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  1. Palliative Care: What it really means for patients with Bone Marrow Failure Diseases

    ... of life for patients and families facing serious or chronic illness — whatever the diagnosis or prognosis. A palliative approach adds ...

    LMS Item last updated 06/10/2016 - 1:24pm.

  2. Caring for the Caregiver

    ... emotional, or household support, caregiving for rare and chronic bone marrow failure diseases is not an easy task. It can be stressful ... on the blender gets the job done. But a chronic illness can be ongoing. Imagine if you left your blender running 24 hours ...

    Page last updated 10/13/2014 - 5:06pm.

  3. Caring for the Caregiver

    ... affect the immune system, placing caregivers at risk for chronic illness , insomnia, anxiety and depression,” says Jane Meier Hamilton, RN, ...

    Topic section last updated 03/16/2016 - 2:33pm.

  4. SL-401 in Advanced, High Risk Myeloproliferative Neoplasms (Systemic Mastocytosis, Advanced Symptomatic Hypereosinoophic Disorder, Myelofibrosis, Chronic Myelomonocytic Leukemia)

    ... hypereosinoophic disorder [PED], myelofibrosis [MF], and chronic myelomonocytic leukemia [CMML]) will be treated with SL-401, which will ... of Grade ≥2 GVHD Patient has uncontrolled intercurrent illness including, but not limited to, uncontrolled infection, disseminated ...

    Clinical Trial last updated 06/06/2016 - 2:11pm.

  5. What are clinical trials and how can I learn more about them?

    ... care ) trials to improve the comfort of people with chronic illness Prevention trials to look for better ways to prevent a disease ...

    FAQ last updated 03/15/2016 - 11:44pm.

  6. Caring for Yourself

    ... it can be. People with bone marrow failure and other chronic diseases, despite certain limitations, are leading active and ... to enable a person to live a good life with physical illness, which millions are able to do every day. How to take care of ...

    Page last updated 12/28/2016 - 11:39am.

  7. A Phase III, International, Randomized, Controlled Study of Rigosertib versus Physician’s Choice of Treatment in Patients with Myelodysplastic Syndrome after Failure of a Hypomethylating Agent

    ... five years f.          Uncontrolled intercurrent illness including, but not limited to, symptomatic congestive heart failure or ... up to 20 mg/day or its equivalent is permitted for chronic conditions) r.          Treatment with cytarabine at any ...

    Clinical Trial last updated 11/29/2016 - 8:29am.

  8. Health Related Quality of Life and Well-Being

    ... have used HRQoL and well-being to measure the effects of chronic illness , treatments, and short- and long-term disabilities. You may have ...

    Page last updated 06/24/2015 - 2:08pm.

  9. From Bench to Bedside: Why Research is Important

    ... life through supportive care for people with a chronic illness . The U.S. Food and Drug Administration (FDA) has different ...

    Page last updated 03/19/2016 - 12:22pm.

  10. Clinical Trial Basics

    ... the comfort and quality of life for patients with a chronic illness through supportive care . What are some risks of ...

    Page last updated 03/29/2016 - 7:29pm.