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  1. The Five Principles of Standing Up for Your Health

    ... and treatment options. Although a diagnosis of bone marrow failure disease is an unwelcome life event, strong self-advocates ...

    Page last updated 08/04/2015 - 10:01am.

  2. The Transplantation Procedure

    ... your body. Computed Tomography Scan, Skeletal X-Ray, or Bone Scan These tests provide detailed images of your body. They're used ... lead to a higher risk of relapse of the patient’s bone marrow failure disease.  Retrospective studies [add & link into glossary: ...

    Page last updated 05/14/2015 - 10:39am.

  3. Marrowforums

    ... from other patients with the same diseases.  For bone marrow failure diseases, Marrowforums is a site where you can do ...

    Page last updated 01/21/2014 - 12:28pm.

  4. What is MDS? iPad App

    ... Up For Your Health program helps patients with bone marrow failure diseases and their families develop the skills necessary to ...

    Page last updated 10/28/2015 - 2:31pm.

  5. Aplastic Anemia Research Focus Group

    ... AA&MDSIF knows that you are the experts on living with bone marrow failure diseases. We periodically get requests from researchers ...

    Page last updated 06/13/2014 - 11:12am.

  6. Judy Joyce Memorial Golf Tournament


    Fundraising Event last updated 11/08/2013 - 3:15pm.

  7. Health Related Quality of Life and Well-Being

    ... to well-being. Even when diagnosed with a rare bone marrow failure disease, you can still work to establish a favorable health ...

    Page last updated 06/24/2015 - 2:08pm.

  8. Health Care Team Players: Meet the Nurse

    ... Some RN’s are involved in research.  Bone marrow failure patients may have advance practice registered nurses (APRN) ...

    Page last updated 05/29/2015 - 9:46am.

  9. Aplastic Anemia Halloween Benefit Bash


    Fundraising Event last updated 10/31/2012 - 3:56pm.

  10. AA&MDSIF Erwin Umbach/MacGillivray Research Fund

    When his father-in-law, Erwin Umbach, passed away, AA&MDSIF board member Jim MacGillivray created a research fund as a tribute to him to find answers about MDS.

    Page last updated 10/01/2012 - 3:25pm.