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  1. Advice for Family Caregivers

    ... go away. This is because in some cases, such as bone marrow failure diseases, there is nothing caregivers can do to bring a ...

    Interview last updated 09/30/2014 - 11:32am.

  2. Barbara Weinstein - "Being able to help and empower people really appealed to me."

    ... the nursing field, do to help patients and families with bone marrow failure diseases. ...

    Patient Chronicle last updated 07/23/2014 - 1:52pm.

  3. Yahn Family Raises Over $400,000 for Research

    ... an advocacy effort that has raised over $415,000 for bone marrow failure disease research through the Torry Yahn Research Fund. ...

    Patient Chronicle last updated 03/19/2014 - 4:09pm.

  4. Recommended Reading

    ...

    Page last updated 05/07/2013 - 1:41pm.

  5. PNH Research and Support Foundation Donations

    ...

    Webform last updated 09/23/2014 - 10:51am.

  6. What is MDS? iPad App

    ... Standing Up For Your Health program helps patients with bone marrow failure diseases and their families develop the skills necessary to ...

    Page last updated 11/01/2013 - 1:25pm.

  7. Resistance to Hypomethylating Agents in the Treatment of MDS

    ... induction chemotherapy with the hope to get to bone marrow transplant .  And for other patients, enrolling onto a clinical ...

    Interview last updated 06/17/2014 - 9:15am.

  8. Get the Relief You Need When You Experience the Symptoms of Serious Illness—ask about Palliative Care

    ... Learn more about what palliative care means for bone marrow failure diseases. ...

    Page last updated 09/30/2014 - 10:45am.

  9. Dorothy Zajac, daughter raises funds to honor father

    ... and raising a family.  But, she was also deeply affected by bone marrow failure disease when her father Richard Zajac, known as “Dziadzius” ...

    Patient Chronicle last updated 07/01/2014 - 8:06am.

  10. PNH Research Retrospective

    ... hematologists/oncologists were adequately informed about bone marrow failure disease, and what could be done to bridge any gap between the ...

    Interview last updated 04/14/2014 - 8:33am.