| Page 4 | Aplastic Anemia and MDS International Foundation (AAMDSIF)

Granulocyte transfusions in severe aplastic anemia

Author(s):

Rajput RV, Shah V, Shalhoub RN, West-Mitchell K, Cha NR, Conry-Cantilena C, Leitman SF, Young DJ, Wells B, Aue G, Dunbar CE, Patel BA, Childs RW, Young NS, Wu CO, Groarke EM, Kalsi SS

Primary Author:

Rajput RV

Journal Title:

Haematologica

Original Publication Date:

Dec 2023

Patients with severe

Bone Marrow Disease(s):

Aplastic Anemia

Paroxysmal Nocturnal Hemoglobinuria: Current Management, Unmet Needs, and Recommendations

Author(s):

Oliver M, Patriquin CJ

Primary Author:

Oliver M

Journal Title:

Journal of Blood Medicine

Original Publication Date:

Dec 2023

Bone Marrow Disease(s):

Paroxysmal Nocturnal Hemoglobinuria (PNH)

Conditional survival and standardized mortality ratios of patients with severe aplastic anemia surviving at least one year after hematopoietic cell transplantation or immunosuppressive therapy

Author(s):

Nakamura R, Patel BA, Kim S, Wong FL, Armenian SH, Groarke EM, Keesler DA, Hebert KM, Heim M, Eapen M, Young NS

Primary Author:

Nakamura R

Journal Title:

Haematologica

Original Publication Date:

Dec 2023

Immunosuppressive treatment (IST) and hematopoietic cell transplant (HCT) are standard therapies for severe

Bone Marrow Disease(s):

Aplastic Anemia

Comparison of Haploidentical Stem Cell Transplantation with Post-Transplantation Cyclophosphamide versus Umbilical Cord Blood Transplantation in Adult Patients with Aplastic Anemia

Highlights

Conquering PRCA: a conversation with Ron Duncan, Patient Survivor

Ron had a sudden alert when he learned he had one of the rarest of diseases. Listen to this conversation to learn how he managed diagnosis, treatment, and survivorship in this episode.

Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput

Find out the relationship between Hepatitis and Aplastic Anemia in this episode with Dr. Roma Rajput.

Brian Anderson Explains Life, Treatment, and Surviving MDS

AAMDSIF Director of Patient Programs, Leigh Clark, asks Brian about his life before diagnosis, during "watch and wait," through transplant, to now. Listen here to his myelodysplastic syndromes, or MDS, patient journey.

Conversation with patient, Mario Rivera: His Experience with Aplastic Anemia

AAMDSIF Director of Patient Services, Leigh Clark, asks Mario about his journey with Aplastic Anemia. The conversation includes treatment and survivorship.

Evan's Life is Turned Upside Down by Diagnosis of PNH

Evan biked daily. He had no symptoms. The diagnosis was fast, but surprising. Evan shares his remarkable story in this episode.

Approval of Fabhalta (iptacopan), Oral Medication for Patients with PNH

What does this FDA approval mean for patients with PNH? Find out how this oral medication, Fabhalta, could replace one of the infusion treatments in this interview with Dr. Bart Scott.