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  1. Interviews with the Experts Managing MDS With Supportive Care and Active Treatment

    ... various parameters they use – including blood counts, bone marrow blast percentage, and bone marrow chromosome (cytogenetic) analysis. ...

    Interview last updated 09/22/2014 - 12:25pm.

  2. Barbara Weinstein - "Being able to help and empower people really appealed to me."

    ... the nursing field, do to help patients and families with bone marrow failure diseases. ...

    Patient Chronicle last updated 07/23/2014 - 1:52pm.

  3. Recommended Reading

    Caregiving And Thou Shalt Honor: The Caregiver's Companion, edited by Beth Witrogen McLeod, 464 pp, Rodale Press, 2003.  A complete reference for family caregivers, edited by the founder of the N...

    Page last updated 05/07/2013 - 1:41pm.

  4. Melanie Marquez: PNH Survivor Builds on Work of Friend, Fellow PNH Patient

    ... ever know because this disease isn’t just a battle of the bone marrow, it’s an emotional and mental battle as well. Support ...

    Page last updated 11/02/2015 - 4:30pm.

  5. PNH Research and Support Foundation Donations

    Make a tax-deductible gift to support the work of the PNH Research & Support Foundation TODAY.  Your gift will support research, patient education, and support services. Remember a loved one, celebrate a...

    Webform last updated 09/23/2014 - 10:51am.

  6. Resistance to Hypomethylating Agents in the Treatment of MDS

    ... induction chemotherapy with the hope to get to bone marrow transplant .  And for other patients, enrolling onto a clinical ...

    Interview last updated 06/17/2014 - 9:15am.

  7. Get the Relief You Need When You Experience the Symptoms of Serious Illness—ask about Palliative Care

    ... Learn more about what palliative care means for bone marrow failure diseases. ...

    Page last updated 09/30/2014 - 10:45am.

  8. Dorothy Zajac, daughter raises funds to honor father

    ... and raising a family.  But, she was also deeply affected by bone marrow failure disease when her father Richard Zajac, known as “Dziadzius” ...

    Patient Chronicle last updated 07/01/2014 - 8:06am.

  9. PNH Research Retrospective

    ... hematologists/oncologists were adequately informed about bone marrow failure disease, and what could be done to bridge any gap between ...

    Interview last updated 04/14/2014 - 8:33am.