AAMDSIF in San Diego 9/17 | Aplastic Anemia and MDS International Foundation

AAMDSIF in San Diego 9/17

Original Publication Date: 
Wednesday, September 7, 2016
Article Source: 
AAMDSIF Web Content

Sept. 6, 2016       
Contact: Barbara Holzer, holzer@aamds.org, (301) 279-7202, x106

After Misdiagnosis by Renowned Institution, Local Woman Gets New Lease on Life Thanks to Specialist at UC San Diego Health

ROCKVILLE, MD – Seventy-four year old Anne Wells led a very active, independent life until two-and-a-half years ago, when she suddenly became so weak that she could no longer take care of herself. “It was a very scary time for me, but even more so for my children,” she said.

Her daughter came from Colorado to look after her, but when she couldn’t wake her mother up one day and had to call 911, the family decided mom needed to go to a prominent medical institution thousands of miles away to get some answers. After a two-week hospital stay and myriad blood tests, Anne was told she had an allergy. She certainly knew how some people suffered with severe allergies, but she had never been one of them and never thought an allergy could be as bad as she felt. She went home fearing the worst.

That’s when providence intervened and she discovered Rafael Bejar, MD, PhD, a world-class hematologist and oncologist at Moores Cancer Center at UC San Diego Health in La Jolla. Bejar quickly diagnosed Anne with MDS (myelodysplastic syndromes), a rare bone marrow disorder and a form of blood cancer. She has since had 31 treatments of the specialized chemo for MDS, and now has no symptoms whatsoever. She’s driving again and has returned to her aerobics and yoga classes.

Anne Wells will be among the 150+ families attending a free patient and family conference being held by the Aplastic Anemia and MDS International Foundation (AAMDSIF) – a full day of educational sessions that enables patients, families and caregivers to learn from leading health professionals and connect with each other. It’s a unique opportunity for those living with aplastic anemia, MDS or PNH (paroxysmal nocturnal hemoglobinuria).

Sessions will be available in English and Spanish, with on-site translators for facilitating group discussions and family participation.

WHAT: AAMDSIF Patient and Family Conference
WHO: Anne Wells, MDS patient
          Dr. Rafael Bejar, Moores Cancer Center at UC San Diego Health      
          Kathleen Weis, CEO, AAMDSIF
WHEN: Sat., Sept. 17, 8:30 am to 4:30 pm
WHERE: Doubletree by Hilton, San Diego – Mission Valley
               7450 Hazard Center Drive                            
               (619) 297-5466

The Aplastic Anemia and MDS International Foundation (AAMDSIF) has been arming patients and families with the information they need to fight bone marrow failure disease since 1983. The organization sponsors innovative and collaborative research through the MDS Clinical Research Consortium and with its own research grant program. Based in Rockville, MD, the Foundation has received Charity Navigator’s coveted 4-star rating for 11 consecutive years.