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  1. Advice for Family Caregivers

    ... go away. This is because in some cases, such as bone marrow failure diseases, there is nothing caregivers can do to bring a ...

    Interview last updated 09/30/2014 - 11:32am.

  2. Yahn Family Raises Over $400,000 for Research

    ... an advocacy effort that has raised over $415,000 for bone marrow failure disease research through the Torry Yahn Research Fund. ...

    Patient Chronicle last updated 03/19/2014 - 4:09pm.

  3. Recommended Reading

    Caregiving And Thou Shalt Honor: The Caregiver's Companion, edited by Beth Witrogen McLeod, 464 pp, Rodale Press, 2003.  A complete reference for family caregivers, edited by the founder of the N...

    Page last updated 05/07/2013 - 1:41pm.

  4. Iron Chelation Therapy

    ... blood cells is normally stored in the liver, spleen, and bone marrow . Excess iron may accumulate in these 3 normal storage sites and also ...

    Page last updated 01/20/2015 - 4:40pm.

  5. PNH Research and Support Foundation Donations

    Make a tax-deductible gift to support the work of the PNH Research & Support Foundation TODAY.  Your gift will support research, patient education, and support services. Remember a loved one, celebrate a...

    Webform last updated 09/23/2014 - 10:51am.

  6. What is MDS? iPad App

    ... Standing Up For Your Health program helps patients with bone marrow failure diseases and their families develop the skills necessary to ...

    Page last updated 11/01/2013 - 1:25pm.

  7. Resistance to Hypomethylating Agents in the Treatment of MDS

    ... induction chemotherapy with the hope to get to bone marrow transplant .  And for other patients, enrolling onto a clinical ...

    Interview last updated 06/17/2014 - 9:15am.

  8. Get the Relief You Need When You Experience the Symptoms of Serious Illness—ask about Palliative Care

    ... Learn more about what palliative care means for bone marrow failure diseases. ...

    Page last updated 09/30/2014 - 10:45am.

  9. PNH Research Retrospective

    ... hematologists/oncologists were adequately informed about bone marrow failure disease, and what could be done to bridge any gap between the ...

    Interview last updated 04/14/2014 - 8:33am.