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  1. Special Issues for People with PNH

    ... things, it's a good idea to: Get a red blood cell count Get treatment for your anemia (blood transfusions or ... weigh the risks and benefits of getting a flu shot. Don’t forget to ask whether your family members and others in close contact with ...

    Page last updated 01/20/2015 - 4:59pm.

  2. My MDS Diagnosis and Progression of Treatment

    ... getting a burning feeling in my left foot.  Because it wasn't that bad I let it go, but by the holidays of that year, I could barely put my ... Unfortunately, this drug also lowers my red blood cell counts and my hemoglobin along with the platelets. I have lab ...

    Patient Chronicle last updated 12/15/2016 - 11:19am.

  3. Role of microRNAs in Aplastic Anemia

    ... M.D.   Abstract 2940: Altered microRNAs in T cells from Patients with Acquired Aplastic Anemia MicroRNAs ... from healthy people and from patients with MDS or sickle cell disease. Key findings: miRNAs were downregulated, meaning ...

    Research Review last updated 05/02/2016 - 9:15am.

  4. Myelodysplastic Syndromes and autoimmune disorders: Cause or consequence?

    ... cytopenias in MDS patients. For instance, deregulated T cell immunity which leads to downstream inflammatory responses can induce ...

    Research Review last updated 05/02/2016 - 9:18am.

  5. Research Retrospective for AA&MDSIF 30th Anniversary - Dr. Neal Young

    ... readily available to most patients, changes in red blood cell transfusion methods have decreased the problem of alloimmunization, ... of the underlying pathophysiology , we really don’t’ understand it in detail. So, empirically, horse ATG remains our best ...

    Interview last updated 05/08/2013 - 2:51pm.

  6. North American Pediatric Aplastic Anemia Consortium Symposium

    ... to show mild dysplasia and patchy areas of red blood cell , or erythroid, precursors. However, in the absence of an MDS defining ... graft rejection, which is problematic for patients who don’t respond to IST. As donor matching and supportive care within hematopoietic ...

    Page last updated 10/31/2013 - 4:06pm.

  7. Eltrombopag: Recent Discoveries on Potential New Applications for Aplastic Anemia

    ... in some patients, but also improve white and red blood cell counts. This was a surprising finding, as the drug was really ... trials for aplastic anemia? Originally we weren't that hopeful that eltrombopag would be useful in aplastic anemia, because the ...

    Interview last updated 02/14/2014 - 2:01pm.

  8. Disease Won't Run My Life

    ... Jersey and I walked in while he parked the car.  I didn’t know I wouldn’t be leaving for five more days. Once I explained my ... but my very low blood counts continued for all three cell lines. The “aplastic crisis” morphed into severe aplastic anemia which ...

    Patient Chronicle last updated 05/10/2016 - 3:36pm.

  9. Understanding Prognosis in MDS

    ... may suggest a more risky therapy, such as a stem cell transplant , be tried. A better prognosis that indicates a longer life ... and decitabine (Dacogen®)—and IPSS doesn’t take the effect of these into account. Another drawback is that it is not ...

    Interview last updated 05/02/2012 - 4:36pm.

  10. FAQs

    ... families. Just click on the question to view the answer. Don't see the answer to your question here? Send your question to our patient ... MDS, you must have low blood counts for at least one blood cell type and your blood cells must look abnormal under a microscope. Doctors ...

    Topic section last updated 03/02/2016 - 11:43am.