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  1. Treating MDS Toolkit Contents - Download Now

    ... FDA-Approved Drug Therapies for MDS Living Well with Bone Marrow Failure Disease Standing Up for Your Health Additional ...

    Page last updated 05/17/2016 - 11:43am.

  2. Gregory Abel, MD

    Developing a Disease-Specific Measure for Quality of Life in Patients with Myelodysplastic Syndrome Original Resear...

    Grant Recipient last updated 09/28/2012 - 3:14pm.

  3. The Five Principles of Standing Up for Your Health

    ... and treatment options. Although a diagnosis of bone marrow failure disease is an unwelcome life event, strong self-advocates ...

    Page last updated 08/04/2015 - 10:01am.

  4. Clinical Trials Report for August 2015

    ... of Partially Mismatched Related or Matched Unrelated Bone Marrow for Patients With Refractory Severe Aplastic Anemia The main ...

    Page last updated 07/30/2015 - 8:45am.

  5. Caregivers Resources

    Caregiver Resources in the Ask Medicare Toolkit are designed to help caregivers address challenging issues and work effectively with Medicare to ensure their family members and friends receive the best poss...

    Page last updated 12/04/2014 - 10:13am.

  6. Clinical Trials Report for December 2015

    ... congenita or severe aplastic anemia who have bone marrow failure characterized by a requirement for red blood cell ...

    Page last updated 11/30/2015 - 10:31am.

  7. Principle 5: Build a Strong Personal Support Team

    ... Remember - You don't have to do it alone. Having a bone marrow failure disease can be a heavy burden. But you don't have to carry ...

    Page last updated 02/26/2015 - 2:19pm.

  8. Health Related Quality of Life and Well-Being

    ... to well-being. Even when diagnosed with a rare bone marrow failure disease, you can still work to establish a favorable health ...

    Page last updated 06/24/2015 - 2:08pm.

  9. Overlap Syndromes: When PNH Appears with Aplastic Anemia or MDS

    ... patients with PNH often also have a hypercellular marrow, and 25% of patients with PNH can have a chromosomal abnormality. So by ... back down, then those patients should have a repeat bone marrow biopsy because the reasons for the low blood counts could be ...

    Interview last updated 05/14/2015 - 1:53pm.

  10. Health Care Team Players: Meet the Nurse

    ... Some RN’s are involved in research.  Bone marrow failure patients may have advance practice registered nurses (APRN) ...

    Page last updated 05/29/2015 - 9:46am.