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  1. MDS and MDS/MPN: Past, Present, and Future 2014 American Society of Hematology (ASH) Satellite Symposium Summary for Patients and Families

    ... includes the provisional category of refractory anemia with ringed sideroblasts associated with marked thrombocytosis ... Francisco to explain the most important new research on aplastic anemia , MDS and PNH. These physicians are AA&MDSIF Medical ...

    Page last updated 03/13/2015 - 5:00pm.

  2. Phase IIA Open Label Study to Evaluate Efficacy and Safety of BL-8040 Followed by (hATG), Cyclosporine and Methyprednisolone in Adult Subjects With Aplastic Anemia or Hypoplastic Myelodysplastic Syndrome

    ... Bone Marrow Disease(s):  aplastic anemia Associated Drug(s):  ...

    Clinical Trial last updated 04/26/2016 - 11:45am.

  3. The Transplantation Procedure

    What medical tests and exams happen before a stem cell transplant ? Your doctors will want to make sure you're healthy enough to have a stem cell transplant. They also will want to find out whether you h...

    Page last updated 05/14/2015 - 10:39am.

  4. Gregory Abel, MD

    Developing a Disease-Specific Measure for Quality of Life in Patients with Myelodysplastic Syndrome Original Resear...

    Grant Recipient last updated 09/28/2012 - 3:14pm.

  5. Scientific Symposium Co-Chair Richard Stone, MD Discusses Progress and New Directions in Bone Marrow Failure Disease Research

    ... great deal about the different mechanisms that underlie aplastic anemia and MDS. For example, we previously thought of aplastic anemia as an ...

    Interview last updated 04/29/2014 - 12:01pm.

  6. A Pilot, Phase I/II Study of the Amino Acid Leucine in the Treatment of Patients With Transfusion-Dependent Diamond Blackfan Anemia (LeucineDBA)

    ... Bone Marrow Disease(s):  aplastic anemia Phase:  ...

    Clinical Trial last updated 04/28/2016 - 8:40am.

  7. Clear Communication with Your Provider

    Today, limited appointment times, overwhelming and confusing volumes of information available on the Internet, coupled with the stress of having a rare disease diagnosis, might mean patients don't always get the an...

    Page last updated 04/30/2015 - 3:15pm.

  8. Caregivers Resources

    Caregiver Resources in the Ask Medicare Toolkit are designed to help caregivers address challenging issues and work effectively with Medicare to ensure their family members and friends receive the best poss...

    Page last updated 12/04/2014 - 10:13am.

  9. Nurse's Corner Spring 2015: Patient Advocacy – Is There a “Magic Formula?”

    Like many of us, I’ve been told that I’m a great advocate for my patients. But what does this really mean?  How does one articulate what nursing advocacy is?  Is there a “magic formula” for being an advocate? In...

    Page last updated 04/23/2015 - 10:52am.

  10. Honor your loved one on Memorial Day

    ... Other Bone marrow failure disease * Aplastic Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria ...

    Webform last updated 05/11/2016 - 12:14pm.