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  1. Nurses' Column October 2014 - Fatigue Education for the MDS Patient

    ... that may compound their fatigue:  low blood counts ( anemia ), emotional stress, pain, GI issues from chemotherapy , lack ...

    Page last updated 10/24/2014 - 10:40am.

  2. Clinical Trial Basics

    ... Without research studies on children with aplastic anemia , the healthcare team may not have the level of information needed to ...

    Page last updated 03/29/2016 - 7:29pm.

  3. Self-Advocacy Resources

    ... MDS, go to cancer.gov . To learn more about aplastic anemia , go to nhlbi.nih.gov . Patient Advocate ...

    Page last updated 02/26/2015 - 3:38pm.

  4. ASH 2012 - Reviewing MDS Progress from Research and Clinical Perspectives

    We hear that there is increasing interest and research in the role that genes and genetic mutations have in affecting the course of MDS. Were there any studies of particular significance in this area? Yes, ...

    Interview last updated 02/01/2013 - 4:22pm.

  5. Principle 1: Build a Strong Healthcare Team

    ... find an expert near you who has experience with aplastic anemia , MDS, or PNH. You may need to go out of your area to visit an ...

    Page last updated 05/12/2015 - 9:00am.

  6. Recommended Reading

    Caregiving And Thou Shalt Honor: The Caregiver's Companion, edited by Beth Witrogen McLeod, 464 pp, Rodale Press, 2003.  A complete reference for family caregivers, edited by the founder of the N...

    Page last updated 05/07/2013 - 1:41pm.

  7. Coordinated Care: MDS Research and Treatment Centers and Community Hematologists Work Together for Complete Patient Care

    What does the term “coordinated care” mean, and what advantages may it offer for MDS patients? There is really no formal, widely accepted defi nition or model for this term. But for most, the term “coordinat...

    Interview last updated 07/23/2012 - 4:56pm.

  8. Lois Gaynor

    ... in tribute to her daughter who lost her battle with aplastic anemia in 1977 at the age of 15. ...

    Leadership Award last updated 07/22/2016 - 1:21pm.

  9. Know Your Options

    ... our in-depth disease and treatment content about  aplastic anemia , MDS and PNH .  Request a patient information packet from ...

    Page last updated 05/02/2016 - 11:50am.

  10. Forma de registración

    ... es el diagnóstico primario del paciente? * Anemia Aplasica Síndromes Mielodisplásicos Hemoglobinuria Paroxística Nocturna ¿Cuál es su relación con la anemia aplásica, los SMD o la HNP? * Paciente Padre ... Apellido ¿Cuál es su relación con la anemia aplásica, los SMD o la HNP? Paciente Padre Esposo/pareja ...

    Webform last updated 05/10/2016 - 11:42am.