Research Connection

Research Connection

This monthly electronic newsletter focuses on bone marrow failure disease research. Information will all be connected in one convenient and easy to navigate resource. You will find information and interviews from leading medical researchers, stories from patients who have been affected by research, and highlights of the research we support through your generous contributions. We will let you know how to order our summaries and reports and identify the latest research on bone marrow failure diseases. You’ll also receive advanced notice of upcoming webinars and webcasts in our Online Learning Center.

Issues

2015

  • September
    • 2015 Summer Fellows Report
    • AA&MDSIF announces PNH grant awards
    • How to Find a Research Article
    • 2013 Research Grantee Final Year Report
    • Giving Tuesday 2015
    • Meet Our Medical Advisory Board: Dr. Alan List
    • Dr. Aaron Gerds Research Review
  • August
    • Research Grantee First Year Reports
    • Types of Research Articles, Part I
    • Watch Our Standing Up for Your Health Videos!
    • AA&MDSIF Annual Report Now Available
    • Dr. Diego Villa Clé Research Review
    • Meet Our Medical Advisory Board: Dr. Giagounidis
  • July
    • Dr. Matt Walter on Mentoring a Summer Fellow
    • Understanding Research Articles, Part II
    • 2014 Reseach Grantee First Year Report
    • 2015 PNH Research Grant Coming September 2015
    • Dr. Diego Villa Clé Research Review
    • Meet Our Medical Advisory Board: Dr. Guillermo Garcia-Manero
  • June
    • Presenting Our 2015 Grant Recipients
    • New Money Available for 2015 PNH Research Grant
    • Understanding Research Articles, Part 1
    • Reseach Grantee Profile: Dr. Patrizia Ricci
    • What Does Hope Mean to You?
    • Meet Our Medical Advisory Board: Dr. Amy DeZern
  • May
    • Highlights from Recent MDS Symposium
    • 2015 PNH Research Grant
    • Why Research is Important
    • Summer Fellowship Project Summary: Rigoberto De Jesús Pizarro
    • Research Grantee Profile: Hideki Makishima
    • Meet Our Medical Advisory Board: Mikkael Sekeres
  • April
    • Transplantation: What Did You Hear?
    • Are Clinical Trials an Option for You?
    • Women and Minorities in Clinical Trials
    • MDS Clinical Research Consortium Update
    • Clinical Trials
    • Research Grantee Profile
    • Recent Research
    • AA&MDSIF Summer Fellowship Program Awards
    • Story of Hope - Livia
    • March
      • Summaries for Patients from ASH 2014 Now Available
      • AA&MDSIF Survey on the Path to PNH Diagnosis
      • Clinical Trials
      • Research Grantee Profile
      • Recent Research
      • Meet Our Medical Advisory Board
      • Story of Hope - Yajaira Suarez
    • February
      • Experts Speak About the Latest Aplastic Anemia, MDS and PNH Research
      • Study Finds Differences in Patient and Physician Perspectives
      • 2015 Summer Fellowship Grant Applications Now Available
      • Madden Family Research Fund
      • Clinical Trials
      • Research Grantee Profile
      • Recent Research
      • Meet Our Medical Advisory Board
      • Story of Hope - Kimberly Woudenberg
    • January
      • Scientific Symposium Conference Report
      • ASH 2014 Highlights
      • AA&MDSIF and MD Anderson Fatigue Study
      • 2015 Research Grant Applications Now Available
      • Fund A Fellow
      • Clinical Trials
      • Recent Research
      • Meet Our Medical Advisory Board
      • Story of Hope

    2014

    • December 2014
      • Video Interviews from Leading Experts at ASH 2014
      • AA&MDSIF and MD Anderson Fatigue Study
      • Amy Gaynor Research Fund Established
      • Newest Edward P. Evans Fellow
      • Summer Fellowship Program
      • Clinical Trials
      • 2015 Patient and Family Conferences
      • Recent Research
      • Research Review
      • Story of Hope: Brittany Springer
    • November 2014
      • 2014 Treatment Adherance Study
      • ASH 2014
      • Past AA&MDSIF Grant Recipient Hildegard Greinix
      • Newest Edward P. Evans Fellow
      • Summer Fellowship Program
      • Clinical Trials
      • Upcoming Webinars
      • Recent Research
      • Research Review
      • Story of Hope: Robin Grapa
    • October 2014
      • Children and Research
      • PNH: Your Path to Diagnosis Survey
      • Meet the Newest Edward P. Evans Fellow: Yue Wei
      • AA&MDSIF Announces New Summer Fellowship Grant Program
      • Interview With Past AA&MDSIF Grant Recipient
      • Clinical Trials
      • Upcoming Webinars
      • Recent Research
      • Research Review
      • Story of Hope: Annie Tighe
      • Julia Malsin Research Fund
    • September 2014
      • AA&MDSIF Announces New Summer Fellowship Grant Program
      • Eltrombopag Now FDA-Approved for Severe Aplastic Anemia
      • ASCO and EHA MDS Research Summary and Webinar for Patients is Now Available
      • Did You Know: A Clinical Trial is a Research Study?
      • Interview With Past AA&MDSIF Grant Recipient
      • Clinical Trials
      • Upcoming Webinars
      • Recent Research
      • Research Review
      • Story of Hope: Arthur Henry
      • Michael Fernandes Research Fund
    • August 2014
      • Dr. Zeidan Researches New Therapies for MDS
      • New Global Resources for Patients and Families
      • AA&MDSIF Survey Finds Differences between MDS Patients and Health Care Professionals on Risks and Benefits of Treatment
      • A Look Back at Past Grant Recipients
      • Did You Know AA&MDSIF Helps You Understand Medical and Research Terms?
      • ASCO and EHA MDS Research Summary for Patients is Now Available
      • Clinical Trials
      • Upcoming Webinars
      • Recent Research
      • Research Review
      • Story of Hope: Eric Hodies
      • Sam Jordan Research Fund
    • July 2014
      • New Interview About Genetics and Genomics of Bone Marrow Failure
      • Researcher Investigates New Uses for Current Drugs
      • Important Topics in PNH
      • A Look Back at Past Grant Recipients
      • Did You Know?
      • Clinical Trials
      • Upcoming Webinars
      • Recent Research
      • Research Summaries for Patients
      • Story of Hope: Kendra Arvon
      • The Langley Family Continues to Look for a Cure
      • Help Create a Named Research Fund
    • June 2014
      • MDS Researcher Looking Into Genetic Profiles to Identify Appropriate Therapies for Patients
      • New Researcher is Eager to Begin Work in Hematology
      • New Bone Marrow Transplant Tutorial Module on Online Learning Center
      • Scientific Symposium 2014 Summary for Patients
      • Clinical Trials
      • Upcoming Webinars
      • Recent Research
      • Research Summaries for Patients
      • Story of Hope: David Mu
      • The Langley Family Continues to Look for a Cure
      • Help Create a Named Research Fund
    • May 2014
      • Scientific Symposium: Genetics of Disease and Unrelated Stem Cell Transplants
      • Symposium Co-Chairs Discuss Non-Transplant Therapies for Aplastic Anemia
      • AA&MDSIF Research Grantees: A European Perspective
      • Emily Kass and the Research Fund that Bears Her Name
      • Clinical Trials
      • Upcoming Webinars
      • Recent Research
      • Research Summaries for Patients
      • Story of Hope: Serena Sky Sangster
      • Help Create a Named Research Fund
    • April 2014
      • Scientific Symposium: Interviews with Experts
      • Symposium Exclusive: First Line and Non-Transplant Treatments for Aplastic Anemia
      • Support the Liviya Anderson Research Fund for Aplastic Anemia
      • Clinical Trials Currently Recruiting Patients
      • Webinars
      • Recent Research
      • Research Reviews
      • Research Summaries for Patients
      • Story of Hope: Robin Grapa
      • Help Create a Named Research Fund
    • March 2014
      • Noted Researchers Discuss Recent Advances
      • Scientific Symposium 2014
      • Matthew Walter, MD: AA&MDSIF Grantee Advances the Study of MDS Genomics
      • Yahn Family Remembers Daughter Torry Through Years of Dedicated Fundraising
      • Current Clinical Trials
      • Recent Research
      • Research Reviews
      • Research Summaries for Patients
      • Story of Hope: Kate Witter
      • Help Create a Named Research Fund
    • February 2014
      • Webinars and Webcast Bring Latest on Research and Treatment
      • Meet our Research Grantees
      • Scientific Symposium
      • New Funds Dedicated to PNH Research
      • Current Clinical Trials
      • Recent Research
      • Research Reviews
      • Research Summaries for Patients
      • Story of Hope: Johnna Corson
      • Help Create a Named Research Fund
    • January 2014
      • Introduction
      • Interviews With the Experts: Dr. Alan List and Dr. Rafael Bejar
      • Latest from ASH 2013 Annual Meeting: Video interviews with Dr. Mikkael Sekeres, Dr. Jeffrey Pu, and Dr. Akiko Shimamura
      • 2014 Scientific Symposium
      • Current Clinical Trials
      • AA&MDSIF Research Grants
      • Recent Journal Articles
      • Research Reviews
      • Research Summaries
      • Story of Hope: Jim Westmoreland