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  1. AAMDSIF Emily Kass Research Fund

    ... her life. Emily was diagnosed with a very rare bone marrow failure disease, MDS.  As there wasn’t any protocol for ...

    Research Fund last updated 06/08/2017 - 3:35pm.

  2. Simona Pagliuca, MD

    ... Aplastic anaemia, is a rare disease in which the bone marrow and the hematopoietic stem cells that reside there are ...

    Grant Recipient last updated 06/08/2017 - 10:43am.

  3. AAMDSIF Torry Yahn Research Fund

    ... an advocacy effort that has raised over $375,000 for bone marrow failure disease research. Torry started to complain of headaches ...

    Research Fund last updated 06/08/2017 - 5:00pm.

  4. AAMDSIF Earl J. Goldberg Fund

    ... nationwide to raise awareness and support to fight this bone marrow failure disease. As AAMDSIF has grown to reach more people than ever ...

    Research Fund last updated 06/08/2017 - 3:32pm.

  5. Karen Bosse

    ... Karen Bosse is a two-time survivor of multiple bone marrow failure disorders ( aplastic anemia , PNH, and MDS), once as a ...

    Bio last updated 06/07/2017 - 11:20am.

  6. March for Marrow: Miami, Florida 2017

    ... spirit and to raise money to help find a cure for bone marrow failure disease and support the patients who are living with it. ...

    Friendraising Walk last updated 06/01/2017 - 2:20pm.

  7. Judi Wilkinson

    ... 14 years ago, she was just as stunned as every other bone marrow failure patient. "It scared the daylights out of  me." ...

    "Like You" Patient Story last updated 06/01/2017 - 10:33am.

  8. Population pharmacokinetics of fludarabine in patients with aplastic anemia and Fanconi anemia undergoing allogeneic hematopoietic stem cell transplantation.

    ... Journal Title:  Bone Marrow Transplant Primary Author:  ...

    Research Article last updated 05/22/2017 - 10:32am.

  9. Eltrombopag Added to IST Yields Encouraging Results

    ... that mimics the actions of a natural growth substance for marrow stem cells while suppressing the immune system improves the likelihood, ... with cell divisions and may represent how exhausted the bone marrow is prior to treatment. Patients who had shorter telomeres at ...

    Interview last updated 05/24/2017 - 7:44am.

  10. Code of Ethics

    ... good of patients, caregivers and families dealing with bone marrow failure disease Respect for the worth and dignity of all ...

    Page last updated 05/19/2017 - 3:00pm.