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  1. Policymakers Act on Rare Disease Community’s Behalf

    ... a spending bill, which both will benefit patients with bone marrow failure disease. On Dec. 16, Congress finalized the reauthorization of ...

    Page last updated 01/08/2016 - 2:39pm.

  2. Iron Overload and MDS

    ... is need for RBC transfusions. It is thought that the bone marrow diseased with MDS decreases the liver’s production of a ...

    Research Review last updated 05/02/2016 - 9:18am.

  3. Myeloablative Unrelated Donor Cord Blood Transplantation With T-Cell Depleted Haplo-identical Peripheral Blood Stem Cells for Patients With High Risk Hematological Malignancies

    ... 09/01/2016 Bone Marrow Disease(s):  myelodysplastic syndromes (MDS) ...

    Clinical Trial last updated 04/29/2016 - 1:33pm.

  4. Judy Joyce Memorial Golf Tournament

    The Annual Judy Joyce Memorial Golf Tournament began in 1993. Judy passed away from aplastic anemia . This event is organized annually by Judy Joyc...

    Fundraising Event last updated 11/08/2013 - 3:15pm.

  5. Two Florida Girls Have a Rare Connection

    ... a rare connection. The Florida girls both suffer from bone marrow failure diseases, which have turned their young lives upside down. ...

    Page last updated 11/19/2015 - 4:18pm.

  6. Matthew Debono Memorial Scholarship Program Frequently Asked Questions

    ... a scholarship to help students similarly challenged by bone marrow failure disease. Unfortunately, Matthew died of complications from ...

    Page last updated 02/26/2015 - 2:11pm.

  7. CD8+ Memory T-Cells as Consolidative Therapy After Donor Non-myeloablative Hematopoietic Cell Transplant in Treating Patients With Leukemia or Lymphoma

    ... cell transplant helps stop the growth of cells in the bone marrow , including normal blood-forming cells ( stem cells ) and ...

    Clinical Trial last updated 04/29/2016 - 12:36pm.

  8. Study of Clinical Efficacy and Safety of Tosedostat in MDS (IST-CTI-MDS)

    ... pathologically confirmed MDS (< 20% blasts in bone marrow , peripheral blood, or both) by World Health Organization (WHO) ...

    Clinical Trial last updated 05/03/2016 - 9:46am.

  9. Sally and Manuel Debono

    ... to help students who were similarly challenged by bone marrow failure disease. Following his death, the family established the ...

    Leadership Award last updated 05/02/2016 - 12:17pm.

  10. Atlanta Community of Hope Scales Mountain for Awareness!

    ... "We did it for to two reasons, to bring awareness to bone marrow failure and to prove we could do it!" "Our goal for 2016 is to ...

    Page last updated 03/13/2015 - 12:01pm.