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  1. Two Florida Girls Have a Rare Connection

    ... a rare connection. The Florida girls both suffer from bone marrow failure diseases, which have turned their young lives upside down. ...

    Page last updated 11/19/2015 - 4:18pm.

  2. What’s My Doctor Thinking?

    ... lung cancer or heart disease. With MDS, we know that the bone marrow is dysfunctional. Blood cells may develop, but are arrested in their ...

    Interview last updated 05/21/2012 - 12:41pm.

  3. Research Retrospective for AA&MDSIF 30th Anniversary - Dr. Neal Young

    ... In transplant, it appears that the use of bone marrow is really superior to peripheral blood as a source, and it seems the trend in transplant is moving away from harvesting bone marrow to the much easier (for the hematologist ) collection of ...

    Interview last updated 05/08/2013 - 2:51pm.

  4. Policymakers Act on Rare Disease Community’s Behalf

    ... a spending bill, which both will benefit patients with bone marrow failure disease. On Dec. 16, Congress finalized ...

    Page last updated 01/08/2016 - 2:39pm.

  5. Clinical Trial Basics

    ... led to the approval of many effective treatments for bone marrow failure diseases. These include: decitabine ...

    Page last updated 03/29/2016 - 7:29pm.

  6. Judy Joyce Memorial Golf Tournament

    The Annual Judy Joyce Memorial Golf Tournament began in 1993. Judy passed away from aplastic anemia . This event is organized annually by Judy Joyc...

    Fundraising Event last updated 11/08/2013 - 3:15pm.

  7. ASH 2012 - Reviewing MDS Progress from Research and Clinical Perspectives

    ... to determine how often these genes are mutated in MDS bone marrow samples. The goal is to define patterns of mutations that tend to ...

    Interview last updated 02/01/2013 - 4:22pm.

  8. South River Hope, Steps & A Cure: June 7, 2015

    ... raffle.  Delete Blood Cancer signed up 14 people on the bone marrow registry. The finish line festivities focused on remembering loved ...

    Page last updated 12/30/2015 - 2:40pm.

  9. Aplastic Anemia Halloween Benefit Bash

    The Annual Aplastic Anemia Halloween Benefit Bash began in 2011. It is organized by aplastic anemia survivor Mario Rivera and his wife Alison to ra...

    Fundraising Event last updated 10/31/2012 - 3:56pm.

  10. AA&MDSIF Erwin Umbach/MacGillivray Research Fund

    When his father-in-law, Erwin Umbach, passed away, AA&MDSIF board member Jim MacGillivray created a research fund as a tribute to him to find answers about MDS.

    Page last updated 10/01/2012 - 3:25pm.