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  1. Clear Communication with Your Provider

    Today, limited appointment times, overwhelming and confusing volumes of information available on the Internet, coupled with the stress of having a rare disease diagnosis, might mean patients don't always get the an...

    Page last updated 04/30/2015 - 3:15pm.

  2. Caregivers Resources

    Caregiver Resources in the Ask Medicare Toolkit are designed to help caregivers address challenging issues and work effectively with Medicare to ensure their family members and friends receive the best poss...

    Page last updated 12/04/2014 - 10:13am.

  3. Part 1: Diagnosing MDS

    ... Program: Asssesing for MDS in Older Adults with Anemia ...

    LMS Item last updated 06/08/2016 - 3:13pm.

  4. Part 2: MDS Diagnostic Workup, Staging, and Supportive Therapy

    ... Program: Asssesing for MDS in Older Adults with Anemia ...

    LMS Item last updated 06/08/2016 - 3:13pm.

  5. Part 3: Beyond Supportive Therapies

    ... Program: Asssesing for MDS in Older Adults with Anemia ...

    LMS Item last updated 06/08/2016 - 3:13pm.

  6. Soliris

    ... has many benefits. It has been found to: Improve anemia Reduce or get rid of the need for transfusions Reduce the ...

    Page last updated 06/29/2015 - 9:07am.

  7. What You Can Do for Awareness Week

    ... learn more about what you can tell others. Aplastic Anemia  Myelodysplastic Syndromes (MDS)   Paroxysmal ... Send a request for a Proclamation Letter for Aplastic Anemia and MDS Awareness Week to your state or local officials. ...

    Page last updated 12/17/2014 - 9:40am.

  8. Supportive Care

    ... treatments that help you manage the symptoms of aplastic anemia . This approach does not treat the cause of your aplastic anemia and is not a cure. This approach includes the use of: Blood ...

    Page last updated 08/29/2013 - 4:20pm.

  9. Special Issues for People with PNH

    ... get from earth, the less oxygen there is. If you have anemia , flying in an airplane or going up high may cause a shortage of ... a red blood cell count Get treatment for your anemia (blood transfusions or growth factors) If you do fly, remember ...

    Page last updated 01/20/2015 - 4:59pm.

  10. Nurse's Corner Spring 2015: Patient Advocacy – Is There a “Magic Formula?”

    Like many of us, I’ve been told that I’m a great advocate for my patients. But what does this really mean?  How does one articulate what nursing advocacy is?  Is there a “magic formula” for being an advocate? In...

    Page last updated 04/23/2015 - 10:52am.