50am.

  3. Advice for Family Caregivers

    ... by bonds of affection. They are affected by the needs and illness of their loved one and offer support in ways other than on-site ... affect the immune system, placing caregivers at risk for chronic illness , insomnia, anxiety, and depression. Don’t deny or ignore ...

    Interview last updated 09/30/2014 - 11:32am.

  4. Interviews with the Experts Emotional Stress: Advice for Patients

    ... Others may feel confused, centering on “what does this illness mean?” -- primarily because it’s a rare disease that is unknown to ... can be excellent ways to handle the stress of a chronic illness .  Patients need to experiment and fi nd what works best ...

    Interview last updated 07/30/2014 - 11:02am.

  5. Principle 5: Build a Strong Personal Support Team

    ... or forums offers the level of support we need. Having a chronic disease can be very difficult. Knowing that someone is in your corner ... to care, medical debt, and job retention related to their illness. Their services may be free. To learn more, call them at (800) ...

    Page last updated 02/26/2015 - 2:19pm.

  6. Is a Medical Social Worker a Member of Your Health Care Team?

    ... Social workers do a number of important things related to chronic diseases like bone marrow failure : •    They advocate ... role changes andexploring emotional  social responses to illness and treatment •    Link clients to essential resources within the ...

    Page last updated 10/30/2014 - 10:12am.

  7. Lower-Risk MDS: Diagnosis and Treatment Options

    ... One complication is graft vs. host disease which can be chronic illness that is associated with a very poor quality of life. Transplant can ...

    Interview last updated 05/18/2012 - 1:28pm.

  8. Agent Orange, United States Military Veterans, and Myelodysplastic Syndromes

    ... the Vietnam War era, questions about causation of serious illness, especially when the diagnosis is an unusual condition such as a ... It is notable that numerous hematologic malignancies – chronic B cell leukemias, multiple myeloma, light-chain amyloidosis, Hodgkin ...

    Page last updated 12/19/2013 - 10:58am.

  9. Scholarships Awarded to Special Group of Young People

    ... receives treatment for a side effect of the transplant, chronic graft versus host disease. Despite these obstacles she continues to ... degree. In Her Own Words Though this illness has been the hardest thing that has ever come my way in my mere ... to treat me differently. I had entered a new culture, one of illness and serious medical conditions. At the hospital, I saw many children in ...

    Page last updated 02/28/2013 - 4:00pm.