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  1. Health Related Quality of Life and Well-Being

    ... to well-being. Even when diagnosed with a rare bone marrow failure disease, you can still work to establish a favorable health ...

    Page last updated 06/24/2015 - 2:08pm.

  2. Gregory Abel, MD

    Developing a Disease-Specific Measure for Quality of Life in Patients with Myelodysplastic Syndrome Original Resear...

    Grant Recipient last updated 09/28/2012 - 3:14pm.

  3. Health Care Team Players: Meet the Nurse

    ... Some RN’s are involved in research.  Bone marrow failure patients may have advance practice registered nurses (APRN) ...

    Page last updated 05/29/2015 - 9:46am.

  4. Overlap Syndromes: When PNH Appears with Aplastic Anemia or MDS

    ... patients with PNH often also have a hypercellular marrow, and 25% of patients with PNH can have a chromosomal abnormality. So by ... back down, then those patients should have a repeat bone marrow biopsy because the reasons for the low blood counts could be ...

    Interview last updated 05/14/2015 - 1:53pm.

  5. Caregivers Resources

    Caregiver Resources in the Ask Medicare Toolkit are designed to help caregivers address challenging issues and work effectively with Medicare to ensure their family members and friends receive the best poss...

    Page last updated 12/04/2014 - 10:13am.

  6. Principle 5: Build a Strong Personal Support Team

    ... Remember - You don't have to do it alone. Having a bone marrow failure disease can be a heavy burden. But you don't have to carry ...

    Page last updated 02/26/2015 - 2:19pm.

  7. Coshocton, OH Walk Committee

    ... loved ones who inspire them to help raise awareness for bone marrow failure disease and funds for the AA&MDSIF programs and services ...

    Page last updated 05/13/2015 - 1:18pm.

  8. Insider

    ... Coverage of Research Innovation Impact Award Bone Marrow Failure Disease Scientific Symposium 2014 Professional Education ...

    Page last updated 07/25/2014 - 10:03am.

  9. Nursing Education Modules on MDS Disease Management and Patient Education

    ... overlap, diagnostic evaluation (laboratory indices, bone marrow findings, cytogenetics ) MDS classification – FAB/WHO, ...

    Page last updated 04/27/2015 - 2:44pm.

  10. Interviews with the Experts MDS Genomics: Providing ‘Street View’ Directions of Disease

    ... bleeding and deficiencies in vitamins and minerals. The bone marrow biopsy may suggest MDS, but the chromosome testing may not detect an ...

    Interview last updated 09/23/2014 - 9:30am.